Still here – clean scans this week!
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Still here – clean scans this week!

› Forums › General Melanoma Community › Still here – clean scans this week!

  • Post
    • January 23, 2014 at 2:31 am
    Rocco
    Participant

    The report from my semi-annual CT scan and Brain MRI showed that I'm still NED according to my Onc at DFCI.  Nice way to start the new year.  Great considering the Stage IV diagnosis back in the fall of 2005. See my PatNet/history for all the details of treatments, etc over the years.  For those still very much in the fight, there is always hope.  Hang in there!

    -Rocco, Stage IV in 2005, Ipi (MDX-010) responder

     

Viewing 23 reply threads
  • Replies
      • January 23, 2014 at 3:15 am
      King
      Participant

      Rocco,

      Congratulations!!  I am so happy that you posted this wonderful news.  As you might remember, I advanced to Stage IV in 7/05 and I'm still here, too.  Hang onto hope!

      King

      Stage IV 7/05 Liver mets

      • January 23, 2014 at 3:15 am
      King
      Participant

      Rocco,

      Congratulations!!  I am so happy that you posted this wonderful news.  As you might remember, I advanced to Stage IV in 7/05 and I'm still here, too.  Hang onto hope!

      King

      Stage IV 7/05 Liver mets

        • January 23, 2014 at 12:41 pm
        mwcollins
        Participant

        That news warms my heart in ways you probably understand better than anyone.  My husband just advanced to stage 4 this month, with a met in his small bowel.  We are scheduled for surgery on 2/4 and then anticipating some sort of adjuvant therapy after.  We are looking into ipi, antipd-1 (if he can get into the trial w/ a resected stage 4 met), or the new combo drugs if he is BRAF positive.  Either way, the treatments are getting better and better, and hearing people doing so incredibly well gives me such wonderful hope that my husband has a long promising life ahead of him!!  Congratulations to both of you!

        • January 23, 2014 at 12:41 pm
        mwcollins
        Participant

        That news warms my heart in ways you probably understand better than anyone.  My husband just advanced to stage 4 this month, with a met in his small bowel.  We are scheduled for surgery on 2/4 and then anticipating some sort of adjuvant therapy after.  We are looking into ipi, antipd-1 (if he can get into the trial w/ a resected stage 4 met), or the new combo drugs if he is BRAF positive.  Either way, the treatments are getting better and better, and hearing people doing so incredibly well gives me such wonderful hope that my husband has a long promising life ahead of him!!  Congratulations to both of you!

        • January 23, 2014 at 12:41 pm
        mwcollins
        Participant

        That news warms my heart in ways you probably understand better than anyone.  My husband just advanced to stage 4 this month, with a met in his small bowel.  We are scheduled for surgery on 2/4 and then anticipating some sort of adjuvant therapy after.  We are looking into ipi, antipd-1 (if he can get into the trial w/ a resected stage 4 met), or the new combo drugs if he is BRAF positive.  Either way, the treatments are getting better and better, and hearing people doing so incredibly well gives me such wonderful hope that my husband has a long promising life ahead of him!!  Congratulations to both of you!

      • January 23, 2014 at 3:15 am
      King
      Participant

      Rocco,

      Congratulations!!  I am so happy that you posted this wonderful news.  As you might remember, I advanced to Stage IV in 7/05 and I'm still here, too.  Hang onto hope!

      King

      Stage IV 7/05 Liver mets

      • January 23, 2014 at 4:39 am
      Jahendry12
      Participant

      Excellent news!  Thanks for posting. 

       

      • January 23, 2014 at 4:39 am
      Jahendry12
      Participant

      Excellent news!  Thanks for posting. 

       

      • January 23, 2014 at 4:39 am
      Jahendry12
      Participant

      Excellent news!  Thanks for posting. 

       

      • January 23, 2014 at 7:27 am
      POW
      Participant

      That is great news, Rocco! Good for you! You're a "grand old man" in the melanoma arena.

      Thank you for bringing such an upbeat message to your fellow warriors. 

      • January 23, 2014 at 7:27 am
      POW
      Participant

      That is great news, Rocco! Good for you! You're a "grand old man" in the melanoma arena.

      Thank you for bringing such an upbeat message to your fellow warriors. 

        • January 23, 2014 at 1:38 pm
        Phil S
        Participant

        Rocco,  So happy to see your post and your wonderful and encouraging news! You Go Girl!!!  I always wonder how you are doing since we both go to Dana Farber and Dr Hodi!  My husband is still doing well since TIL in Houston, and Dr Hodi has been so pleased with his response! We want to join your ranks of being a long term Stage 4 warrior living a good life! Thanks for the reminder of the possibilities!  All the best, Valerie (Phil's wife)

        • January 23, 2014 at 1:38 pm
        Phil S
        Participant

        Rocco,  So happy to see your post and your wonderful and encouraging news! You Go Girl!!!  I always wonder how you are doing since we both go to Dana Farber and Dr Hodi!  My husband is still doing well since TIL in Houston, and Dr Hodi has been so pleased with his response! We want to join your ranks of being a long term Stage 4 warrior living a good life! Thanks for the reminder of the possibilities!  All the best, Valerie (Phil's wife)

        • January 23, 2014 at 1:38 pm
        Phil S
        Participant

        Rocco,  So happy to see your post and your wonderful and encouraging news! You Go Girl!!!  I always wonder how you are doing since we both go to Dana Farber and Dr Hodi!  My husband is still doing well since TIL in Houston, and Dr Hodi has been so pleased with his response! We want to join your ranks of being a long term Stage 4 warrior living a good life! Thanks for the reminder of the possibilities!  All the best, Valerie (Phil's wife)

      • January 23, 2014 at 7:27 am
      POW
      Participant

      That is great news, Rocco! Good for you! You're a "grand old man" in the melanoma arena.

