Still Plugging
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Still Plugging

› Forums › General Melanoma Community › Still Plugging

  • Post
    • February 6, 2017 at 1:31 am
    _Paul_
    Participant

    Wow, where to start. My cancer continues to grow and spread. I am in Seattle, back at the hospital. It was simply getting too hard to do the most basic of things back home. I have a surgery planned tomorrow to place a stent in one if my kidneys. It can't drain urine because it is blocked by a tumor.  I have gained about 20 pounds in water and I am bloated from my toes to my midriff. This big tumor in my lower right lobe is squeezing a large part of the lung shut, which is developing bronchitis-like symptoms, I.e a wet cough.

    I will fly back to LA where I have a room waiting in Palliative Care.

    The plan is to consent the trial on Thursday and receive my first infusion the following Wednesday. It feels like a race. I just need to survive long enough to see if this new treatment can turn things around. I have put up the best fight I know how. I have so much to live for, not to mention the awesome story I would have, but I am just going to do my best and hope for the best.

    – Paul

Viewing 47 reply threads
  • Replies
      • February 6, 2017 at 2:02 am
      snow white
      Participant

      So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

      xo Jen

      • February 6, 2017 at 2:02 am
      snow white
      Participant

      So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

      xo Jen

      • February 6, 2017 at 2:02 am
      snow white
      Participant

      So happy to see an update.  Just keep fighting and don't give up, you have fought a great fight already and I know you will continue to.  Praying that things go as planned and that you can consent the trial and get going with it, I know this will bring great peace of mind to you. I am so sorry to hear about the progression, but your still here and thats all that matters.  Safe travels to you.

      xo Jen

      • February 6, 2017 at 2:50 am
      Marksa2570
      Participant

      Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

      • February 6, 2017 at 2:50 am
      Marksa2570
      Participant

      Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

      • February 6, 2017 at 2:50 am
      Marksa2570
      Participant

      Hi Paul… I am new to the board but you will be in my thoughts and prayers.   Fight on!   

      • February 6, 2017 at 3:05 am
      jennunicorn
      Participant

      What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

      • February 6, 2017 at 3:05 am
      jennunicorn
      Participant

      What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

      • February 6, 2017 at 3:05 am
      jennunicorn
      Participant

      What a pain in the ass this stuff is! Sending a huge hug and as always lots of positive vibes to send you into the trial and back on the path of melanoma butt kicking!

      • February 6, 2017 at 3:12 am
      Bubbles
      Participant

      Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

      • February 6, 2017 at 3:12 am
      Bubbles
      Participant

      Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

      • February 6, 2017 at 3:12 am
      Bubbles
      Participant

      Oh, Paulster!  You have put up one hell of a fight, with honesty, integrity, faith and humor.  I love you like a brother I never had and KNOW that ratties are the best peeps ever! Ratties are awesome and have the longest taiis (Tales!!!)!  I stand ready and waiting to hear all of yours!  Hang in there! love, celeste

      • February 6, 2017 at 3:35 am
      casagrayson
      Participant

      Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

      • February 6, 2017 at 3:35 am
      casagrayson
      Participant

      Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

      • February 6, 2017 at 3:35 am
      casagrayson
      Participant

      Paul, you are so strong and you have so much fight.  Just hang in there a little longer, buddy, and let the trial meds do their magic.  I want to hear that awesome story of yours!!!  

      • February 6, 2017 at 4:11 am
      Mark_DC
      Participant

      Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

      • February 6, 2017 at 4:11 am
      Mark_DC
      Participant

      Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

      • February 6, 2017 at 4:11 am
      Mark_DC
      Participant

      Paul, so much travelling, hope they fix the fluid probkem and that you will be back jn LA soon and then on treatment. I love your posts and how much you help all of us. Good luck prayerstoo Mark

      • February 6, 2017 at 4:36 am
      sister of patient
      Participant

      Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

      Barb

      • February 6, 2017 at 4:36 am
      sister of patient
      Participant

      Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

      Barb

      • February 6, 2017 at 4:36 am
      sister of patient
      Participant

      Hi Paul,  wow, you are truly a David slaying goliath!! May your new secret weapon strike this monster down!!! I will hold that thought in mind for you!!! Best thoughts and wishes!!

      Barb

      • February 6, 2017 at 8:13 am
      Patrisa
      Participant

      Dear Paul,

      no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

      I am rooting for you, thinking of you every day, hoping for the best….

      Love,

      Patrisa

       

       

      • February 6, 2017 at 8:13 am
      Patrisa
      Participant

      Dear Paul,

      no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

      I am rooting for you, thinking of you every day, hoping for the best….

      Love,

      Patrisa

       

       

      • February 6, 2017 at 8:13 am
      Patrisa
      Participant

      Dear Paul,

      no words of wisdom here, just my sincerest hope for you to pull through…. I just hope you get on the darn treatment already, hope your stent is the last hurdle and from then on only positive news from you!

      I am rooting for you, thinking of you every day, hoping for the best….

      Love,

      Patrisa

       

       

      • February 6, 2017 at 11:54 am
      Shaneswife
      Participant
      Keep up the good fight Paul. We are all rooting for you.

