› Forums › General Melanoma Community › Update on Randall – brain mets
- This topic has 6 replies, 2 voices, and was last updated 11 years, 1 month ago by
randallgford.
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- March 21, 2013 at 10:59 pm
Randall started Yervoy two weeks ago after lung biopsy, CT and PET scan showed tumors on lungs,
abdomen, two small ones on liver, and spine. Brain MRI was inconclusive, decided to do a double contrast
MRI. Well the result is 5 apparent lesions, we are doing cyberknife by next week if another MRI can be
scheduled, then a day to plan it (?) I got the impression from reading on this board they mainly do cyberknife
Randall started Yervoy two weeks ago after lung biopsy, CT and PET scan showed tumors on lungs,
abdomen, two small ones on liver, and spine. Brain MRI was inconclusive, decided to do a double contrast
MRI. Well the result is 5 apparent lesions, we are doing cyberknife by next week if another MRI can be
scheduled, then a day to plan it (?) I got the impression from reading on this board they mainly do cyberknife
for brain. Why not for lungs/spine etc.? Just curious. I guess its more wait and see, some respond, some don't.
I am having a hard time with what to tell my daughter she is 20, across the state, a junior in college and doing
great with grades, a job, and an internship. Very busy and focused. We went there and told her about the cancer returning,
but at that point we only knew it was in the lung (after the biopsy) and we pretty much assured her he would get
get treatment and beat it. I feel like Im not being truthful, she is coming home next weekend for Easter and I have
to figure out what if anything, else to say. Randall doesnt want to stress her out. He still feels decent and goes to work.
Mostly I try to think positive, but this is serious especially with the brain involvement.
- Replies
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- March 23, 2013 at 1:28 am
I can understand your concern about what to tell your 20-year old daughter. When my husband was first diagnosed with Stage IV widespread melanoma, our first reaction was not to tell our two daughters (mid and late 20's) how serious this illness was. Our initial thinking was, they're young, they're happy, they've got their own lives, let them lead their lives. But we soon realized that that was not fair to them. They deserve to know the truth. We tell them the truth at every turn; they know and understand the seriousness of this hideous disease. But we are always hopeful and believe that we have a good team and we will fight as long and as hard as we can to give us more time with "their daddy."
Thoughts and prayers are with you all.
Janet Lee
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- March 23, 2013 at 3:16 pm
Thank you, its nice to get advice from someone who really "gets" it. I plan to talk to her next Saturday. Easter
we will have family over for dinner- this may help, to have some family celebratory time and not go back to Orlando
on too somber a note. As Randall said, when she sees how upbeat I am (which he is, unbelievably so) I think it
will catch on. She has his calm side, but a but of my more emotional worrisome tendencies so I hope he's right. In any event, she needs to know. She will be making decisions on internships etc and so I want her to have more facts.
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- March 23, 2013 at 3:16 pm
Thank you, its nice to get advice from someone who really "gets" it. I plan to talk to her next Saturday. Easter
we will have family over for dinner- this may help, to have some family celebratory time and not go back to Orlando
on too somber a note. As Randall said, when she sees how upbeat I am (which he is, unbelievably so) I think it
will catch on. She has his calm side, but a but of my more emotional worrisome tendencies so I hope he's right. In any event, she needs to know. She will be making decisions on internships etc and so I want her to have more facts.
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- March 23, 2013 at 3:16 pm
Thank you, its nice to get advice from someone who really "gets" it. I plan to talk to her next Saturday. Easter
we will have family over for dinner- this may help, to have some family celebratory time and not go back to Orlando
on too somber a note. As Randall said, when she sees how upbeat I am (which he is, unbelievably so) I think it
will catch on. She has his calm side, but a but of my more emotional worrisome tendencies so I hope he's right. In any event, she needs to know. She will be making decisions on internships etc and so I want her to have more facts.
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- March 23, 2013 at 1:28 am
I can understand your concern about what to tell your 20-year old daughter. When my husband was first diagnosed with Stage IV widespread melanoma, our first reaction was not to tell our two daughters (mid and late 20's) how serious this illness was. Our initial thinking was, they're young, they're happy, they've got their own lives, let them lead their lives. But we soon realized that that was not fair to them. They deserve to know the truth. We tell them the truth at every turn; they know and understand the seriousness of this hideous disease. But we are always hopeful and believe that we have a good team and we will fight as long and as hard as we can to give us more time with "their daddy."
Thoughts and prayers are with you all.
Janet Lee
-
- March 23, 2013 at 1:28 am
I can understand your concern about what to tell your 20-year old daughter. When my husband was first diagnosed with Stage IV widespread melanoma, our first reaction was not to tell our two daughters (mid and late 20's) how serious this illness was. Our initial thinking was, they're young, they're happy, they've got their own lives, let them lead their lives. But we soon realized that that was not fair to them. They deserve to know the truth. We tell them the truth at every turn; they know and understand the seriousness of this hideous disease. But we are always hopeful and believe that we have a good team and we will fight as long and as hard as we can to give us more time with "their daddy."
Thoughts and prayers are with you all.
Janet Lee
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