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Has anyone had distant metastasis to pancreas?
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Has anyone had distant metastasis to pancreas?

› Forums › General Melanoma Community › Has anyone had distant metastasis to pancreas?

  • Post
    • October 31, 2019 at 2:18 pm
    Cindy Lou
    Participant
      I am currently in the hospital being treated for pancreatitis. The docs say it is unknown origin because the 2 main causes are drinking alcohol ( i dont drink) and gallstones ( i dont have a gallbladder). They say gallstones can still form without a gall bladder but they didnt see any on ct scan. The gastro doc wants to do an endoscopy after the pancreas has healed to see if there are any lesions. When I had PET scan two weeks ago, inflammation of pancreas showed up. That was a week before the intense pain started. I understand that metastasis to the pancreas is rare but it seems weird that I have this now.
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        • October 31, 2019 at 3:58 pm
        sister of patient
        Participant
          Hi Cindy Lou – I’m so sorry to learn of all you are dealing with now and I wish you the best possible successes with your treatment!! I suspect there are many on this board who have dealt with mets to the pancreas – I actually don’t think it is that uncommon – and, as we know, mel is not discerning as to where it travels. My sister had so many mets from her pancreas and spleen that the two were nearly “fused” together with them. But they’re totally gone now and both organs clear because treatments like taf/mek aren’t discerning either – they’ll hit everywhere they need to!! You take care – we’re all pulling for you!!!!

          Barb

            • October 31, 2019 at 10:27 pm
            Cindy Lou
            Participant
              Thanks for your reply. It is great that your sister’s mets are gone now. I start radiation next week and I start the taf/mek in January.
            • November 1, 2019 at 2:23 am
            MelanomaMike
            Participant
              Hi Cindy! Wth? I hope its nothing!! I personally havnt had any mets light up in my pancreas so, cant really help you out on that, i hope its not anything Cindy! Maybe just a cyst? Cysts can pop up anywhere ya know…hopefully thats all it is..please keep us posted, im doing ok, just REAL tired & maybe a lil depression, all these immunal therapies iv done and now this new Monoclonal therapies im doing (incmga00012 & Epacadostat) really settles weird in my system/head, i certainly dont feel like myself before i started, i just hope it works, my next CT scan is late November so, will see….
                • November 1, 2019 at 4:42 am
                Cindy Lou
                Participant
                  Hi, Mike! I feel kinda down & out too. It’s a normal response in the melanoma world we live in. Maybe watch some Ren & Stimpy to cheer up! Or Bob’s Burgers ! It makes me laugh out loud! I also really like the Jim Gaffigan comedy specials on netfix or prime ( i forget which). Maybe I will follow my own advice…hmmm. The docs said a couple times the pancreatitis could be from cancer which they say would be rare but the procedure to look closer at the pancreas can’t be done til it heals some. Anyway, I start radiation to my face and neck next week. More mets found in neck on the PET I had Oct 16. Then the taf/ mek combo starts in January. You have been through so many tough treatments. I know you can handle the monoclonal therapy. Keep your head up ( YOU are your best advocate), keep your humor ( laughter really is the best medicine), keep your heart out (sharing with us on the forum). You are an inspiration to me and many others on the forum! Hang in there, friend!
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