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Sharing NED good news – 4,5 years stage IV mel survival
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Sharing NED good news – 4,5 years stage IV mel survival

› Forums › General Melanoma Community › Sharing NED good news – 4,5 years stage IV mel survival

  • Post
    • October 10, 2013 at 9:42 pm
    beatricefromPARIS
    Participant

      Hello everyone,

      Although very sad to hear the news about Dian from Spokane, I just want to share some good ones, knowing how the good stories of other people have been important to me at crisis points (bad scans) of this long journey : 

      I am on Zelboraf since March 2012, at half dose since May 2012. This is my 7th line of  treatment. Zel worked well but  I had surgery in May 2013 to remove three resisting mel nodules hidden in tummy fat. NED afterwards.

      PET-scan and brain MRI last week :  totally NED.

      Even though, oncs won't allow to stop the medication. Apparently the risk of recurrence is still there.
      Zel side effects go on, but are bearable ….no choice, I guess!

      Beatrice, stage IV diagnosed Feb 2009.

       

    Viewing 17 reply threads
    • Replies
        • October 10, 2013 at 9:57 pm
        JoshF
        Participant
          Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!

          PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!

          • October 10, 2013 at 9:57 pm
          JoshF
          Participant
            Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!

            PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!

            • October 10, 2013 at 9:57 pm
            JoshF
            Participant
              Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!

              PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!

              • October 11, 2013 at 1:01 am
              BrianP
              Participant

                Thanks for taking the time to post your great news Beatrice.  You are right, with the inevitable sad news we occasionally hear on hear like the passing of Dian, post like your's really go a long way to helping morale.

                Brian

                • October 11, 2013 at 1:01 am
                BrianP
                Participant

                  Thanks for taking the time to post your great news Beatrice.  You are right, with the inevitable sad news we occasionally hear on hear like the passing of Dian, post like your's really go a long way to helping morale.

                  Brian

                  • October 11, 2013 at 1:01 am
                  BrianP
                  Participant

                    Thanks for taking the time to post your great news Beatrice.  You are right, with the inevitable sad news we occasionally hear on hear like the passing of Dian, post like your's really go a long way to helping morale.

                    Brian

                    • October 11, 2013 at 2:13 am
                    Tina D
                    Participant

                      I am so glad you posted this good news. So exciting to have clean scans…congratulations! I am sure you are still celebrating the good news. 🙂

                      Tina

                      • October 11, 2013 at 2:13 am
                      Tina D
                      Participant

                        I am so glad you posted this good news. So exciting to have clean scans…congratulations! I am sure you are still celebrating the good news. 🙂

                        Tina

                        • October 11, 2013 at 2:13 am
                        Tina D
                        Participant

                          I am so glad you posted this good news. So exciting to have clean scans…congratulations! I am sure you are still celebrating the good news. 🙂

                          Tina

                          • October 12, 2013 at 3:24 pm
                          awillett1991
                          Participant
                            Congratulations! Wonderful to hear Beatrice!
                            • October 12, 2013 at 3:24 pm
                            awillett1991
                            Participant
                              Congratulations! Wonderful to hear Beatrice!
                              • October 12, 2013 at 3:24 pm
                              awillett1991
                              Participant
                                Congratulations! Wonderful to hear Beatrice!
                                • October 14, 2013 at 7:43 pm
                                Owl
                                Participant

                                  Dear Beatrice,

                                  thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.

                                  Wish that things continue to be so good for everyone here on this board!

                                  All the best, Jenny

                                  • October 14, 2013 at 7:43 pm
                                  Owl
                                  Participant

                                    Dear Beatrice,

                                    thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.

                                    Wish that things continue to be so good for everyone here on this board!

                                    All the best, Jenny

                                    • October 14, 2013 at 7:43 pm
                                    Owl
                                    Participant

                                      Dear Beatrice,

                                      thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.

                                      Wish that things continue to be so good for everyone here on this board!

                                      All the best, Jenny

                                      • October 15, 2013 at 1:22 am
                                      DebbieH
                                      Participant

                                        Fabulous news Beatrice – so good to see you here again – keep on keeping on as they say!

                                        DebbieH, stage 3C, NED over 12 years after inf.

                                        • October 15, 2013 at 1:22 am
                                        DebbieH
                                        Participant

                                          Fabulous news Beatrice – so good to see you here again – keep on keeping on as they say!

                                          DebbieH, stage 3C, NED over 12 years after inf.

                                          • October 15, 2013 at 1:22 am
                                          DebbieH
                                          Participant

                                            Fabulous news Beatrice – so good to see you here again – keep on keeping on as they say!

                                            DebbieH, stage 3C, NED over 12 years after inf.

                                        Viewing 17 reply threads
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