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Still on Zelboraf
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Still on Zelboraf

› Forums › General Melanoma Community › Still on Zelboraf

  • Post
    • December 9, 2012 at 8:59 pm
    Richard_K
    Participant

       

      Well, after a worrying six weeks, I have my eyes fixed on crossing the “3 year on Zelboraf” hurdle (March 3, 2013).  After the hiccups caused by hurricane Sandy, I had my blood tested locally and with my bilirubin back in line, I was placed on 720 mg 2x per day starting on November 7th.  I had clean scans on December 3rd, continued good blood work on December 5th, and I am continuing on Zelboraf at 720 mg 2x per day and into my 34th month on Zelboraf.  No more scans or tests until next year.

       

      Well, after a worrying six weeks, I have my eyes fixed on crossing the “3 year on Zelboraf” hurdle (March 3, 2013).  After the hiccups caused by hurricane Sandy, I had my blood tested locally and with my bilirubin back in line, I was placed on 720 mg 2x per day starting on November 7th.  I had clean scans on December 3rd, continued good blood work on December 5th, and I am continuing on Zelboraf at 720 mg 2x per day and into my 34th month on Zelboraf.  No more scans or tests until next year.

      On another matter, I had a PSA last week and my urologist does not think I need another prostate biopsy for six months; it is a very slow cancer.

      Dick

    Viewing 32 reply threads
    • Replies
        • December 9, 2012 at 11:55 pm
        Tina D
        Participant

          I am glad to see this update, I had been wondering how everything went considering the delay from hurricane Sandy. Really glad to hear that you are doing so well 🙂

          • December 9, 2012 at 11:55 pm
          Tina D
          Participant

            I am glad to see this update, I had been wondering how everything went considering the delay from hurricane Sandy. Really glad to hear that you are doing so well 🙂

            • December 9, 2012 at 11:55 pm
            Tina D
            Participant

              I am glad to see this update, I had been wondering how everything went considering the delay from hurricane Sandy. Really glad to hear that you are doing so well 🙂

              • December 10, 2012 at 2:28 am
              POW
              Participant

                Good for you, Dick! You keep on going, ya hear?! And keep posting too. I just love reading about your success. 

                • December 10, 2012 at 2:28 am
                POW
                Participant

                  Good for you, Dick! You keep on going, ya hear?! And keep posting too. I just love reading about your success. 

                  • December 10, 2012 at 2:28 am
                  POW
                  Participant

                    Good for you, Dick! You keep on going, ya hear?! And keep posting too. I just love reading about your success. 

                    • December 10, 2012 at 2:36 am
                    aldakota22
                    Participant

                      Good to see you are back on "Z".It is always uplifting to read your posts.Stories like yours are what we need to see on this  site.You bring hope to so many.All the best.Will keep you in my prayers.Beat the Beast.   Al

                      • December 10, 2012 at 2:36 am
                      aldakota22
                      Participant

                        Good to see you are back on "Z".It is always uplifting to read your posts.Stories like yours are what we need to see on this  site.You bring hope to so many.All the best.Will keep you in my prayers.Beat the Beast.   Al

                        • December 10, 2012 at 2:36 am
                        aldakota22
                        Participant

                          Good to see you are back on "Z".It is always uplifting to read your posts.Stories like yours are what we need to see on this  site.You bring hope to so many.All the best.Will keep you in my prayers.Beat the Beast.   Al

                          • December 10, 2012 at 2:39 am
                          Linny
                          Participant

                            Hi Dick!

                            You certainly are the poster boy for Zelboraf! I'm sp happy to see this update and that you're doing well. I hope your doctors are documenting your treatment in detail so they can figure out what you're doing right.

                            • December 10, 2012 at 2:39 am
                            Linny
                            Participant

                              Hi Dick!

                              You certainly are the poster boy for Zelboraf! I'm sp happy to see this update and that you're doing well. I hope your doctors are documenting your treatment in detail so they can figure out what you're doing right.

                              • December 10, 2012 at 2:39 am
                              Linny
                              Participant

                                Hi Dick!

                                You certainly are the poster boy for Zelboraf! I'm sp happy to see this update and that you're doing well. I hope your doctors are documenting your treatment in detail so they can figure out what you're doing right.

