Melanoma Research Foundation | Bubbles | Activity https://forum.melanoma.org/user/bubbles/activity/ Activity feed for Bubbles. Thu, 16 Apr 2026 22:11:59 -0400 https://buddypress.org/?v= en-US 30 hourly 2 2638b73fa77c2413eebaaecd1d9050c6 Bubbles replied to the topic Leptomeningeal Metastases in Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/leptomeningeal-metastases-in-melanoma/#post-280451 Mon, 02 Sep 2024 14:38:36 -0400 Oh, Roberto. I am so sorry. Here is a link to all that I have on leptomeningeal disease on my blog:

Leptomeningeal disease

Most is a bit old (mostly because, sadly, not much has changed). There is one report from 2021.

You are correct. Melanoma sucks. LMD sucks even more. IT therapy seems to be the most promising. Last I knew, MDA was…Read more

]]> e3ac0b81cb8bc189dc784b273cf2cb9d Bubbles replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280375 Tue, 16 Jul 2024 14:19:46 -0400 I am glad you will be seeking additional consultation for your wife. She is very lucky to have you as her advocate. I would not be here had my husband not been sitting staunchly in my corner. Advocacy like yours makes all the difference.

c

]]> 0c560cba75c1271d8827423546f1969f Bubbles replied to the topic Seeking advice for metastatic melanoma treatments in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/seeking-advice-for-metastatic-melanoma-treatments/#post-280371 Mon, 15 Jul 2024 17:56:41 -0400 Hi Brian,

I am so sorry for what you and your wife are dealing with. Her story is incredibly reminiscent of mine, not many of us are lucky enough to experience tonsillar melanoma, but I was one.

Am I correct in understanding that your wife has not had any immunotherapy for her melanoma yet? If so, I am very confused. There is absolutely no…Read more

]]> 2cfeaf27a4d4be8ddc174ac128da851e Bubbles replied to the topic Metastatic melanoma stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/metastatic-melanoma-stage-4-2/#post-280179 Fri, 19 Apr 2024 17:05:01 -0400 Wonderful news, Luv!!!! Hang tough! c

]]> 5347e6d02595e6271fa9fc50d99446c4 Bubbles replied to the topic 6 years cancer free, stage IIIA in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/6-years-cancer-free-stage-iiia/#post-280130 Sun, 24 Mar 2024 12:21:32 -0400 Big congrats, Ch!!! Thanks for sharing. Enjoy!!! celeste

]]> ffc3b1ef283b9f923bfad9fd0a3347b7 Bubbles replied to the topic A little encouragement from a 7 year stage 4, TIL, Rad, Chemo, Immuno, survivor. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/a-little-encouragement-from-a-7-year-stage-4-til-rad-chemo-immuno-survivor/#post-280129 Sun, 24 Mar 2024 12:19:34 -0400 Excellent words of advice, Billy. So glad to hear that you are doing so well!!! Enjoy! celeste

]]> a7fe316421449075c0858d1b47b167e0 Bubbles replied to the topic Rash after immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/rash-after-immunotherapy/#post-279616 Fri, 08 Dec 2023 00:00:32 -0500 I had lots of rash and skin issues during my 2 1/2 years on Nivo. After going off nivo, the rash gradually faded, though sometimes rearing its head in fits and starts. However, with my last dose in 2013, I do not have any issues with itchy rashes from that any longer, although the vitiligo has remained. So….once off treatment you will find…Read more

]]> 63ddb1a1919c3c1463798cf48b501103 Bubbles replied to the topic Metastatic melanoma stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/metastatic-melanoma-stage-4-2/#post-279580 Fri, 01 Dec 2023 13:21:11 -0500 These days most local oncologists are FINALLY well versed in administering and watching appropriately for (and treating if need be) side effects related to immunotherapy. This was not always the case! Currently, for very straight forward melanoma cases, a second opinion with an expert is not required, though never a bad idea. However, treatment…Read more

]]> 03a7523084da7744cf598000f831cde7 Bubbles replied to the topic Metastatic melanoma stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/metastatic-melanoma-stage-4-2/#post-279565 Thu, 30 Nov 2023 02:18:56 -0500 Hi L,

