We are done!

This topic has 15 replies, 9 voices, and was last updated 6 years, 9 months ago by mrsaxde.

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- April 4, 2018 at 1:41 pm
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mrsaxde
Participant
I tolerated 4 out of the maximum 12 doses of IL-2. Last night when I stood to use the urinal bedside and got winded I started to get concerned. Fortunately they had hooked up an oxygen cannula and I put it on. IO was supposed to have a dose of IL-2 at 3am. At 2am the nurse did my vitals and said "I don't see anything here that would prevent Dr. Shindorf from ordering the next dose of IL-2." I responded by saying, "If I get a vote, let's wait until morning."

When no IL-2 came at 3am I wondered whether my vote had influenced the decision. When the nurse came to draw labs at 6am I asked. She said, "It seems that the decision had already been made, by the attending (Dr. Yang)."

When everyone came through on rounds this morning Dr. Yang told me that they had decided to stop the IL-2. I said, "That's good to hear, because that's where I am, too."

So now it's a few days of recovery, getting my blood counts back to normal, and one of the most nerve-wracking parts of the treatment — waiting to see if it has worked.

Thank you all so much for the outpouring of love and support you have provided me. I love this forum and I love all of you, too.

-Bill

Viewing 7 reply threads

Replies

- - April 4, 2018 at 1:55 pm
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  Bubbles
  Participant
  You are a BEAST, Bill!!! (Living in a family of fairly competative runners…being a "BEAST" is a supreme compliment!) You have rocked this OUT!!! Rest up You did your work…now for those little cells to fight it out! love ya back! celeste
  - April 4, 2018 at 2:13 pm
    
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    mrsaxde
    Participant
    
    Thanks Celeste! You are a beacon of encouragement and positivity for us all!
    
    -Bill
- - April 4, 2018 at 3:37 pm
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  Jahendry12
  Participant
  Waiting is the hardest. Wishing you only the best Bill. You are in my prayers.
  - April 4, 2018 at 4:38 pm
    
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    mrsaxde
    Participant
    
    Thank you!
- - April 4, 2018 at 4:34 pm
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  Wife_WilliamR
  Participant
  Bill – you are doing great! Was anxious to log on today to see if you had posted! Try to rest/relax and let those cells do their job! Love and prayers, Stacy & William
  - April 4, 2018 at 4:39 pm
    
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    mrsaxde
    Participant
    
    Thank you! I'm thinking of you guys too!
  - April 4, 2018 at 4:39 pm
    
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    mrsaxde
    Participant
    
    Thank you! I'm thinking of you guys too!
- - April 4, 2018 at 8:50 pm
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  bjeans
  Participant
  Yay Bill! In horror of this mighty win of yours I have to say it: Go Orioles!
  
  Beth
  - April 5, 2018 at 1:50 am
    
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    bjeans
    Participant
    
    In HONOR of this mighty win! I must have typed an r and autospell went to town.
- - April 5, 2018 at 1:29 am
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  TexMelanomex
  Participant
  Right on Bill!! Warrior on brother!
- - April 5, 2018 at 1:41 am
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  CancerSpouse
  Participant
  Good for you! Go Bill! Glad you're done for now. ~ Carol
- - April 5, 2018 at 6:55 pm
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  cjm22
  Participant
  Woohoo! Rest up! Hope this treatment treats you well.
- - April 6, 2018 at 8:48 pm
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  mrsaxde
  Participant
  Thank you everybody! I have been trying to respond to each response individually but Wednesday and yesterday being my first days of recovery I still wasn't feeling very well and was only out of bed for short periods of time.
  
  I thank you all again for the outpouring of love, hope, and encouragement. As I said on Monday as my cells re-entered my body, "today (Monday, actually) is the first day of the rest of my life!"
  
  Never give up!
  - April 7, 2018 at 2:52 pm
    
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    tedtell1
    Participant
    
    Bill:
    
    Dont think I have responded to you previously. I have been following your updates! Glad to hear you are doing okay. Blessings to you.
    
    Ted
  - April 7, 2018 at 6:44 pm
    
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    mrsaxde
    Participant
    
    Hi Ted! Thanks for your kind words and support. I'll have to wait until my second follow up visit, 12 weeks after discharge, to learn whether or not this is working. But I believe with all my heart and soul that it is going to work!