The scan shows tumors growing
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The scan shows tumors growing

› Forums › General Melanoma Community › The scan shows tumors growing

  • Post
    • October 21, 2015 at 12:24 am
    dfeng
    Participant

    Have to move to other trials.

    The combo doesn't really control the growing of tumors. 

    I am waiting for the screen for another trial, it takes two weeks to check whether I am eligiable.

     

     

Viewing 23 reply threads
  • Replies
      • October 21, 2015 at 12:34 am
      Mat
      Participant

      Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

      • October 21, 2015 at 12:34 am
      Mat
      Participant

      Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

      • October 21, 2015 at 12:34 am
      Mat
      Participant

      Keep the faith.  My recollection is that you're at Sloan, so you're working with the best.

      • October 21, 2015 at 1:03 am
      Jubes
      Participant

      thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

      anne-Louise 

      • October 21, 2015 at 1:03 am
      Jubes
      Participant

      thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

      anne-Louise 

      • October 21, 2015 at 1:03 am
      Jubes
      Participant

      thats so  disappointing, but keep going to find the right treatment. I hope it's the next one

      anne-Louise 

      • October 21, 2015 at 2:36 am
      jamieth29
      Participant
      Dfeng,
      I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
      Jamie
      • October 21, 2015 at 2:36 am
      jamieth29
      Participant
      Dfeng,
      I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
      Jamie
      • October 21, 2015 at 2:36 am
      jamieth29
      Participant
      Dfeng,
      I’m sorry, I’m sure it was hard to hear that. I hope you can find the right treatment. What are the new trials your considering? I Don’t know else to say i was hoping this combo was the answer for you. Keep your head up.
      Jamie
      • October 21, 2015 at 10:42 am
      stars
      Participant

      Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

      • October 21, 2015 at 10:42 am
      stars
      Participant

      Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

      • October 21, 2015 at 10:42 am
      stars
      Participant

      Sorry to hear that, d feng… I hope you are eligible for another trial. Are you doing ok? This must be a shock.

      • October 21, 2015 at 1:37 pm
      Scooby123
      Participant

      Hi D.Feng

      sorry to hear you not responding hope you find another trial soon xx

      scooby❤️

      • October 21, 2015 at 1:37 pm
      Scooby123
      Participant

      Hi D.Feng

      sorry to hear you not responding hope you find another trial soon xx

      scooby❤️

      • October 21, 2015 at 1:37 pm
      Scooby123
      Participant

      Hi D.Feng

      sorry to hear you not responding hope you find another trial soon xx

      scooby❤️

      • October 21, 2015 at 7:59 pm
      Polymath
      Participant

      Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

      Aloha, Gary

       

      • October 21, 2015 at 7:59 pm
      Polymath
      Participant

      Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

      Aloha, Gary

       

      • October 21, 2015 at 7:59 pm
      Polymath
      Participant

      Sorry to hear the news.  You are not alone in this frustrating battle.  Now that ipi/nivo has just been approved we are trying for insurance coverage for that treatment.  Is that an option for you?

      Aloha, Gary

       

      • October 24, 2015 at 1:30 am
      Bubbles
      Participant

      Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

      Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

      • October 24, 2015 at 1:30 am
      Bubbles
      Participant

      Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

      Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

      • October 24, 2015 at 1:30 am
      Bubbles
      Participant

      Oh, D. Feng…I am so sorry that the ipi/nivo combo didn't help you as hoped. I don't know which trial you are looking at but I wish luck with whatever path you choose. I don't know your BRAF status and if those inhibitor combo's are an option for you. I don't know much about ocular melanoma and how, or if, that affects your options now. It seems that I remember something about CKIT being helpful. These things may be a stretch, but perhaps some of the treatments in this post may be helpful: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/07/for-mat.html

      Don't know if any of this helps at all…mostly just wanted to let you know that I am sorry and thinking of you and yours. Hang in there. Celeste

      • November 1, 2015 at 5:41 pm
      _Paul_
      Participant

      I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

      – Paul 

      • November 1, 2015 at 5:41 pm
      _Paul_
      Participant

      I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

      – Paul 

        • November 3, 2015 at 7:48 pm
        dfeng
        Participant

        Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

        • November 3, 2015 at 7:48 pm
        dfeng
        Participant

        Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

        • November 3, 2015 at 7:48 pm
        dfeng
        Participant

        Thank you for encouraging! It is being a long vacation that i am away and now, I am back.

      • November 1, 2015 at 5:41 pm
      _Paul_
      Participant

      I am sorry to hear this news D Feng. I know you put up with a lot of side effects and I was really hoping that the price you were paying was for some benefit. I am hoping and praying you find a treatment that works. You are in good hands at MSKCC.

      – Paul 

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