Sorry for what you are dealing with. Sadly, melanoma can do anything it likes. However, it is not the death sentence it once was. Especially since it seems you are dealing with a localized lesion that was found relatively early. You may find the primer I put together helpful in starting your understanding and formulating questions about…Read more

]]> 8b0e93f619f74db9dc12e054940871b2 Bubbles replied to the topic Immunotherapy + T-VEC in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-t-vec/#post-279437 Sat, 28 Oct 2023 02:22:49 -0400 Your local onc really needs to get on top of the current treatments for melanoma if they are going to treat melanoma patients! Here is a link that says a great deal – with more within:
Intratumoral or Intralesional therapy for melanoma – again. Yep, AGAIN!!! ASCO 2021, here we go!

Hope you can attain some good options at Emory. c

]]> 99a4934df7d721e386f537bf06a88d85 Bubbles replied to the topic Recurrence- help please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-help-please/#post-279390 Thu, 19 Oct 2023 00:01:09 -0400 Yes. Immunotherapy can be used after progression even though you were treated with immunotherapy already.

Here are many articles that discuss that issue: Immunotherapy after Progression

Local recurrences are much better than melanoma in lots of parts of your body. I would think that your husband would need evaluation of his brain and body at…Read more

]]> 33c6c7a739c64b29e54abecc2abe817c Bubbles replied to the topic Recurrence- help please in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-help-please/#post-279388 Wed, 18 Oct 2023 13:52:59 -0400 Sorry you are dealing with this.

But there are options. Immunotherapy again. If NED in all other parts of his body, limb perfusion therapy might be an option if you are talking about a local recurrence in an extremity. Possible intralesional therapy, where the lesion is injected directly. And…if none of those seem wise, then sometimes…Read more

]]> d91dd9c56c1f1a432d8dbc23a7b5bda9 Bubbles replied to the topic Ipi/Nivo questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ipi-nivo-questions/#post-279366 Sat, 14 Oct 2023 15:41:43 -0400 Hi MB,

Sorry you and your wife are dealing with all this. Unfortunately, the fatigue caused by immunotherapy is often significant. While immunotherapy is slower than some processes to work (Docs are warned by immunotherapy experts to – “Be patient with the patient!”)it can also cause something referred to as pseudoprogression – where the tumors…Read more

]]> ae64e38a96d8589ea32da59e36557ce5 Bubbles replied to the topic Is it more common in people of color to have melanoma? in the forum Caregiver Community https://forum.melanoma.org/forums/topic/is-it-more-common-in-people-of-color-to-have-melanoma/#post-279351 Wed, 11 Oct 2023 23:50:06 -0400 Perhaps the post I wrote in 2013 may interest you, Carmelo:

Melanoma…a disease without discrimination!!!

SUNDAY, FEBRUARY 10, 2013
Melanoma…a disease without discrimination!!!

Just a few days ago, Bob Marley, Jamaican singer, songwriter and musician, would have had his 68th birthday…had he not died from metastatic melanoma at the age of…Read more

]]> 0436a5e0c0c098c39a83716010f8f0ae Bubbles replied to the topic Some more necrosis questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/some-more-necrosis-questions/#post-279307 Wed, 04 Oct 2023 19:32:01 -0400 Oh, Judi!! Congrats on getting your wheels back! What a struggle. Glad you’re here. Hang in there! celeste

]]> 39068fc772e89f0ff16c7d41c985aed1 Bubbles replied to the topic For Roberto in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/for-roberto/#post-279306 Wed, 04 Oct 2023 15:59:02 -0400 So very sorry for what you and Mariana are dealing with, Roberto. Fervently hoping for relief and improvement.
Yours, c

]]> 79b3bd1a959cf93d156ee66999508c8a Bubbles replied to the topic For Roberto in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/for-roberto/#post-279284 Thu, 28 Sep 2023 16:54:17 -0400 So sorry, Roberto. I know seeing her have seizures had to be very difficult for you both. As far as immunotherapy and seizures in particular, they are not terribly common with immunotherapy. However, I am not particularly familiar with the specific side effects specific to the meds she is on. Still, we have long known that immunotherapy can…Read more

