dellriol

You be upfont and say " Dr.— I have some questions I need to discuss with you.I need more information about … I would appeciate a few minutes of your time."  Then be ready with your questions.   Write questions in advance and hand a copy directly to the Dr.   Ask about pubications that would be available…you may need to ask in advance to schedule you with a little more time. Keep asking.

You be upfont and say " Dr.— I have some questions I need to discuss with you.I need more information about … I would appeciate a few minutes of your time."  Then be ready with your questions.   Write questions in advance and hand a copy directly to the Dr.   Ask about pubications that would be available…you may need to ask in advance to schedule you with a little more time. Keep asking.

You be upfont and say " Dr.— I have some questions I need to discuss with you.I need more information about … I would appeciate a few minutes of your time."  Then be ready with your questions.   Write questions in advance and hand a copy directly to the Dr.   Ask about pubications that would be available…you may need to ask in advance to schedule you with a little more time. Keep asking.

I was diagnosed with stage 4 when I lost the use of my right arm and leg from a brain tumor. I was sent by ambulance for a craniotomy.   We called my immediate family like you would with any major sugery.  But I am not a very private person, so I had called my boss before surgery, and I was posting it on facebook as soon as I woke up.  I went through rehab and treatment with facebook friends at my side.  When someone heard that I was dying, I was able to stop that rumor in its tracks…We live over an hour away from the hospital so facebook allowed me to stay in touch….

I think it all depends on you….most people will be supportive.  Some will find it hard to talk to you…give them time.   For me I find that the more open I am the easier it is for people to handle it,and the easier it is for me…

I was diagnosed with stage 4 when I lost the use of my right arm and leg from a brain tumor. I was sent by ambulance for a craniotomy.   We called my immediate family like you would with any major sugery.  But I am not a very private person, so I had called my boss before surgery, and I was posting it on facebook as soon as I woke up.  I went through rehab and treatment with facebook friends at my side.  When someone heard that I was dying, I was able to stop that rumor in its tracks…We live over an hour away from the hospital so facebook allowed me to stay in touch….

I think it all depends on you….most people will be supportive.  Some will find it hard to talk to you…give them time.   For me I find that the more open I am the easier it is for people to handle it,and the easier it is for me…

I was diagnosed with stage 4 when I lost the use of my right arm and leg from a brain tumor. I was sent by ambulance for a craniotomy.   We called my immediate family like you would with any major sugery.  But I am not a very private person, so I had called my boss before surgery, and I was posting it on facebook as soon as I woke up.  I went through rehab and treatment with facebook friends at my side.  When someone heard that I was dying, I was able to stop that rumor in its tracks…We live over an hour away from the hospital so facebook allowed me to stay in touch….

I think it all depends on you….most people will be supportive.  Some will find it hard to talk to you…give them time.   For me I find that the more open I am the easier it is for people to handle it,and the easier it is for me…

I am currently in a clinical trial for Z with Brain mets.  Only have one met in brain and several in lungs. I've been on it for just over a year.  It did shrink my brain met, and more importantly I have had NO NEW mets on Zel.  Side effects aren't a major issue for me. We did drop the dose to 720 due to liver issues, but since then the side effects have been easily manageable.   Good luck!

I am currently in a clinical trial for Z with Brain mets.  Only have one met in brain and several in lungs. I've been on it for just over a year.  It did shrink my brain met, and more importantly I have had NO NEW mets on Zel.  Side effects aren't a major issue for me. We did drop the dose to 720 due to liver issues, but since then the side effects have been easily manageable.   Good luck!

I am currently in a clinical trial for Z with Brain mets.  Only have one met in brain and several in lungs. I've been on it for just over a year.  It did shrink my brain met, and more importantly I have had NO NEW mets on Zel.  Side effects aren't a major issue for me. We did drop the dose to 720 due to liver issues, but since then the side effects have been easily manageable.   Good luck!

When I was at stage 1 the standard protocol was quarterly chest xrays and blood work to check for liver.  

When I was at stage 1 the standard protocol was quarterly chest xrays and blood work to check for liver.  

When I was at stage 1 the standard protocol was quarterly chest xrays and blood work to check for liver.  

I also wear a medilert  bracelet so that in case of any crisis the Drs. know give steroids.  I found on online that has a usb port.  I anything happens to me, an EMT can immediately have accest to my med history and medication list.  It also has a place for contact info so  they could call any of my doctors if necessary.

I also wear a medilert  bracelet so that in case of any crisis the Drs. know give steroids.  I found on online that has a usb port.  I anything happens to me, an EMT can immediately have accest to my med history and medication list.  It also has a place for contact info so  they could call any of my doctors if necessary.

I also wear a medilert  bracelet so that in case of any crisis the Drs. know give steroids.  I found on online that has a usb port.  I anything happens to me, an EMT can immediately have accest to my med history and medication list.  It also has a place for contact info so  they could call any of my doctors if necessary.