                                • December 10, 2012 at 2:44 am
                                H555
                                Participant
                                  I was just thinking about you. Had a few days in the hospital with what was probably radiation cystitis from radiation 5 years ago. Not fun but more annoying than life threatening. I’m retraining my bladder after the worlds largest catheter. I make really big clots…. I’d forgotten that transition. My psa rise has also been slow since jumping back into Mel land. I’m glad you’re out there setting the pace. It helps a lot when I get discouraged to know how we’ll you’re doing. Thank you for giving us Zel people know its possible.
                                  • December 10, 2012 at 2:44 am
                                  H555
                                  Participant
                                    I was just thinking about you. Had a few days in the hospital with what was probably radiation cystitis from radiation 5 years ago. Not fun but more annoying than life threatening. I’m retraining my bladder after the worlds largest catheter. I make really big clots…. I’d forgotten that transition. My psa rise has also been slow since jumping back into Mel land. I’m glad you’re out there setting the pace. It helps a lot when I get discouraged to know how we’ll you’re doing. Thank you for giving us Zel people know its possible.
                                    • December 10, 2012 at 2:44 am
                                    H555
                                    Participant
                                      I was just thinking about you. Had a few days in the hospital with what was probably radiation cystitis from radiation 5 years ago. Not fun but more annoying than life threatening. I’m retraining my bladder after the worlds largest catheter. I make really big clots…. I’d forgotten that transition. My psa rise has also been slow since jumping back into Mel land. I’m glad you’re out there setting the pace. It helps a lot when I get discouraged to know how we’ll you’re doing. Thank you for giving us Zel people know its possible.
                                      • December 10, 2012 at 3:47 am
                                      Bruce Davis
                                      Participant
                                        Wishing you continued success with your fight against cancer.
                                        When I see your posts, I feel like we’re getting advice from an upper-class men. Thanks for taking the time to post and for letting us know what is possible with Zelboraf.
                                        Best wishes always, Bruce
                                        • December 10, 2012 at 3:47 am
                                        Bruce Davis
                                        Participant
                                          Wishing you continued success with your fight against cancer.
                                          When I see your posts, I feel like we’re getting advice from an upper-class men. Thanks for taking the time to post and for letting us know what is possible with Zelboraf.
                                          Best wishes always, Bruce
                                          • December 10, 2012 at 3:47 am
                                          Bruce Davis
                                          Participant
                                            Wishing you continued success with your fight against cancer.
                                            When I see your posts, I feel like we’re getting advice from an upper-class men. Thanks for taking the time to post and for letting us know what is possible with Zelboraf.
                                            Best wishes always, Bruce
                                            • December 10, 2012 at 5:02 am
                                            DeniseK
                                            Participant

                                              Hi Dick,

                                              I am so encouraged to read your posts and your continued success.  When I'm feeling down I go to your profile and read about your battle and it really gives me hope.  I think I have analyzed every aspect of your treatment and to figure out what you did and continue to do right.  I am so happy for you and your family. 

                                              Have a VERY MERRY CHRISTMAS and many more to come!! 

                                              Denise

                                              • December 10, 2012 at 5:02 am
                                              DeniseK
                                              Participant

                                                Hi Dick,

                                                I am so encouraged to read your posts and your continued success.  When I'm feeling down I go to your profile and read about your battle and it really gives me hope.  I think I have analyzed every aspect of your treatment and to figure out what you did and continue to do right.  I am so happy for you and your family. 

                                                Have a VERY MERRY CHRISTMAS and many more to come!! 

                                                Denise

                                                • December 10, 2012 at 5:02 am
                                                DeniseK
                                                Participant

                                                  Hi Dick,

                                                  I am so encouraged to read your posts and your continued success.  When I'm feeling down I go to your profile and read about your battle and it really gives me hope.  I think I have analyzed every aspect of your treatment and to figure out what you did and continue to do right.  I am so happy for you and your family. 

                                                  Have a VERY MERRY CHRISTMAS and many more to come!! 

                                                  Denise

                                                  • December 10, 2012 at 11:57 am
                                                  triciad
                                                  Participant

                                                    Dick,

                                                    This was a beautiful way to wake up today.  I'm so happy for your good news.  Tis the season to celebrate your continued success and toast to many, many more!  Congratulations!

                                                    Tricia

                                                    • December 10, 2012 at 11:57 am
                                                    triciad
                                                    Participant

                                                      Dick,

                                                      This was a beautiful way to wake up today.  I'm so happy for your good news.  Tis the season to celebrate your continued success and toast to many, many more!  Congratulations!

                                                      Tricia

                                                        • December 10, 2012 at 3:52 pm
                                                        Snickers60
                                                        Participant

                                                          WAY TO GO, DICK !   You are a ZEL INSPIRATION for all of us on it.    Dr. B. just told Wayne last week that if his Pets continue to be clean at the one year mark – JUNE 2013 – they will actually consider taking him off Zel and SEE what happens. I'm not sure about the studies behind that, but that is the treatment plan for now.    Still on 4 tabs 2 X D now.   