]]> caad8c720a8aea9471dbe076f768713a Bubbles replied to the topic New.. Trying to understand in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-trying-to-understand/#post-279249 Sat, 23 Sep 2023 18:43:13 -0400 Sorry for what you are going through with the path report. I had the same problem when I was first diagnosed in 2003. The pathologists who reviewed my biopsy could not agree on the dx. Can’t even remember the alternatives. One was adamant that it was melanoma (he was right) 2 others had differing views. We sent my slides to expert at Harvard…Read more

]]> a062188e6aa6b6372fd615f2e92a7379 Bubbles started the topic For Roberto in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/for-roberto/ Wed, 20 Sep 2023 00:44:03 -0400 Saw your post on a thread below which has somehow been marked for spam and cannot be commented on at this time. Ironic given all the spam that sits on this forum, but perhaps it was swiped as such inadvertently by one of the posters. At any rate – you and your wife are more than survivors! I cannot begin to imagine all that she has already…Read more

]]> 61ba72cf29932eb4e30331484e15c0aa Bubbles replied to the topic Stage IV need help in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-iv-need-help/#post-279223 Wed, 20 Sep 2023 00:22:45 -0400 I am sorry you and your wife are dealing with this. It is known that the BRAF/MEK inhibitors often have a limited time of effectiveness. The goal with their use is often to decrease the tumor burden and start immunotherapy (most effective is the ipi/nivo combo) before tumor “work around” develops. So, yes. I agree that your wife should start…Read more

]]> 6f586a58e5ef6a17164a39d1df57bbb8 Bubbles replied to the topic New.. Trying to understand in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-trying-to-understand/#post-279190 Tue, 12 Sep 2023 00:05:54 -0400 Melanoma anywhere is melanoma. Breast, brain, skin, intestines, bone, lung, etc. For example – my melanoma in my lung was melanoma. Not lung cancer. The primer I included a link to goes over current effective treatments for melanoma. Old school chemo (like the first dose your sister got) does nothing to melanoma. I don’t really understand…Read more

]]> 51a4e76d65a2cefb836221338469c30d Bubbles replied to the topic Methotrexate in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/methotrexate/#post-279187 Mon, 11 Sep 2023 16:57:11 -0400 You can check out the links I put up for the poster, Rowell. They cover a lot of the same points.

c

]]> c0fec084e15d9460018b61ef1aa66919 Bubbles replied to the topic Melanoma and Multiple Sclerosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-and-multiple-sclerosis/#post-279186 Mon, 11 Sep 2023 16:56:02 -0400 PS

Two other links you might be interested in:

What to do about immunotherapy if you – take steroids or infliximab for side effects? Have a pre-existing autoimmune disease?????

Tolerating immunotherapy for melanoma DESPITE prior diagnosis with rheumatologic disease

c

]]> 0f3ce8e7ccbfb0d0be859e76ddd846e0 Bubbles replied to the topic Methotrexate in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/methotrexate/#post-279185 Mon, 11 Sep 2023 16:53:55 -0400 Hey Scooby,

Sorry for the delay in replying. As you mentioned in your note to me, YES! Jubes is one of many who had to deal with extreme joint pain and arthritis and ended up requiring inflixamab to control her arthritic pain but continued to do well in regard to her melanoma. Yes, drugs like methotrexate, inflixamab, prednisone, etc – do tamp…Read more

]]> 9cf7ff83d0a123a773911b8ab6f7879f Bubbles replied to the topic Melanoma and Multiple Sclerosis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-and-multiple-sclerosis/#post-279184 Mon, 11 Sep 2023 16:41:55 -0400 Hi Rowell,
Sorry you are dealing with all of this. Clearly, immunotherapy can impact all of us with a variety of side effects – they often include a rash, joint pain, fatigue, etc. However, over time researchers have found (and several on this forum have lived experience) that those with preexisting autoimmune diseases can tolerate immunotherapy…Read more

