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Cindy Lou
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Cindy Lou

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      • November 11, 2019 at 12:59 am
      Cindy Lou
      Participant
        Each time I have had lymph nodes swell due to melanoma, they remained swollen and grew in size. They felt firm to the touch and painless. My doctor(s) at the time took the wait and watch approach until the nodes had been swollen for over a month and had grown in size. Hopefully, your nodes are just resisting an infection. Talk to your doctor about your concern so he/ she can keep a watchful eye on the situation. Best wishes to you.
        • October 25, 2019 at 2:24 am
        Cindy Lou
        Participant
          Ahh, the itchy rash. I still have mine and i have not had immuno since June. Try the Cerave cream in the jar with red writing on it. They have it at walgreens or target. Its pricey but it gives me a lot of relief. Great to hear from you!,
          • October 9, 2019 at 10:16 am
          Cindy Lou
          Participant
            hi. i am now being seen at Winship Cancer Center at Emory University Hospital in Atlanta, GA. i have been very pleased with their care. they have mel specialists and they are a proton therapy center. when you call them, they will match your husband with the correct specialist. here is the link for them: winshipcancer.emory.edu Hang in there! Keep up the fight!
            • November 1, 2019 at 4:42 am
            Cindy Lou
            Participant
              Hi, Mike! I feel kinda down & out too. It’s a normal response in the melanoma world we live in. Maybe watch some Ren & Stimpy to cheer up! Or Bob’s Burgers ! It makes me laugh out loud! I also really like the Jim Gaffigan comedy specials on netfix or prime ( i forget which). Maybe I will follow my own advice…hmmm. The docs said a couple times the pancreatitis could be from cancer which they say would be rare but the procedure to look closer at the pancreas can’t be done til it heals some. Anyway, I start radiation to my face and neck next week. More mets found in neck on the PET I had Oct 16. Then the taf/ mek combo starts in January. You have been through so many tough treatments. I know you can handle the monoclonal therapy. Keep your head up ( YOU are your best advocate), keep your humor ( laughter really is the best medicine), keep your heart out (sharing with us on the forum). You are an inspiration to me and many others on the forum! Hang in there, friend!
              • October 31, 2019 at 10:27 pm
              Cindy Lou
              Participant
                Thanks for your reply. It is great that your sister’s mets are gone now. I start radiation next week and I start the taf/mek in January.
                • October 29, 2019 at 12:56 am
                Cindy Lou
                Participant
                  Your experience with these drugs makes me feel better about taking them. The information on the internet about the side effects is pretty scary. Thanks! Best wishes for continued success.
                  • October 29, 2019 at 12:53 am
                  Cindy Lou
                  Participant
                    Wow. He has been through a LOT! Thanks for the reply. Wishing for continued NED for your husband!
                    • October 29, 2019 at 12:50 am
                    Cindy Lou
                    Participant
                      Great info! Thanks!
                      • October 29, 2019 at 12:48 am
                      Cindy Lou
                      Participant
                        The primary was negative. The one removed from under my jawbone was positive. But enough bout me, how are you, Melanoma Mike?
                        • October 27, 2019 at 4:08 pm
                        Cindy Lou
                        Participant
                          It does sound scary. Thanks for the reassurance. Best wishes for those mets to go away forever!
                          • October 27, 2019 at 4:20 am
                          Cindy Lou
                          Participant
                            It helps to know what to expect. I hope you are doing well now. Thanks for the reply.
                            • October 27, 2019 at 4:17 am
                            Cindy Lou
                            Participant
                              I’m alsothinking that maybe the first analysis was incorrect. Thanks for your reply.
                              • October 26, 2019 at 12:58 am
                              Cindy Lou
                              Participant
                                Wow. How kind of you to reply during what I know must be a very difficult time for you. Best wishes for a quick recovery.
                                • October 25, 2019 at 10:56 am
                                Cindy Lou
                                Participant
                                  Thank you for the info! I will certainly try these things. Best wishes to you and your husband.
                                  • September 25, 2019 at 2:16 am
                                  Cindy Lou
                                  Participant
                                    Your posts always make me smile! Thanks for that!!
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