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I am incredibly sad and sorry for your loss. Please know that he is no longer in pain and that he will always be by your side.

Chau

I am incredibly sad and sorry for your loss. Please know that he is no longer in pain and that he will always be by your side.

Chau

I am incredibly sad and sorry for your loss. Please know that he is no longer in pain and that he will always be by your side.

Chau

We did look into leg perfusion for my dad when his in transit mets climb up all over his right calf but we decided against it. From what I know, it is a very complicated procedure with long recovery and only a few places can perform (MDAnderson in Houston). Dad is his 80s so we thought the surgery would be too much. Have you looked into other treatment options like Yervoy or Zeboralf or ckit inhibitor like Gleevac? My dad was also stage 3c and he did Yervoy and has partial response, some of his lesions have gotten better, others have gotten worse but it seems like it’s keeping new ones from going up higher on his leg and organs. I too looked into DPCP for him but his lesions were too many and too thick. I emailed a picture of dads leg to the trial doctor for DPCP and she told me he had too many lesions. You should email her, she is very kind and helpful.

Chau

We did look into leg perfusion for my dad when his in transit mets climb up all over his right calf but we decided against it. From what I know, it is a very complicated procedure with long recovery and only a few places can perform (MDAnderson in Houston). Dad is his 80s so we thought the surgery would be too much. Have you looked into other treatment options like Yervoy or Zeboralf or ckit inhibitor like Gleevac? My dad was also stage 3c and he did Yervoy and has partial response, some of his lesions have gotten better, others have gotten worse but it seems like it’s keeping new ones from going up higher on his leg and organs. I too looked into DPCP for him but his lesions were too many and too thick. I emailed a picture of dads leg to the trial doctor for DPCP and she told me he had too many lesions. You should email her, she is very kind and helpful.

Chau

We did look into leg perfusion for my dad when his in transit mets climb up all over his right calf but we decided against it. From what I know, it is a very complicated procedure with long recovery and only a few places can perform (MDAnderson in Houston). Dad is his 80s so we thought the surgery would be too much. Have you looked into other treatment options like Yervoy or Zeboralf or ckit inhibitor like Gleevac? My dad was also stage 3c and he did Yervoy and has partial response, some of his lesions have gotten better, others have gotten worse but it seems like it’s keeping new ones from going up higher on his leg and organs. I too looked into DPCP for him but his lesions were too many and too thick. I emailed a picture of dads leg to the trial doctor for DPCP and she told me he had too many lesions. You should email her, she is very kind and helpful.

Chau

Hi Nahmi,

I am very sorry to hear about your father's condition and I can certainly relate as our family went through the same thing a few months ago. My dad's last treatment was Yervoy (IPI) and he had alot of complications when he got his last dose in November 2011. He was hospitalized for about 10 days and he was very confused and delirious, wasnt able to speak and didnt recognize us. Yervoy caused some swelling in his brain which caused all these symptoms. Fortunately he recovered and we decided as a family to stop treatment after that.  He has a mixed response to Yervoy and his lesions are still progressing but as fast.  He has many lesions on his leg some which are bleeding continuously. and his leg has to be wrapped. So he is certainly suffering alot and definitely does not have the quality of life that he had before he got sick. It is very hard for me to accept that there is nothing out there that can help him but we also dont want to put him through another drug/ treatment that would make him weaker or cause other problems especially since these drugs are so new and their side effects vary from person to person.

I am sorry I couldnt be much help, I just wanted to let you know that I know what you are going through and there is no right or wrong answer.

Chau 

Hi Nahmi,

I am very sorry to hear about your father's condition and I can certainly relate as our family went through the same thing a few months ago. My dad's last treatment was Yervoy (IPI) and he had alot of complications when he got his last dose in November 2011. He was hospitalized for about 10 days and he was very confused and delirious, wasnt able to speak and didnt recognize us. Yervoy caused some swelling in his brain which caused all these symptoms. Fortunately he recovered and we decided as a family to stop treatment after that.  He has a mixed response to Yervoy and his lesions are still progressing but as fast.  He has many lesions on his leg some which are bleeding continuously. and his leg has to be wrapped. So he is certainly suffering alot and definitely does not have the quality of life that he had before he got sick. It is very hard for me to accept that there is nothing out there that can help him but we also dont want to put him through another drug/ treatment that would make him weaker or cause other problems especially since these drugs are so new and their side effects vary from person to person.

I am sorry I couldnt be much help, I just wanted to let you know that I know what you are going through and there is no right or wrong answer.

Chau 

Hi Nahmi,

I am very sorry to hear about your father's condition and I can certainly relate as our family went through the same thing a few months ago. My dad's last treatment was Yervoy (IPI) and he had alot of complications when he got his last dose in November 2011. He was hospitalized for about 10 days and he was very confused and delirious, wasnt able to speak and didnt recognize us. Yervoy caused some swelling in his brain which caused all these symptoms. Fortunately he recovered and we decided as a family to stop treatment after that.  He has a mixed response to Yervoy and his lesions are still progressing but as fast.  He has many lesions on his leg some which are bleeding continuously. and his leg has to be wrapped. So he is certainly suffering alot and definitely does not have the quality of life that he had before he got sick. It is very hard for me to accept that there is nothing out there that can help him but we also dont want to put him through another drug/ treatment that would make him weaker or cause other problems especially since these drugs are so new and their side effects vary from person to person.

I am sorry I couldnt be much help, I just wanted to let you know that I know what you are going through and there is no right or wrong answer.

Chau 

Harry,

Do these two drugs work on those with the BRAF mutation only?

Chau

Harry,

Do these two drugs work on those with the BRAF mutation only?

Chau

Harry,

Do these two drugs work on those with the BRAF mutation only?

Chau