benp

I've had a big (about 4 inch) graft on the top of my head for about three years now. It is very obvious, but you get used to it! I never think about it now at all really.

I've had a big (about 4 inch) graft on the top of my head for about three years now. It is very obvious, but you get used to it! I never think about it now at all really.

I've had a big (about 4 inch) graft on the top of my head for about three years now. It is very obvious, but you get used to it! I never think about it now at all really.

Hi Nick, 

I'm sorry to hear about your father. How many brain mets does he have? If less than 8 or so (I had 10), then some form of targeted radiation (Gamma Knife, stereotactic radiosurgery, Cyberknife etc.) is far more effective for long term control of the individual brain tumors than WBR. I would have thought targeted radiation combined with something more systemic like a braf inhibitor if he is braf positive, or some form immonotherapy would be a far better option that just to "wait and see".

Just my opinion though.

Good luck,

Ben.

Hi Nick, 

I'm sorry to hear about your father. How many brain mets does he have? If less than 8 or so (I had 10), then some form of targeted radiation (Gamma Knife, stereotactic radiosurgery, Cyberknife etc.) is far more effective for long term control of the individual brain tumors than WBR. I would have thought targeted radiation combined with something more systemic like a braf inhibitor if he is braf positive, or some form immonotherapy would be a far better option that just to "wait and see".

Just my opinion though.

Good luck,

Ben.

Hi Nick, 

I'm sorry to hear about your father. How many brain mets does he have? If less than 8 or so (I had 10), then some form of targeted radiation (Gamma Knife, stereotactic radiosurgery, Cyberknife etc.) is far more effective for long term control of the individual brain tumors than WBR. I would have thought targeted radiation combined with something more systemic like a braf inhibitor if he is braf positive, or some form immonotherapy would be a far better option that just to "wait and see".

Just my opinion though.

Good luck,

Ben.

You can add my anecdotal report to the list – I failed Ipi, just had my week 39 infusion of MK-3475, all looking pretty good. I had initial regression, and now stable disease.

You can add my anecdotal report to the list – I failed Ipi, just had my week 39 infusion of MK-3475, all looking pretty good. I had initial regression, and now stable disease.

You can add my anecdotal report to the list – I failed Ipi, just had my week 39 infusion of MK-3475, all looking pretty good. I had initial regression, and now stable disease.

Happy to hear that Lisa – I know how hard it is to get on MK3475 in Australia – fortunately I'm part of a trial at Westmead (Sydney). Just had 24 week scans, all looking relatively good!

Ben.

Happy to hear that Lisa – I know how hard it is to get on MK3475 in Australia – fortunately I'm part of a trial at Westmead (Sydney). Just had 24 week scans, all looking relatively good!

Ben.

Happy to hear that Lisa – I know how hard it is to get on MK3475 in Australia – fortunately I'm part of a trial at Westmead (Sydney). Just had 24 week scans, all looking relatively good!

Ben.

Hi Brendan. I've been on PD1 for about 6 months, and have worked full time throughout. Occasionally get a little fatigued, but feel pretty "normal". I know everyone's different, but I have found it very empowering that the disease doesn't stop me from working.

Ben.

Hi Brendan. I've been on PD1 for about 6 months, and have worked full time throughout. Occasionally get a little fatigued, but feel pretty "normal". I know everyone's different, but I have found it very empowering that the disease doesn't stop me from working.

Ben.

Hi Brendan. I've been on PD1 for about 6 months, and have worked full time throughout. Occasionally get a little fatigued, but feel pretty "normal". I know everyone's different, but I have found it very empowering that the disease doesn't stop me from working.

Ben.