]]> 4a5f266ab1d481b49dccb9d8e2851795 Bubbles replied to the topic New.. Trying to understand in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-trying-to-understand/#post-279183 Mon, 11 Sep 2023 16:36:28 -0400 I am sorry that you and your sister are dealing with this. I find the report confusing as well, as it doesn’t really comport with a diagnosis of melanoma. Further, Adriamycin and Cytoxan are not appropriate treatments for melanoma though they may be for breast cancer. That said, there are plenty of cases of melanoma in breasts and elsewhere…Read more

]]> 8730ee322ffe1c7622f34c2f0585d333 Bubbles replied to the topic MPIP friends in Maui in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mpip-friends-in-mauaimy/#post-279031 Sat, 12 Aug 2023 14:26:36 -0400 Good to hear from you, Bill!! Sorry that it is in this time of crisis and difficulty in Maui. And yes. I remember. It has been a tangled path for many of us, hasn’t it? Glad to hear you are continuing to celebrate those birthdays and reaching out to those in need as ever.

Wishing you, and our Maui friends, my best. Celeste

]]> b13506c4cf2b93b9c0ca66118fdfb3d1 Bubbles replied to the topic Stage 3 Treatment Options in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stage-3-treatment-options/#post-278834 Fri, 30 Jun 2023 13:57:02 -0400 Hey Ann,

So sorry you and your dad are dealing with this. Yes! Thankfully things have changed a great deal in the melanoma landscape since 2011. Even though melanoma still sucks great big hairy green wizard balls!!!

I think Aim At Melanoma does a great job breaking down this stuff. Perhaps this will help: Understanding melanoma tx – Stage…Read more

]]> d638be7eeba29a577ffcf5553450faf5 Bubbles replied to the topic Any success taking Ippi and Nivo the 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/any-success-taking-ippi-and-nivo-the-2nd-time/#post-278833 Fri, 30 Jun 2023 13:47:04 -0400 Hi Lucas,

Perhaps you will find this more particular – was hoping the links within the post would be easy to follow – but here you go:
Ipilimumab or ipi/nivo combo after recurrence in patients previously treated with immunotherapy ~

Specifically, the second article reviewed in the post. There are many reports that indicate using the ipi/nivo…Read more

]]> 7bf6141e3f8393cb79b15be26e5393ab Bubbles replied to the topic Melanoma treatments and quality of life in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-treatments-and-quality-of-life/#post-278768 Tue, 20 Jun 2023 12:59:17 -0400 Moffit is where I went for my trial though Dr. Weber is no longer there. Hopefully you will get the answers you need. It sounds as though you are Stage III much like I was when I started my journey in 2003 (though they will give you more detailed and appropriate information I’m sure). Immunotherapy is now approved for folks at that stage. Some…Read more

]]> cf6574533b65e6fdc006bb560f36e7c2 Bubbles replied to the topic Melanoma treatments and quality of life in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-treatments-and-quality-of-life/#post-278762 Mon, 19 Jun 2023 22:54:25 -0400 Hi Mitchell,
Not entirely sure of your exact point. The last article stated that the side effect in question was very rare and usually fairly easily managed. The first is from 2016 and we’ve learned a great deal more about immunotherapy – how to use it, how to recognize and manage side effects, and how to monitor patients much better since then.…Read more

]]> d771caf8df7880573fd7f1b60393985a Bubbles replied to the topic Any success taking Ippi and Nivo the 2nd time? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/any-success-taking-ippi-and-nivo-the-2nd-time/#post-278737 Wed, 14 Jun 2023 16:33:16 -0400 Sorry you are dealing with this, Alydar. I have been lucky and not needed re-treatment. However, I have covered a lot of reports and data about using immunotherapy upon progression after having been treated with immunotherapy. Here is a link that covers that issue with many additional links within: immunotherapy after progression

Bottom line…Read more

]]> 2308e795c8906f02052980efdd5d9cd0 Bubbles replied to the topic Brain mets success stories in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-success-stories/#post-278497 Sun, 09 Apr 2023 23:16:44 -0400 There are very few studies that actually show that steroids while on immunotherapy diminish response. In fact, most studies conclude that folks on steroids can attain and maintain good responses while on immunotherapy AND steroids. Further, apart from brain met folks with the necessity for steroids – immunotherapy itself can cause side effects…Read more