                                                          Always good to hear from you and get this fabulous encourgement ! 

                                                          Nancy (devoted wife of 3 X Warrior Wayne) 

                                                          • December 10, 2012 at 3:52 pm
                                                          Snickers60
                                                          Participant

                                                            WAY TO GO, DICK !   You are a ZEL INSPIRATION for all of us on it.    Dr. B. just told Wayne last week that if his Pets continue to be clean at the one year mark – JUNE 2013 – they will actually consider taking him off Zel and SEE what happens. I'm not sure about the studies behind that, but that is the treatment plan for now.    Still on 4 tabs 2 X D now.   

                                                            Always good to hear from you and get this fabulous encourgement ! 

                                                            Nancy (devoted wife of 3 X Warrior Wayne) 

                                                            • December 10, 2012 at 3:52 pm
                                                            Snickers60
                                                            Participant

                                                              WAY TO GO, DICK !   You are a ZEL INSPIRATION for all of us on it.    Dr. B. just told Wayne last week that if his Pets continue to be clean at the one year mark – JUNE 2013 – they will actually consider taking him off Zel and SEE what happens. I'm not sure about the studies behind that, but that is the treatment plan for now.    Still on 4 tabs 2 X D now.   

                                                              Always good to hear from you and get this fabulous encourgement ! 

                                                              Nancy (devoted wife of 3 X Warrior Wayne) 

                                                            • December 10, 2012 at 11:57 am
                                                            triciad
                                                            Participant

                                                              Dick,

                                                              This was a beautiful way to wake up today.  I'm so happy for your good news.  Tis the season to celebrate your continued success and toast to many, many more!  Congratulations!

                                                              Tricia

                                                              • December 11, 2012 at 1:14 am
                                                              awillett1991
                                                              Participant
                                                                Great news Dick, congratulations and thanks for posting!
                                                                • December 11, 2012 at 1:14 am
                                                                awillett1991
                                                                Participant
                                                                  Great news Dick, congratulations and thanks for posting!
                                                                  • December 11, 2012 at 1:14 am
                                                                  awillett1991
                                                                  Participant
                                                                    Great news Dick, congratulations and thanks for posting!
                                                                    • December 11, 2012 at 10:50 pm
                                                                    bigb0624
                                                                    Participant

                                                                      Dick,

                                                                      You are my hero!  I have been on it for 4 months and so far so good.  I want to be like you and not have to go on IPPI.

                                                                      Continued all the best.

                                                                      Big B

                                                                      • December 11, 2012 at 10:50 pm
                                                                      bigb0624
                                                                      Participant

                                                                        Dick,

                                                                        You are my hero!  I have been on it for 4 months and so far so good.  I want to be like you and not have to go on IPPI.

                                                                        Continued all the best.

                                                                        Big B

                                                                        • December 11, 2012 at 10:50 pm
                                                                        bigb0624
                                                                        Participant

                                                                          Dick,

                                                                          You are my hero!  I have been on it for 4 months and so far so good.  I want to be like you and not have to go on IPPI.

                                                                          Continued all the best.

                                                                          Big B

                                                                          • December 14, 2012 at 4:50 pm
                                                                          fdess056
                                                                          Participant

                                                                            So glad things are working out for you, Dick.  The hospitals here in New York are still closed to in patients but seem to be gradually getting back some services. I'm approaching 5 months on zel and hope to be able to duplicate your success.  Thanks for posting.  You give us all hope.  have a great, healthy  holiday season

                                                                            FrankD Brooklyn

                                                                            • December 14, 2012 at 4:50 pm
                                                                            fdess056
                                                                            Participant

                                                                              So glad things are working out for you, Dick.  The hospitals here in New York are still closed to in patients but seem to be gradually getting back some services. I'm approaching 5 months on zel and hope to be able to duplicate your success.  Thanks for posting.  You give us all hope.  have a great, healthy  holiday season

                                                                              FrankD Brooklyn

                                                                              • December 14, 2012 at 4:50 pm
                                                                              fdess056
                                                                              Participant

                                                                                So glad things are working out for you, Dick.  The hospitals here in New York are still closed to in patients but seem to be gradually getting back some services. I'm approaching 5 months on zel and hope to be able to duplicate your success.  Thanks for posting.  You give us all hope.  have a great, healthy  holiday season

                                                                                FrankD Brooklyn

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