      Thank you for bringing such an upbeat message to your fellow warriors. 

      • January 23, 2014 at 1:32 pm
      mary in Rhode Island
      Participant

      smileyYou GO Girl !!!  Wonderful to read how well you are doing.  I also go to DFCI..same Drs. also.

      Maybe, we will go on the same day sometime.  I am an every month appointment…on  Zelboraf

      for about 26 months.  Pancrease cleared up!! along with other areas.  Much Gratitude here. Best wishes.

      • January 23, 2014 at 1:32 pm
      mary in Rhode Island
      Participant

      smileyYou GO Girl !!!  Wonderful to read how well you are doing.  I also go to DFCI..same Drs. also.

      Maybe, we will go on the same day sometime.  I am an every month appointment…on  Zelboraf

      for about 26 months.  Pancrease cleared up!! along with other areas.  Much Gratitude here. Best wishes.

        • January 24, 2014 at 12:57 am
        Maureen038
        Participant

        Congratulations to you!! Wonderful news!

        Maureen

        • January 24, 2014 at 12:57 am
        Maureen038
        Participant

        Congratulations to you!! Wonderful news!

        Maureen

        • January 24, 2014 at 12:57 am
        Maureen038
        Participant

        Congratulations to you!! Wonderful news!

        Maureen

      • January 23, 2014 at 1:32 pm
      mary in Rhode Island
      Participant

      smileyYou GO Girl !!!  Wonderful to read how well you are doing.  I also go to DFCI..same Drs. also.

      Maybe, we will go on the same day sometime.  I am an every month appointment…on  Zelboraf

      for about 26 months.  Pancrease cleared up!! along with other areas.  Much Gratitude here. Best wishes.

      • January 24, 2014 at 1:42 am
      Tina D
      Participant

      AWESOME!!  laugh

      Congratulations~

      Tina

      • January 24, 2014 at 1:42 am
      Tina D
      Participant

      AWESOME!!  laugh

      Congratulations~

      Tina

      • January 24, 2014 at 1:42 am
      Tina D
      Participant

      AWESOME!!  laugh

      Congratulations~

      Tina

      • January 24, 2014 at 4:16 pm
      LibbyinVA
      Participant

      What WONDERFUL news. Thanks so much for sharing. Everyone here loves to hear great news…gives so much hope! I am super happy for you!

      – LibbyinVA (IIIb, NED since 2006)

      • January 24, 2014 at 4:16 pm
      LibbyinVA
      Participant

      What WONDERFUL news. Thanks so much for sharing. Everyone here loves to hear great news…gives so much hope! I am super happy for you!

      – LibbyinVA (IIIb, NED since 2006)

      • January 24, 2014 at 4:16 pm
      LibbyinVA
      Participant

      What WONDERFUL news. Thanks so much for sharing. Everyone here loves to hear great news…gives so much hope! I am super happy for you!

      – LibbyinVA (IIIb, NED since 2006)

      • January 26, 2014 at 2:41 am
      KRob
      Participant

      Hi Rocco!

      So great to see you post here!

      Like King, I too am a member of the class of '05 (diagnosed a IV in Feb).

      Likewise, I am beyond fortunate to remain NED since 2007.

      It's good to know you're still out there (as well as the others).

      Blessings for continued NED!

       

      Karen

      • January 26, 2014 at 2:41 am
      KRob
      Participant

      Hi Rocco!

      So great to see you post here!

      Like King, I too am a member of the class of '05 (diagnosed a IV in Feb).

      Likewise, I am beyond fortunate to remain NED since 2007.

      It's good to know you're still out there (as well as the others).

      Blessings for continued NED!

       

      Karen

      • January 26, 2014 at 2:41 am
      KRob
      Participant

      Hi Rocco!

      So great to see you post here!

      Like King, I too am a member of the class of '05 (diagnosed a IV in Feb).

      Likewise, I am beyond fortunate to remain NED since 2007.

      It's good to know you're still out there (as well as the others).

      Blessings for continued NED!

       

      Karen

      • January 26, 2014 at 3:31 am
      JerryfromFauq
      Participant

      Rocco, Love those results, I'm still not NED, but still not DEAD.  (Neither is Charlie!) Reckon I'm the "Newcomer" here, only diagnosed in 2006!

      • January 26, 2014 at 3:31 am
      JerryfromFauq
      Participant

      Rocco, Love those results, I'm still not NED, but still not DEAD.  (Neither is Charlie!) Reckon I'm the "Newcomer" here, only diagnosed in 2006!

      • January 26, 2014 at 3:31 am
      JerryfromFauq
      Participant

      Rocco, Love those results, I'm still not NED, but still not DEAD.  (Neither is Charlie!) Reckon I'm the "Newcomer" here, only diagnosed in 2006!

Viewing 23 reply threads
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