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the struggle of the unknown

Forums General Melanoma Community the struggle of the unknown

  • Post
    yazziemac
    Participant

      Hi all

      I've posted several times previously–my husband is Stage 4, multiple mets, currently on Yervoy.  I am struggling severely with not knowing the future.  I don't expect anyone here to tell me what the future holds, because no one knows!  But, if I could have any help in how to  manage this "land of limbo", I would really appreciate it.  I try to live one day at a time, but I'm finding it very hard.  Does Pete (my husband) have only months to live? 2 years?  5 years?  No one knows…But I have to make decisions about my career (I recently decided to take a leave from my job), and I feel the need to wrap my head around what my life is going to be like going forward.  But, it seems that I can't do that because it's a big grey area (that's how Canadians spell grey, haha).  Are these treatments "buying time" and that's the best we can hope for?  Is there a chance this cancer could be cured?  What are we really and honestly dealing with??  These are the questions that I go to sleep with and wake up with–no answers to be found.  Thanks for any insight on this!

      Yasmin

    Viewing 8 reply threads
    • Replies
        Mat
        Participant

          I don't have any sage advice and different coping strategies work for different people.  For me, however, mindfulness meditation has made a noticeable difference.  I'd recommend an in-person MBSR (mindfulness based stress reduction) course.  They are offered by many hospitals and universities.

          Mat
          Participant

            I don't have any sage advice and different coping strategies work for different people.  For me, however, mindfulness meditation has made a noticeable difference.  I'd recommend an in-person MBSR (mindfulness based stress reduction) course.  They are offered by many hospitals and universities.

            Mat
            Participant

              I don't have any sage advice and different coping strategies work for different people.  For me, however, mindfulness meditation has made a noticeable difference.  I'd recommend an in-person MBSR (mindfulness based stress reduction) course.  They are offered by many hospitals and universities.

                yazziemac
                Participant

                  Thanks Mat 🙂

                   

                  yazziemac
                  Participant

                    Thanks Mat 🙂

                     

                    yazziemac
                    Participant

                      Thanks Mat 🙂

                       

                    dvd
                    Participant

                      Jasmin,

                      I can empathize with your dilemma. As someone who has gone through the worst of stage IV, but have come through, currently, in complete remission, the concept of "future" has morphed through several iterations. There were times when "future" meant wondering what things were going to be like, times when "future" meant seeing tomorrow morning, times when "future" didn't exist and, now, a time when I am completely redefining "future."

                      I'm sure you have heard the many variations on the advice to live for today, to be "in the moment," to focus on the present…  All wise words and good advice, but a bunch of B.S. when one is wound tight as a spring and searching for answers. 

                      The answers will come, in time. But waiting for them to develop is incredibly difficult. 

                      The only way I have felt any level of peace throughout my ordeal has been to meditate. This doesn't mean one must turn into a reclusive monk. There are many forms of meditation and, if one explores, the right form will be revealed — for both you and your husband. It may be relaxation techniques, it may be mindfulness, it may be prayer, it may be chanting, it may be exercise. Whatever works! Find what works and use it selfishly to gain whatever peace you can under the circumstances.

                      The answers will reveal themselves.

                      Keep hope.

                      DVD

                      dvd
                      Participant

                        Jasmin,

                        I can empathize with your dilemma. As someone who has gone through the worst of stage IV, but have come through, currently, in complete remission, the concept of "future" has morphed through several iterations. There were times when "future" meant wondering what things were going to be like, times when "future" meant seeing tomorrow morning, times when "future" didn't exist and, now, a time when I am completely redefining "future."

                        I'm sure you have heard the many variations on the advice to live for today, to be "in the moment," to focus on the present…  All wise words and good advice, but a bunch of B.S. when one is wound tight as a spring and searching for answers. 

                        The answers will come, in time. But waiting for them to develop is incredibly difficult. 

                        The only way I have felt any level of peace throughout my ordeal has been to meditate. This doesn't mean one must turn into a reclusive monk. There are many forms of meditation and, if one explores, the right form will be revealed — for both you and your husband. It may be relaxation techniques, it may be mindfulness, it may be prayer, it may be chanting, it may be exercise. Whatever works! Find what works and use it selfishly to gain whatever peace you can under the circumstances.

                        The answers will reveal themselves.

                        Keep hope.

                        DVD

                        dvd
                        Participant

                          Jasmin,

                          I can empathize with your dilemma. As someone who has gone through the worst of stage IV, but have come through, currently, in complete remission, the concept of "future" has morphed through several iterations. There were times when "future" meant wondering what things were going to be like, times when "future" meant seeing tomorrow morning, times when "future" didn't exist and, now, a time when I am completely redefining "future."

                          I'm sure you have heard the many variations on the advice to live for today, to be "in the moment," to focus on the present…  All wise words and good advice, but a bunch of B.S. when one is wound tight as a spring and searching for answers. 

