› Forums › General Melanoma Community › TIL treatment
- This topic has 30 replies, 11 voices, and was last updated 13 years, 2 months ago by momof2kids.
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- September 24, 2011 at 11:37 pm
Just to let you know that I have not forgotten about each and every one of you. Days has been very difficult. Keeping food down and trying to stop the aching from lymphedema. I also didn't want to say anything too quickly. I go for tests starting next Tuesday for 3 days and pray that I have regression…then I will give a report. I will be having a scan and results, very nervous, it looks pretty good but I don't want to celebrate too early. Take care. Val xx
Just to let you know that I have not forgotten about each and every one of you. Days has been very difficult. Keeping food down and trying to stop the aching from lymphedema. I also didn't want to say anything too quickly. I go for tests starting next Tuesday for 3 days and pray that I have regression…then I will give a report. I will be having a scan and results, very nervous, it looks pretty good but I don't want to celebrate too early. Take care. Val xx
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- September 25, 2011 at 12:43 am
Val
I wish you all the luck in the world for great scans.
Have you seen any changes with the tumors in your leg??? How long does the doc say it willtake to see any changes?
You are always in my prayers.
Mary
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- September 25, 2011 at 11:14 am
HI Val,
I've been thinking about you. What is making the lymphadema aching so? is your leg swollen? I am hoping that you are taking it easy, are laying around and friends and dear hubby are taking care of you!!
Well wishes coming your way!!
Hugs,
Vermont_Donna, stage 3a, NED
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- September 25, 2011 at 11:14 am
HI Val,
I've been thinking about you. What is making the lymphadema aching so? is your leg swollen? I am hoping that you are taking it easy, are laying around and friends and dear hubby are taking care of you!!
Well wishes coming your way!!
Hugs,
Vermont_Donna, stage 3a, NED
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- September 25, 2011 at 12:55 pm
It sounds like you have gone through a lot, I hope you feel better each day! We are hoping and praying for positive scan results for you. We have followed your TIL posts, you are a fighter, and we hope this treatment kicks melanoma to the curb. God bless! Valerie (phil’s wife) -
- September 25, 2011 at 12:55 pm
It sounds like you have gone through a lot, I hope you feel better each day! We are hoping and praying for positive scan results for you. We have followed your TIL posts, you are a fighter, and we hope this treatment kicks melanoma to the curb. God bless! Valerie (phil’s wife) -
- September 25, 2011 at 4:09 pm
Hi Val,
So good to hear from you. I can only imagine how rough this trial was – but I am very hopeful this will be the one that really works for you. Hang in there and I am anxious to hear the scan results. It is a long road, but we are all very keen to hear your success. Big hugs,
Annette IIIB
Toronto
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- September 25, 2011 at 4:09 pm
Hi Val,
So good to hear from you. I can only imagine how rough this trial was – but I am very hopeful this will be the one that really works for you. Hang in there and I am anxious to hear the scan results. It is a long road, but we are all very keen to hear your success. Big hugs,
Annette IIIB
Toronto
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- September 25, 2011 at 10:15 pm
Hang in there. Easy as she goes. It took me a long time as well. Not a lot of fun either, but you'll start to see some light down that tunnel. I'm back to NIH myself October 19th, and 20th. Five years and counting. My latest crazy cancer, Merkel cell, now doesn't want to give in. Last three months…three operations, another coming this week, 30 days of radiation…and probably now 30 more off the head and onto the neck, and I'm getting pretty sure that the dreaded word, chemo, is about to me popped on me again. I'm in that sorta same wierdish "really??" feeling again BUT some of you know me and I ain't f ' ing quitting.
Warren G
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- September 26, 2011 at 2:10 am
We know you Warren…and I KNOW you won't ever give up. Keep up the fight…you KNOW you will win…those grandchildren need their grandpa!! Cancer is strong but we are even STRONGER you know that!!! Who knows maybe my next trip will be 19th and 20th…Would love to meet up with you. Val xx
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- September 26, 2011 at 2:10 am
We know you Warren…and I KNOW you won't ever give up. Keep up the fight…you KNOW you will win…those grandchildren need their grandpa!! Cancer is strong but we are even STRONGER you know that!!! Who knows maybe my next trip will be 19th and 20th…Would love to meet up with you. Val xx
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- September 25, 2011 at 10:15 pm
Hang in there. Easy as she goes. It took me a long time as well. Not a lot of fun either, but you'll start to see some light down that tunnel. I'm back to NIH myself October 19th, and 20th. Five years and counting. My latest crazy cancer, Merkel cell, now doesn't want to give in. Last three months…three operations, another coming this week, 30 days of radiation…and probably now 30 more off the head and onto the neck, and I'm getting pretty sure that the dreaded word, chemo, is about to me popped on me again. I'm in that sorta same wierdish "really??" feeling again BUT some of you know me and I ain't f ' ing quitting.
Warren G
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- September 26, 2011 at 6:51 pm
Val.
I pray you get a great response.
I am new to the forum so I have lots to learn. I read you had radiation for your whole body.
Is that correct? Will radiation cause brittle bones or other problems in the future foryou?? It would seem that radiating your whole body is not good.
Sal
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- September 26, 2011 at 6:51 pm
Val.
I pray you get a great response.
I am new to the forum so I have lots to learn. I read you had radiation for your whole body.
Is that correct? Will radiation cause brittle bones or other problems in the future foryou?? It would seem that radiating your whole body is not good.
Sal
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- September 26, 2011 at 9:05 pm
Hi Val,
Thanks so much for keeping us posted on your therapy at NIH. I am following your results closely in hopes the Temodar chemo I am taking will knock down the brain mets to 3 or less so I can join you in getting full body systemic treatment. But one step at a time.
Keep up your positive attitude, and my thoughts and prayers are with you daily.
Bruce
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- September 26, 2011 at 9:05 pm
Hi Val,
Thanks so much for keeping us posted on your therapy at NIH. I am following your results closely in hopes the Temodar chemo I am taking will knock down the brain mets to 3 or less so I can join you in getting full body systemic treatment. But one step at a time.
Keep up your positive attitude, and my thoughts and prayers are with you daily.
Bruce
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- September 26, 2011 at 11:45 pm
Hope all goes well with your results!
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- September 26, 2011 at 11:45 pm
Hope all goes well with your results!
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