]]> df0a96769957b307c695e2acc13687a7 Bubbles replied to the topic Brain mets success stories in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-success-stories/#post-278494 Sat, 08 Apr 2023 18:40:39 -0400 Hi Ashley,

Sadly this site is not as busy as it was. Though, perhaps, that is a good thing as there are ever so many more effective melanoma treatments than there once were – meaning any time before 2011!! At any rate, there are many brain met peeps here – still alive and kicking. I am one. Stage IIIB with cutaneous lesion to my back and…Read more

]]> 9541e437468d0584d46e320d82ba93a3 Bubbles replied to the topic 18 primaries and STILL counting in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/18-primaries-and-still-counting/#post-278437 Sat, 25 Mar 2023 05:36:03 -0400 Oh, Bob! Sorry! You and Janner – a beloved and valued member of this forum for many years – until – well…you may remember – ran her off – are quite the pair. I believe her count got up to 20, though I could be wrong. Hoping this is just a fluke and not a trend for you! (Do you really have twelve more to deal with??? I hope not!!!)…Read more

]]> 1196c96819d8875fb8cfc1545bbf3b25 Bubbles replied to the topic Some more necrosis questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/some-more-necrosis-questions/#post-278402 Mon, 20 Mar 2023 16:03:08 -0400 Oh, Judi! Just catching up on your most recent ordeal! So sorry you have had to deal with all this. Feels weird to say, “Oh, glad it was likely all just due to COVID!”….but there you go. I know all the drugs must make you feel yucky! Hang in there. Hope all the yuck resolves soon! les

]]> 7e42934166b015e5b79d636220946245 Bubbles replied to the topic TIL Trial for Brain Mets - FYI and Q&A in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/til-trial-for-brain-mets-fyi-and-qa/#post-278400 Mon, 20 Mar 2023 15:48:34 -0400 So glad for all the improvements and good news!!! Hang in there! Looking forward to another good report in 6 weeks! les

]]> d25e2850dceb8be5f508654080e62b81 Bubbles replied to the topic Could this be lung metastasis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/could-this-be-lung-metastasis/#post-278352 Fri, 03 Mar 2023 14:19:18 -0500 Hey Gerry,

Thanks for your kind words. So glad things resolved spontaneously!!! Hang in there and keep on keeping on!

Yours, c

]]> cbc2071c3748d3700bb0084b6e2e3f85 Bubbles replied to the topic TIL Trial for Brain Mets - FYI and Q&A in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/til-trial-for-brain-mets-fyi-and-qa/#post-278258 Thu, 16 Feb 2023 14:46:46 -0500 Thanks for sharing your story and details as you have navigated this incredibly challenging process. Though MPIP doesn’t have the traffic it once did, I know your documentation is helping many now and in the future. Hang in there. You are rock’n this out!!!! Fingers crossed that all coming scans demonstrate the best possible outcomes!!!
yours, celeste

]]> 7f274c3ef1a2da32aa60b37979325674 Bubbles replied to the topic Anxiety is ongoing in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anxiety-is-ongoing/#post-278138 Sat, 21 Jan 2023 19:06:10 -0500 I know ANYTHING showing up on a scan is worrying. However, like your onc relayed – findings described as having a ground glass appearance is almost always pneumonitis (irritation in the lungs). It can be caused by many things including viruses – but immunotherapy (esp after a year!!) is a common culprit!

celeste

]]> f80b7e1fda85ed85d8e75b2588484f11 Bubbles replied to the topic TIL Trial for Brain Mets - FYI and Q&A in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/til-trial-for-brain-mets-fyi-and-qa/#post-278127 Fri, 20 Jan 2023 19:40:17 -0500 Thanks for sharing, Jeff. IL-2 is not for the faint of heart! Wishing you my very best with fingers crossed that all things go as well as possible with great results!!

