awillett1991
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awillett1991

Forum Replies Created

Viewing 11 reply threads
1 2 3 … 97 98 99
  • Replies
      • January 27, 2014 at 11:54 pm
      awillett1991
      Participant

      Karen, 

      my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

      Amy

      • January 27, 2014 at 11:54 pm
      awillett1991
      Participant

      Karen, 

      my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

      Amy

      • January 27, 2014 at 11:54 pm
      awillett1991
      Participant

      Karen, 

      my Dr does not feel I am probabably responding to the MEK but the dab is keeping my brain and body stable, just not the heart. It sucks. Glad to hear you are doing Ok. 

      Amy

      • January 21, 2014 at 11:51 pm
      awillett1991
      Participant

      So very sorry to hear this Al! I PMd you.  Keep fighting!

      Amy

      • January 21, 2014 at 11:51 pm
      awillett1991
      Participant

      So very sorry to hear this Al! I PMd you.  Keep fighting!

      Amy

      • January 21, 2014 at 11:51 pm
      awillett1991
      Participant

      So very sorry to hear this Al! I PMd you.  Keep fighting!

      Amy

      • January 8, 2014 at 9:05 pm
      awillett1991
      Participant

      I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

      Amy

      • January 8, 2014 at 9:05 pm
      awillett1991
      Participant

      I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

      Amy

      • January 8, 2014 at 9:05 pm
      awillett1991
      Participant

      I'm so sorry for your loss. Your mom was a true fighter and an inspiration and helper to many on this board. She will be missed. 

      Amy

      • December 29, 2013 at 3:43 am
      awillett1991
      Participant

      I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

       

      Amy

      • December 29, 2013 at 3:43 am
      awillett1991
      Participant

      I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

       

      Amy

      • December 29, 2013 at 3:43 am
      awillett1991
      Participant

      I had a full, unopened bottle of Zelboraf and returned it to the Vanderbilt Pharmacy. They were happy to have it and said they are trying to start a program to help those who need it.  How are you guys doing?

       

      Amy

      • January 20, 2014 at 2:09 pm
      awillett1991
      Participant

      Janet, 

      rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

      Blessings, 

      Amy

      • January 20, 2014 at 2:09 pm
      awillett1991
      Participant

      Janet, 

      rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

      Blessings, 

      Amy

      • January 20, 2014 at 2:09 pm
      awillett1991
      Participant

      Janet, 

      rumor has it that Dr Weber (Moffitt) has a few slots in a new PD1 trial. People have certainly seen great success when it works. I had at best, a partial response. I am now on dabrafenib/Mekinist (and v600d), not sure if it's working, should find out soon, but this is certainly an option. Unfortunately partial responses are not uncommon with any of these drugs.  

      Blessings, 

      Amy

Viewing 11 reply threads
1 2 3 … 97 98 99
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