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Starting Chemo
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Starting Chemo

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  • Post
    • February 8, 2013 at 12:57 am
    Dgentz
    Participant

      Haven't been posting much, but I have visited a lot! I finished my courses (x4) of IPI, went off Z and unfortunately, have had signifcant growth.  After much pain and additional mets, I'm starting Chemo next week. sad

      Words of wisdom appreciated! 

      Haven't been posting much, but I have visited a lot! I finished my courses (x4) of IPI, went off Z and unfortunately, have had signifcant growth.  After much pain and additional mets, I'm starting Chemo next week. sad

      Words of wisdom appreciated! 

    Viewing 8 reply threads
    • Replies
        • February 8, 2013 at 1:11 am
        madeclaire
        Participant

          I know that this disease is different for everyone, but after 3 courses of IPI with no improvement and with significant tumor growth, I began chemo (dacarbazine).  Scans after two treatments showed a 40% reduction in large liver tumors and the disappearance of lesions in the lungs.  I continue with the chemo which has minimal side effects.  I believe the IPI has helped the chemo to work and this is what I hope for you.  Best of luck!  M

            • February 8, 2013 at 8:51 pm
            Dgentz
            Participant

              Thank you – your words are very encouraging!! Good luck to you as well. 

              • February 8, 2013 at 8:51 pm
              Dgentz
              Participant

                Thank you – your words are very encouraging!! Good luck to you as well. 

                • February 8, 2013 at 8:51 pm
                Dgentz
                Participant

                  Thank you – your words are very encouraging!! Good luck to you as well. 

                • February 8, 2013 at 1:11 am
                madeclaire
                Participant

                  I know that this disease is different for everyone, but after 3 courses of IPI with no improvement and with significant tumor growth, I began chemo (dacarbazine).  Scans after two treatments showed a 40% reduction in large liver tumors and the disappearance of lesions in the lungs.  I continue with the chemo which has minimal side effects.  I believe the IPI has helped the chemo to work and this is what I hope for you.  Best of luck!  M

                  • February 8, 2013 at 1:11 am
                  madeclaire
                  Participant

                    I know that this disease is different for everyone, but after 3 courses of IPI with no improvement and with significant tumor growth, I began chemo (dacarbazine).  Scans after two treatments showed a 40% reduction in large liver tumors and the disappearance of lesions in the lungs.  I continue with the chemo which has minimal side effects.  I believe the IPI has helped the chemo to work and this is what I hope for you.  Best of luck!  M

                    • February 11, 2013 at 3:01 am
                    awillett1991
                    Participant
                      I went off Z, started Ipi, had significant growth in 1 cardiac met, and 1 new and 1 regrown brain met. Ipi seemed to invigorate them. Ugh!!

                      I am back on Z and finished my Ipi on time, had significant liver problems but all back to normal now. I seem to be responding to something – Ipi/Zel/SRS ?? Hard to say… Wishing a response for you too.

                      No wisdom, just know you are doing the best you can and keep fighting! There is a good new webinar on the MIF website explaining immunotherapy and how delayed some Ipi responses can be – – 24 wks! It gave me hope.

                      • February 11, 2013 at 3:01 am
                      awillett1991
                      Participant
                        I went off Z, started Ipi, had significant growth in 1 cardiac met, and 1 new and 1 regrown brain met. Ipi seemed to invigorate them. Ugh!!

                        I am back on Z and finished my Ipi on time, had significant liver problems but all back to normal now. I seem to be responding to something – Ipi/Zel/SRS ?? Hard to say… Wishing a response for you too.

                        No wisdom, just know you are doing the best you can and keep fighting! There is a good new webinar on the MIF website explaining immunotherapy and how delayed some Ipi responses can be – – 24 wks! It gave me hope.

                        • February 11, 2013 at 3:01 am
                        awillett1991
                        Participant
                          I went off Z, started Ipi, had significant growth in 1 cardiac met, and 1 new and 1 regrown brain met. Ipi seemed to invigorate them. Ugh!!

                          I am back on Z and finished my Ipi on time, had significant liver problems but all back to normal now. I seem to be responding to something – Ipi/Zel/SRS ?? Hard to say… Wishing a response for you too.

                          No wisdom, just know you are doing the best you can and keep fighting! There is a good new webinar on the MIF website explaining immunotherapy and how delayed some Ipi responses can be – – 24 wks! It gave me hope.

                          • February 12, 2013 at 2:55 am
                          Erinlisay38
                          Participant
                            I also did Ippi finished in October tumors all grew and now have new ones … I start Pd1 trial tomorrow … Fingers crossed
                            • February 12, 2013 at 2:55 am
                            Erinlisay38
                            Participant
                              I also did Ippi finished in October tumors all grew and now have new ones … I start Pd1 trial tomorrow … Fingers crossed
                              • February 12, 2013 at 2:55 am
                              Erinlisay38
                              Participant
                                I also did Ippi finished in October tumors all grew and now have new ones … I start Pd1 trial tomorrow … Fingers crossed
                            Viewing 8 reply threads
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