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Stage 3C – NED 11 years today

Forums General Melanoma Community Stage 3C – NED 11 years today

  • Post
    DebbieH
    Participant

      I'm posting this to maybe give some hope to those who are recently diagnosed. 

      I'm posting this to maybe give some hope to those who are recently diagnosed. 

      11+ years ago I found that the tiny stage 1 "lucky to have caught it so early" melanoma had returned to my lymphnodes and I was now stage 3C.  I wasn't hearing much hope from my doctors or where I went for a second opinion.  They were wheeling me into surgery at Univ. of Michigan right after the second tower was falling in NYC so I missed most of what happened that day.  When I woke up I was told I had 3 positive nodes and one had matted and had extracapsular extensions going into a muscle in my back so that was also removed.  My surgeon said he just kept going until he didn't see any more black.  I wanted to do a clinical trial but a brain mri showed "something" there so I didn't qualify and so I did interferon and got through 9 months before I had to quit.  U of M won't do scans (at least not then, not sure if that changed) after stage 3 unless you have symptoms so I had no scanxiety and I think it was easier for me to get on with my life once the side effects of the interferon were gone.  By the way, while it was no picnic, I found it doable and I'm glad I did. 

      In the past 11 years I've had 4 more grandchildren, acquired two more by our daughter's marriage, our daughter got married and is very happy and life is very good. 11 years ago I would never have imagined this.  There are plenty more like me on this bulletin board and if you were recently diagnoised, NEVER FORGET THIS.  I don't know what I would have done without this place and I thank the Pattersons for having the wisdom and compassion to begin this bulletin board in their sister's memory.  Never give up, never think of yourself as the number they all drill into us with their statistics.  Good luck to us all.

      DebbieH, stage IIIC, NED 11 years today after interferon and no scans 

    Viewing 23 reply threads
    • Replies
        Janner
        Participant

          WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

          HAPPY NEDversary!

          Janner

          Janner
          Participant

            WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

            HAPPY NEDversary!

            Janner

            Janner
            Participant

              WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

              HAPPY NEDversary!

              Janner

              JerryfromFauq
              Participant

                Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

                JerryfromFauq
                Participant

                  Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

                  JerryfromFauq
                  Participant

                    Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

                    Ali
                    Participant

                      Love this!  Congrats!!

                      Ali
                      Participant

                        Love this!  Congrats!!

                        Ali
                        Participant

                          Love this!  Congrats!!

                          akls
                          Participant

                            Deb,

                            This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

                            Amy S. in Michigan

                            akls
                            Participant

                              Deb,

                              This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

                              Amy S. in Michigan

                              akls
                              Participant

                                Deb,

                                This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

                                Amy S. in Michigan

                                Linny
                                Participant

                                  Loved reading this! Congratulations!!!!!

                                  Linny
                                  Participant

                                    Loved reading this! Congratulations!!!!!

                                    Linny
                                    Participant

                                      Loved reading this! Congratulations!!!!!

                                      mom3girlsFL
                                      Participant

                                        Hi Debbie,

                                        I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

                                        Thanks for taking the time to post your news and congratulations!

                                        Laurie

                                        mom3girlsFL
                                        Participant

                                          Hi Debbie,

                                          I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

                                          Thanks for taking the time to post your news and congratulations!

                                          Laurie

                                          mom3girlsFL
                                          Participant

                                            Hi Debbie,

                                            I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

                                            Thanks for taking the time to post your news and congratulations!

                                            Laurie

                                            frankMill
                                            Participant

                                              Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

                                              Thanks!

                                              Frank

                                              frankMill
                                              Participant

                                                Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

                                                Thanks!

                                                Frank

                                                frankMill
                                                Participant

                                                  Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

                                                  Thanks!

                                                  Frank

                                                  King
                                                  Participant

                                                    Debbie,

                                                    Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

                                                    Live life to the fullest and enjoy those grandchildren.  Congratulations!

                                                    Stay Strong
                                                    Kathie

                                                    Stage IV 7/05 Liver mets

                                                      NYKaren
                                                      Participant

                                                        Thanks so much for your post, Debbie.

                                                        Enjoy those grandkids!

                                                        karen

                                                        NYKaren
                                                        Participant

                                                          oops, forgot CONGRATULATIONS!!!

                                                          NYKaren
                                                          Participant

                                                            oops, forgot CONGRATULATIONS!!!

                                                            NYKaren
                                                            Participant

                                                              oops, forgot CONGRATULATIONS!!!

                                                              NYKaren
                                                              Participant

                                                                Thanks so much for your post, Debbie.

                                                                Enjoy those grandkids!

                                                                karen

                                                                NYKaren
                                                                Participant

                                                                  Thanks so much for your post, Debbie.

                                                                  Enjoy those grandkids!

                                                                  karen

                                                                King
                                                                Participant

                                                                  Debbie,

                                                                  Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

                                                                  Live life to the fullest and enjoy those grandchildren.  Congratulations!

                                                                  Stay Strong
                                                                  Kathie

                                                                  Stage IV 7/05 Liver mets

                                                                  King
                                                                  Participant

                                                                    Debbie,

                                                                    Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

                                                                    Live life to the fullest and enjoy those grandchildren.  Congratulations!

                                                                    Stay Strong
                                                                    Kathie

                                                                    Stage IV 7/05 Liver mets

                                                                Viewing 23 reply threads
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