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Amy-MRF
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Amy-MRF

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      • March 10, 2022 at 4:34 pm
      Amy-MRF
      Keymaster
        The MRF has multiple spam blockers on the Forum that catch bots who are spamming. These are not bots who are posting, but actual people signing up with accounts and making individual posts. The only way to prevent this type of spam from being posted is if someone from the MRF reviewed each and every message and made determinations if a post is appropriate or not. I personally check the Forum once a weekday (it may be at 7am or 9pm, it just depends on my workload for the day) for spam and delete as necessary. Constant checking of the Forum for spam during regular business hours is not realistic.

        If users are OK with only seeing new posts once a weekday after I reviewed all posts (and up to 3 days later over weekends or holidays), then we could add additional blocks. However, the MRF would strongly prefer not limiting posts and dialogue to allow for free-flowing discussion to meet patients and caregivers needs. This includes not limiting new users to post in case there is an immediate need for support and guidance.

        • January 29, 2022 at 10:45 am
        Amy-MRF
        Keymaster
          More changes as of January 28, 2022:
          1) Removed the badges, as few people were using them.
          2) Moved the FAQ and other icons from the right side of the page to the top for easier access.
          3) Switched to a private messaging option. This is similar to direct messaging on other social media platforms and will allow users to have private, direct conversations with each other.
          4) Streamlined the profile page form to allow for easier completion. This can be accessed by clicking the “manage profile” button at the top of the page and clicking the top option ‘edit profile’.
          5) Made additional changes to font color/size to be consistent with accessibility guidelines, making it easier to read. Decreased the empty white space.

          Regarding the old profiles: we continue to work to see if they can be restored. It is something we know is important and continue to try to solve, but it is proving to be a challenge.

          As always, please reach out to [email protected] should you have any questions or issues.

          • December 21, 2021 at 7:42 pm
          Amy-MRF
          Keymaster
            We are addressing the profile issue and are considering 3 or 4 options of how best to move forward; however, this is a large undertaking and will take the longest time to implement. Please continue to be patient on this specific issue. I can’t promise how it will be resolved at this time, but we’re hopeful it will meet most people’s needs.
            • December 17, 2021 at 10:26 am
            Amy-MRF
            Keymaster
              Additional changes as of December 22, 2021
              1) Edited the number of tags (relevant keywords that can help in categorizing posts) from 40+ to approximately 10
              2) Changed out the editor to allow for easier/cleaner posting (hopefully no more garbled posts when trying to copy/paste!)
              3) Made changes to font color/size to be consistent with accessibility guidelines, making it easier to read. Decreased the empty white space.

              As always, please reach out to [email protected] should you have any questions or issues.

              Happy Holidays from the MRF!

              • April 20, 2021 at 9:47 am
              Amy-MRF
              Keymaster
                It’s not too late to sign up for the Ohio State (May 1st) and Univ. of Pennsylvania’s (May 21st) virtual Patient Symposium events! See the original post for links to sign up!
                • February 10, 2021 at 12:39 pm
                Amy-MRF
                Keymaster
                  Don’t forget to take the MRF’s Covid-19 impact survey! The survey will close soon and we want your insight!

                  ___________________________________________________________________

                  To help the Melanoma Research Foundation (MRF) better understand the continuing impacts and challenges COVID-19 is having on the melanoma community, we ask you to respond to this quick survey.

                  This survey is open to melanoma patients and caregivers speaking on behalf of a patient. Your feedback will help us to continue to understand the ongoing challenges facing the melanoma community and will inform our continued strategies and development of meaningful educational and support resources.

                  To better understand the variables of US-based healthcare versus that of Canada, we have partnered with Save Your Skin Foundation (SYSF), a Canadian non-profit committed to playing an active role in reducing the incidence of skin cancer in Canada.

                  Thank you in advance for giving us your time and feedback. All answers are confidential and individual responses will not be shared with any healthcare provider, other organization, or any other entity. Results will be presented as a summary.

                  If you have any questions, please email Lauren Johnston, Senior Patient Engagement Officer, at [email protected].

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