Celeste

]]> 489349f0f6173e76d9c5ca2c582143f1 Bubbles replied to the topic Could this be lung metastasis in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/could-this-be-lung-metastasis/#post-277819 Fri, 25 Nov 2022 19:14:30 -0500 Hi Gerry,

As you know, melanoma is of the devil and can do most anything… However, “ground glass” appearance is a term often used by radiologists to describe pneumonitis – which is literally inflammation of the lungs. It is not a term used to categorize tumors. Pneumonitis and wheeze/dry cough are fairly common side effects of immunotherapy.…Read more

]]> 63838efac1c4843b8bafb23ca77216f1 Bubbles replied to the topic immunotherapy affected liver-any advise? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-affected-liver-any-advise/#post-277588 Mon, 24 Oct 2022 14:04:15 -0400 If your docs are not very familiar with administering immunotherapy, they are probably not well versed in dealing with the side effects it can cause. Here is a link to an algorithm (created by international melanoma experts who have dealt with immunotherapy for a long time) for treating side effects based on the problem being caused:
Excellent…Read more

]]> afa6c638e0e9a91d41df27f0802d5345 Bubbles replied to the topic immunotherapy affected liver-any advise? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-affected-liver-any-advise/#post-277576 Sat, 22 Oct 2022 11:46:30 -0400 Hey Leon,

You marked your reply as private. If that was your intention, that’s fine. However, if you wanted me or others to see it – I’m not sure how to do that.

c

]]> b67b0954c39ca538edfca6740a0ca9c6 Bubbles replied to the topic immunotherapy affected liver-any advise? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/immunotherapy-affected-liver-any-advise/#post-277565 Fri, 21 Oct 2022 23:42:56 -0400 Ed makes a good point. I would add that, while life saving, immunotherapy does sometimes have its price as well. For almost all the serious insults it can inflict, treatment often involves – prednisone or other immunosuppressive drugs like infliximab or the one you have been prescribed. AND – TIME!!!! It is hard to be patient in life generally…Read more

]]> bf0418c138a2a610d1e1e5d5d776470d Bubbles replied to the topic Lingering Pains a year after Melanoma 2A surgery in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lingering-pains-a-year-after-melanoma-2a-surgery/#post-277564 Fri, 21 Oct 2022 23:26:57 -0400 Hi Jessie,

Sorry you have the need to be here, but welcome. You don’t mention the dimensions of your lesion. This report may interest you: From 2017 – SLN biopsy. General guidelines.
Bottom line – In 2017 this was developed: Sentinel Lymph Node Biopsy and Management of Regional Lymph Nodes in Melanoma: American Society of Clinical Oncology…Read more

]]> 877881f424cbed1cc1313971c8cf7eb5 Bubbles replied to the topic Likelihood of new melanoma after immunotherapy? in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/likelihood-of-new-melanoma-after-immunotherapy/#post-277493 Fri, 14 Oct 2022 23:24:32 -0400 Hey Tkoss. Though, I can understand in a case of possible recurrence to your nodes this may not seem very important – but the research report was only about the development of additional cutaneous lesions – not progression to additional nodes. Sorry you are facing your current difficulties.

c

]]> 68e94f61774cb2abeff7a693673d5127 Bubbles replied to the topic 6 years NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/6-years-ned-4/#post-277422 Fri, 07 Oct 2022 13:26:23 -0400 Congrats, Eileen! Enjoy. celeste

]]> 840ccaf6aef37bde5d8ac0b11989a90d Bubbles replied to the topic Is the graft healing OK? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/is-the-graft-healing-ok/#post-277421 Fri, 07 Oct 2022 13:25:28 -0400 Hi Bay,

Wanted to respond so you don’t think we are all ignoring you. So sorry for what you and your dad are going through. Having that surgery and the insult it gives to ambulation is difficult for anyone!! However, there is little any of us can say about a picture on a forum. If you have any questions or concern about your dad’s healing…Read more

]]> 8b33e0523e19ed4f974c1a16ee74e22d Bubbles replied to the topic Likelihood of new melanoma after immunotherapy? in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/likelihood-of-new-melanoma-after-immunotherapy/#post-277321 Thu, 29 Sep 2022 16:29:12 -0400 One other point of note – given the time studies require – especially with a 5 year follow-up involved – and the only recent approval of immunotherapy as adjuvant treatment for anyone – you can be assured that (though the abstract does not explicitly state) these patients were likely Stage IV. The recurrence rate for folks who are not at an…Read more

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