The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Stage IV – Update – Good Reports

Forums General Melanoma Community Stage IV – Update – Good Reports

  • Post
    Patina
    Participant

      Hi Everyone,

      As many of you know, my Mom was diagnosed with Stage IV melanoma in  November of 2013.  And 2 years ago today we found out that the radiologist completely missed 3 brain mets.  Even with this and everything that's happen she has had a terrific outlook due to how quickly she responded to the treatments AND all the terrific doctors at USC in Los Angeles.  

      We were there again yesterday and after her 4th infusion of Keytruda and the new CT scans and MRI of her brain we are thrilled that things are stable or still shrinking AND there is nothing new.  

       

      HISTORY:

      She was misdiagnosed for almost a month after getting the news that she was Stage IV. After seeing 3 melanoma specialists she was also diagnosed with brain mets too. She had gamma knife radiation for 8 or 9 tumors (1 was missed) December 9, 2013 and started Yervoy 4 days later.  

      Her body "loved" Yervoy as far as the cancer went, but she got colitis pretty bad and only had 3 infusions. She did end up having 17 more brain mets found in April of 2014 and we switched the treating neuro-oncologist and radiation oncologist who had been treating her. (They were sub-par as far as I am concerned and we were lucky my Mom did not have any permanent or detrimental problems due to thier treatment or advice.)  

      My Mom had just over a year of very good scans and ended up with a reoccurrence and needed a craniotomy in June of this year and another round of gamma knife radiation for 1 new brain met in August.  

      She started Keytruda in late August of this year and the tumors in her trunk are still getting smaller or are stable. All about the size now of a grain of rice.  We are hoping that the Keytruda can boost her immune system enough so that she does not have any further issues with brain mets.

       

    Viewing 11 reply threads
    • Replies
        Scooby123
        Participant

          Hi Patina,

          I am so pleased for your mum, she has been through the mill and glad to hear she is reponding to Keydruda. I wish you all well and tell your mum to keep up the good work.

          Take care

          scooby

          Scooby123
          Participant

            Hi Patina,

            I am so pleased for your mum, she has been through the mill and glad to hear she is reponding to Keydruda. I wish you all well and tell your mum to keep up the good work.

            Take care

            scooby

            Scooby123
            Participant

              Hi Patina,

              I am so pleased for your mum, she has been through the mill and glad to hear she is reponding to Keydruda. I wish you all well and tell your mum to keep up the good work.

              Take care

              scooby

              DZnDef
              Participant

                Great news, Patina!  So glad to hear its all heading in the right direction.  I'm hoping that Keytruda is the last treatment she will ever need for this @#$#@%% melanoma!

                DZnDef
                Participant

                  Great news, Patina!  So glad to hear its all heading in the right direction.  I'm hoping that Keytruda is the last treatment she will ever need for this @#$#@%% melanoma!

                  DZnDef
                  Participant

                    Great news, Patina!  So glad to hear its all heading in the right direction.  I'm hoping that Keytruda is the last treatment she will ever need for this @#$#@%% melanoma!

                    Jahendry12
                    Participant

                      Love to hear good news.  Thanks for sharing.

                      Jahendry12
                      Participant

                        Love to hear good news.  Thanks for sharing.

                        Jahendry12
                        Participant

                          Love to hear good news.  Thanks for sharing.

                          BrianP
                          Participant

                            Great news Patina.  Very happy for you and your Mom.

                            BrianP
                            Participant

                              Great news Patina.  Very happy for you and your Mom.

                              BrianP
                              Participant

                                Great news Patina.  Very happy for you and your Mom.

                            Viewing 11 reply threads
                            • You must be logged in to reply to this topic.
                            About the MRF Patient Forum

                            The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                            The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                            Popular Topics