I’m starting cycle 2 of clinical trial,
I can’t seem to paste the trial. It is under the U of Iowa clinical trial cancer page.
Title 07-08-01-50; Phase I/II Study Epigenetic Modification of Chemosensitivity and Apoptosis in Metastatic Melanoma: Treatment of a Resistant Disease Using Decitabine, Temozolomide and Panobinostat
I start getting 2 shots of Decitabine week one and week two M,W, F. I got to the Clinical cancer center for the shots.
Week 2 I also takeTemodar day 2 thru day 5 in the evening at home.
And I also take Panobinostat at home every 4th for 8 days(i think)
I am on week 2 of cycle 2 now.
I am doing good except for am still dealing with some edema from the brain tumor. I’m being weaned from steroids. I have a follow up MRI on Feb. 7. We’re all hoping that the tumor has shrunk( from radiation) and there are no new tumors and the edema has resolved. I’m worried about being on the steroida for so long and am hoping the MRI is an improvement from last one.
The steroids are hard since I don’t sleep well so I’m hoping theres good news next week.
My right side still continues to improve from the stroke. I keep getting more feeling on that side and it makes me feel that I can keep improving. I use a cane now and walk as much as and still practice all mt OT and PT.
I’m really trying to be positive about the trial. I feel that it could do some good things.
I guess thats it for now. Thanks for reading and caring.
Kellie( from Iowa)
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