      Janis

      • February 6, 2017 at 11:54 am
      Shaneswife
      Participant
      Keep up the good fight Paul. We are all rooting for you.

      Janis

      • February 6, 2017 at 11:54 am
      Shaneswife
      Participant
      Keep up the good fight Paul. We are all rooting for you.

      Janis

      • February 6, 2017 at 12:38 pm
      rosa1
      Participant

      Dear Paul,

      praying for you, keep strong.

      Rosa

      • February 6, 2017 at 12:38 pm
      rosa1
      Participant

      Dear Paul,

      praying for you, keep strong.

      Rosa

      • February 6, 2017 at 12:38 pm
      rosa1
      Participant

      Dear Paul,

      praying for you, keep strong.

      Rosa

      • February 6, 2017 at 12:50 pm
      momof4boys
      Participant
      Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
      • February 6, 2017 at 12:50 pm
      momof4boys
      Participant
      Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
      • February 6, 2017 at 12:50 pm
      momof4boys
      Participant
      Don’t give up yet Paul! Take it hour by hour, one day at a time. You have already proven to have incredible strength within you, use it to keep plugging along. Maybe this trial is the last straw you need. Sending prayers your way Paul. Also know you have been amazing to this site and like Josh, we are all waiting to hear from you as well.
      • February 6, 2017 at 2:56 pm
      iskitwo
      Participant

      Continued Prayers!!

      Missy

      • February 6, 2017 at 2:56 pm
      iskitwo
      Participant

      Continued Prayers!!

      Missy

      • February 6, 2017 at 2:56 pm
      iskitwo
      Participant

      Continued Prayers!!

      Missy

      • February 6, 2017 at 4:39 pm
      jenny22
      Participant

      Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

      Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

      ALL MY BEST WISHES!!!!!!!!

      jenny

      • February 6, 2017 at 4:39 pm
      jenny22
      Participant

      Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

      Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

      ALL MY BEST WISHES!!!!!!!!

      jenny

      • February 6, 2017 at 4:39 pm
      jenny22
      Participant

      Paul- We are all "plugging" right along with you……just want you to start treatment and hoping this is is the one for you….

      Thinking of you, rooting for you,  and sincerely hoping for rapid improvement.

      ALL MY BEST WISHES!!!!!!!!

      jenny

      • February 6, 2017 at 6:06 pm
      debwray
      Participant

      Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

      Best of wishes,

      Deb

      xx

      • February 6, 2017 at 6:06 pm
      debwray
      Participant

      Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

      Best of wishes,

      Deb

      xx

      • February 6, 2017 at 6:06 pm
      debwray
      Participant

      Thanks for updating everybody. Hope the kidney surgery is a breeze and that you are more comfortable before the trial starts. Hoping for the very best possible results for you from this latest trial. Looking forward to more tales of teasing the nurses etc

      Best of wishes,

      Deb

      xx

      • February 6, 2017 at 6:15 pm
      Polymath
      Participant

      Hey Paul,

      No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

      Gary

        • February 6, 2017 at 8:51 pm
        KeepHeadUp
        Participant

        Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

        • February 6, 2017 at 8:51 pm
        KeepHeadUp
        Participant

        Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

        • February 6, 2017 at 8:51 pm
        KeepHeadUp
        Participant

        Thinking of you today, Paul!!!  You are a fighter and have a whole team of fighters behind you supporting you on this board.  Keep us posted as to how you are doing.  Wishing you a speedy surgical recovery and then onto the next step!  You can do this!

      • February 6, 2017 at 6:15 pm
      Polymath
      Participant

      Hey Paul,

      No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

      Gary

      • February 6, 2017 at 6:15 pm
      Polymath
      Participant

      Hey Paul,

      No doubt you are a fighter. Yesterday, during the game, I told my wife I would go take a nap at halftime.  After all, no team in history had ever come back from such a deep deficit.  We all know what happened.  Lets make this a lesson for all of us.  Grit, determination, and working with a team of specialists can turn anything around, can make the impossible, possible.  We are cheering for you.

      Gary

      • February 7, 2017 at 3:13 am
      maperny
      Participant

      What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

      praying for you

      Maria

      • February 7, 2017 at 3:13 am
      maperny
      Participant

      What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

      praying for you

      Maria

        • February 10, 2017 at 11:58 pm
        besjana
        Participant

        Hello Paul, you truly are an ispiration ♡. Please keep fighting!

        My prayers go to you!

        • February 10, 2017 at 11:58 pm
        besjana
        Participant

        Hello Paul, you truly are an ispiration ♡. Please keep fighting!

        My prayers go to you!

        • February 10, 2017 at 11:58 pm
        besjana
        Participant

        Hello Paul, you truly are an ispiration ♡. Please keep fighting!

        My prayers go to you!

      • February 7, 2017 at 3:13 am
      maperny
      Participant

      What an inspiration you are to everyone fighting this monster.  You'll be on that trial before you know it and the monster will see who's the boss.

      praying for you

      Maria

Viewing 47 reply threads
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