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Butterfly74

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      Butterfly74
      Participant
        Hi Mandy
        Thinking of you and wishing you all the best with your referral. I know it’s hard not to worry and is an anxious time, take care.
        Victoria xx
        Butterfly74
        Participant
          Hi Mandy
          You were so supportive to me with my anxiety when I first posted on here not long ago. I was meaning to email you to keep in contact and I will. Just wanted to say all the best for your ultrasound and positive thoughts to you.
          Victoria x
          Butterfly74
          Participant
            Hi Fairystar, thank you for your reply. It’s so overwhelming isn’t it? I already suffer from anxiety so this has really been difficult. I wish I had found it earlier, are those statistics based on your depth of .3mm as mine is thicker at .7mm so think I am more at risk. I will see the dermatologist next week so will talk thru it more with him. I wake up and fall asleep thinking about it and the fear is quite consuming.
            Butterfly74
            Participant
              Hi Fairystar, thank you for your reply. It’s so overwhelming isn’t it? I already suffer from anxiety so this has really been difficult. I wish I had found it earlier, are those statistics based on your depth of .3mm as mine is thicker at .7mm so think I am more at risk. I will see the dermatologist next week so will talk thru it more with him. I wake up and fall asleep thinking about it and the fear is quite consuming.
              Butterfly74
              Participant
                Great thank you LRS88. Is it best to message via here or email?
                I had my WLE last week, still a bit sore. I have found a dermatologist and have an appointment with him next week. Still not sleeping that well. How are you doing?
                Victoria
                Butterfly74
                Participant
                  Thank you. How are you doing now and what treatment did you have to have? It must have been really scary especially nearly five years out to have found the lump, this is yet another case of it recuring in patients with Stage one. I read so many, it’s scary. I know I need to stop obsessing, it is all so overwhelming.
                  Butterfly74
                  Participant
                    Thanks Mandy. I have found a dermatologist today who has alot of experience with melanoma and I have made an appointment with him for next week. I feel a bit better knowing I have someone I can go to for followups now although haven’t met him yet so will see how it goes. It’s just that waiting to see if it is going to spread that is going to be so difficult, the fear hanging over me.
                    Thanks for your email address, I will contact you on there to stay in touch.
                    Victoria x
                    Butterfly74
                    Participant
                      LRS88
                      Would it be possible to stay in touch with you for support?
                      Butterfly74
                      Participant
                        Thank you
                        Butterfly74
                        Participant
                          Thanks MLD, email would be great as there were a couple of others I wanted to stay in contact with but they aren’t posting. I’m in NZ and don’t feel they as proactive with me compared to most on this site from US. The people here seem to have melanoma specialists, oncologists etc, I asked my doctor about a oncologist but she said I don’t need one. It all makes me so anxious, I’m trying to find a good dermatologist at the moment. I am too on anxiety and anti depressants which I was already on prior to diagnosis. Another restless sleep last night, my life has changed for ever and I struggled to cope with it all.
                          Butterfly74
                          Participant
                            Hi Julie,
                            Thank you for your words. That is a shame about Janner as she was a lovely support and so nice of her to help everyone. I’m hoping with time this will get easier for me and I won’t think the worst, it’s so scary though. I need to work through my anxiety.
                            All the best.
                            Butterfly74
                            Participant
                              Hi MLD
                              Thank you for replying, yes would love to be able to keep in contact with you as feel alone and nice to talk with others who understand. It’s all very overwhelming, my doctor doesn’t seem very concerned, I’m not sure why and was happy to see me every six months but I have asked for every three months as that is what I read is normal. I’m also going to see a dermatologist regularly as well. Is there anything else I should be doing, like chest X-ray and scans regularly? You seem to be coping really well, I hope with time it gets easier for me.
                              Thanks.
                              Butterfly74
                              Participant
                                Thank you for replying, I have children too and the fear and worry I have is so overwhelming. My doctor says it’s been found early and I don’t think she seems to be too concerned which I actually find concerning. I read a lot about people finding it ‘early’, I’m not even sure what that is anymore, and then they are stage 3 and 4. I admire your outlook on it all and hope with time I can move forward and not be so scared. Best wishes to you.
                                Butterfly74
                                Participant
                                  Thank you for replying, it sounds like you are doing very well now. I am hoping with time that things will get easier for me and I won’t be worrying so much.
                                  All the best to you.
                                  Butterfly74
                                  Participant
                                    Thank you, I see from your profile you had it on your back also and was Stage one, not sure if a or b? Can I ask what your breslow depth was?
                                    Thanks
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