                          The answers will come, in time. But waiting for them to develop is incredibly difficult. 

                          The only way I have felt any level of peace throughout my ordeal has been to meditate. This doesn't mean one must turn into a reclusive monk. There are many forms of meditation and, if one explores, the right form will be revealed — for both you and your husband. It may be relaxation techniques, it may be mindfulness, it may be prayer, it may be chanting, it may be exercise. Whatever works! Find what works and use it selfishly to gain whatever peace you can under the circumstances.

                          The answers will reveal themselves.

                          Keep hope.

                          DVD

                          kpcollins31
                          Participant

                            I can understand and sympathize with this myself. I am 41 years old and became stage 4 about 15 months ago… seemed like the sky was falling and it was impossible to think about the future. They cut a large tumor out of my small intentine and by the grace of God I have been NED ever since without treatment.

                            I understand that this could change at any time, but I am very thankful for the state I am in now. Even though the future is uncertain, I still have goals. I want to get my 3 kids through college and then retire to a quiet place near the ocean. If there is any positive side of this disease, it has taught me what is important in life. I work to live and not the other way around. I want to enjoy time with family and friends. I used to want that fancy car and that really nice house but now I know that is unimportant.

                            So the only advice I can offer is to enjoy the moment but continue to plan for the future. And it can still be a bright future. None of us know. Don't sweat the small stuff and prioritize what is really important to you. Hang in there.

                            Kevin

                            kpcollins31
                            Participant

                              I can understand and sympathize with this myself. I am 41 years old and became stage 4 about 15 months ago… seemed like the sky was falling and it was impossible to think about the future. They cut a large tumor out of my small intentine and by the grace of God I have been NED ever since without treatment.

                              I understand that this could change at any time, but I am very thankful for the state I am in now. Even though the future is uncertain, I still have goals. I want to get my 3 kids through college and then retire to a quiet place near the ocean. If there is any positive side of this disease, it has taught me what is important in life. I work to live and not the other way around. I want to enjoy time with family and friends. I used to want that fancy car and that really nice house but now I know that is unimportant.

                              So the only advice I can offer is to enjoy the moment but continue to plan for the future. And it can still be a bright future. None of us know. Don't sweat the small stuff and prioritize what is really important to you. Hang in there.

                              Kevin

                              kpcollins31
                              Participant

                                I can understand and sympathize with this myself. I am 41 years old and became stage 4 about 15 months ago… seemed like the sky was falling and it was impossible to think about the future. They cut a large tumor out of my small intentine and by the grace of God I have been NED ever since without treatment.

                                I understand that this could change at any time, but I am very thankful for the state I am in now. Even though the future is uncertain, I still have goals. I want to get my 3 kids through college and then retire to a quiet place near the ocean. If there is any positive side of this disease, it has taught me what is important in life. I work to live and not the other way around. I want to enjoy time with family and friends. I used to want that fancy car and that really nice house but now I know that is unimportant.

                                So the only advice I can offer is to enjoy the moment but continue to plan for the future. And it can still be a bright future. None of us know. Don't sweat the small stuff and prioritize what is really important to you. Hang in there.

                                Kevin

                                  yazziemac
                                  Participant

                                    Thanks so much for taking the time to respond.  It really is a comfort to me that I am not alone in this and that others truly understand the struggle.  

                                    Yasmin

                                    yazziemac
                                    Participant

                                      Thanks so much for taking the time to respond.  It really is a comfort to me that I am not alone in this and that others truly understand the struggle.  

                                      Yasmin

                                      eturner82
                                      Participant

                                        Hi Yasmin

                                        I sent you a private message (I hope you get it). I understand how you feel and struggle with the same questions :(…. I am so comforted by knowing I'm not alone and the people on this forum are such brave fighters like my husband!

                                        Emily

                                        eturner82
                                        Participant

                                          Hi Yasmin

                                          I sent you a private message (I hope you get it). I understand how you feel and struggle with the same questions :(…. I am so comforted by knowing I'm not alone and the people on this forum are such brave fighters like my husband!

                                          Emily

                                          yazziemac
                                          Participant

                                            Thanks, Emily!

                                            yazziemac
                                            Participant

                                              Thanks, Emily!

                                              yazziemac
                                              Participant

                                                Thanks, Emily!

                                                eturner82
                                                Participant

                                                  Hi Yasmin

                                                  I sent you a private message (I hope you get it). I understand how you feel and struggle with the same questions :(…. I am so comforted by knowing I'm not alone and the people on this forum are such brave fighters like my husband!

                                                  Emily

                                                  yazziemac
                                                  Participant

                                                    Thanks so much for taking the time to respond.  It really is a comfort to me that I am not alone in this and that others truly understand the struggle.  

                                                    Yasmin

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