Scanxiety – here we go again – Melanoma Research Foundation

This topic has 32 replies, 11 voices, and was last updated 12 years, 10 months ago by KatyWI.

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- June 15, 2011 at 12:36 am
- Quote
dawn dion
Participant
Okay folks here we go again – I am off to Moffitt on Thursday for my second set of scans since beginning the ride on the BRAF/MEK train. I thought I had this under control this time around but the closer Thursday gets the more I am once again ready to puke. I don't know which is worse – Melanoma or Scans.

To all of my friends out there on the train with me, I know that some of you are in the same boat with me this week and I am sending out lots of positive vibes and tons of cyber hugs for all the best.

Okay folks here we go again – I am off to Moffitt on Thursday for my second set of scans since beginning the ride on the BRAF/MEK train. I thought I had this under control this time around but the closer Thursday gets the more I am once again ready to puke. I don't know which is worse – Melanoma or Scans.

To all of my friends out there on the train with me, I know that some of you are in the same boat with me this week and I am sending out lots of positive vibes and tons of cyber hugs for all the best.

Hugs and Smiles to you all

Dawn

Viewing 17 reply threads

Replies

- - June 15, 2011 at 12:40 am
  - Quote
  nicoli
  Participant
  You've done it before and you can do it again.
  
  I, of course, am already freaking out about my PET in late August, although my brain MRI next week doesn't bother me so much. Weird, huh?
  
  I am praying for you right now, hope that is okay.
  
  Nicki, Stage 3b
  - June 15, 2011 at 12:44 am
    
    Quote
    dawn dion
    Participant
    
    Nicki
    
    I welcome them all – Thank you for your kind words. My MRI doesn't bother me other. I always worry that it is going to stop working.
    
    Hugs and Smiles
    
    Dawn
  - June 15, 2011 at 12:44 am
    
    Quote
    dawn dion
    Participant
    
    Nicki
    
    I welcome them all – Thank you for your kind words. My MRI doesn't bother me other. I always worry that it is going to stop working.
    
    Hugs and Smiles
    
    Dawn
- - June 15, 2011 at 12:40 am
  - Quote
  nicoli
  Participant
  You've done it before and you can do it again.
  
  I, of course, am already freaking out about my PET in late August, although my brain MRI next week doesn't bother me so much. Weird, huh?
  
  I am praying for you right now, hope that is okay.
  
  Nicki, Stage 3b
- - June 15, 2011 at 1:35 am
  - Quote
  EmilyandMike
  Participant
  Hi Dawn..thinking of you. I don’t think scans ever get easier to deal with. They are pure torture for cancer patients and caregivers. Lets just say I take a lot of Ativan during my husbands scans. All my best for great results.
  Emily
- - June 15, 2011 at 1:35 am
  - Quote
  EmilyandMike
  Participant
  Hi Dawn..thinking of you. I don’t think scans ever get easier to deal with. They are pure torture for cancer patients and caregivers. Lets just say I take a lot of Ativan during my husbands scans. All my best for great results.
  Emily
- - June 15, 2011 at 1:36 am
  - Quote
  King
  Participant
  Hi Dawn,
  
  It's so hard to get away from the anxiety at scan time. I will be at Moffitt all day Monday (4CT Scans and MRI of the brain) and then on Wednesday (22nd) for results. If you will be there either of those days, let me know and maybe we can meet up.
  
  Good thoughts and prayers going your way.
  
  Stay Strong
  
  King
  
  Stage IV 7/05 Liver mets
- - June 15, 2011 at 1:36 am
  - Quote
  King
  Participant
  Hi Dawn,
  
  It's so hard to get away from the anxiety at scan time. I will be at Moffitt all day Monday (4CT Scans and MRI of the brain) and then on Wednesday (22nd) for results. If you will be there either of those days, let me know and maybe we can meet up.
  
  Good thoughts and prayers going your way.
  
  Stay Strong
  
  King
  
  Stage IV 7/05 Liver mets
  - June 15, 2011 at 8:23 am
    
    Quote
    dawn dion
    Participant
    
    Awwhh King I wish I was gonna be down there next week just so we could meet. Better yet I have a great idea – all of us on here that go to Moffitt need to go and meet up someplace else and go shopping or something – I get so sick of walking those halls. Lets go have some fun.
  - June 15, 2011 at 8:23 am
    
    Quote
    dawn dion
    Participant
    
    Awwhh King I wish I was gonna be down there next week just so we could meet. Better yet I have a great idea – all of us on here that go to Moffitt need to go and meet up someplace else and go shopping or something – I get so sick of walking those halls. Lets go have some fun.
- - June 15, 2011 at 2:15 am
  - Quote
  BethA in VA
  Participant
  Good luck on Thursday. Scans are never fun, but relax and stay positive. Close your eyes – and put yourself in your favorite place during the scan. Just like taking a mini-vacation!! I will be with you in thoughts and prayers…Beth 3/B
- - June 15, 2011 at 2:15 am
  - Quote
  BethA in VA
  Participant
  Good luck on Thursday. Scans are never fun, but relax and stay positive. Close your eyes – and put yourself in your favorite place during the scan. Just like taking a mini-vacation!! I will be with you in thoughts and prayers…Beth 3/B
- - June 15, 2011 at 5:04 am
  - Quote
  LynnLuc
  Participant
  Hey girl!
  
  I had mine last Wednesday at Moffitt! I am still NED for nearing 15 months now! I did have a new event tho…allergic to the contrast medium dye they use in the CT…I can drink the Gatorade and I can do the dye for the MRI…mega crazy itchy itches; my feet and hands I wanted to tear them off!! I did start to take my clothes off lol…I think I had the reaction just as I got off the CT scan table and walked out of the CT room. BP jumped to over 200 and heart raced…was crazy. They pushed a few Benydral syringes in my access line ( used for the blood work and dye).Now I have to get premedicated with steroids and Benydral before my CTs.
  
  You'll do fine! Tell them to get some better music!!
  - June 15, 2011 at 5:05 am
    
    Quote
    LynnLuc
    Participant
    
    PS I have had dozens of CTs etc etc and never a reaction before….
  - June 15, 2011 at 5:05 am
    
    Quote
    LynnLuc
    Participant
    
    PS I have had dozens of CTs etc etc and never a reaction before….
  - June 15, 2011 at 8:20 am
    
    Quote
    dawn dion
    Participant
    
    Okay that is wild – hope I don't ever itch! YUK!!! Amen to the music part – do they really think you can hear it over all the noise thar MRI makes anyway. Thanks for the good thoughts – I will get the CT results tomorrow and they will call me on Friday to let me know that I still have a brain so I will post when I know.
    
    Hugs and Smiles
    
    Dawn
  - June 15, 2011 at 8:20 am
    
    Quote
    dawn dion
    Participant
    
    Okay that is wild – hope I don't ever itch! YUK!!! Amen to the music part – do they really think you can hear it over all the noise thar MRI makes anyway. Thanks for the good thoughts – I will get the CT results tomorrow and they will call me on Friday to let me know that I still have a brain so I will post when I know.
    
    Hugs and Smiles
    
    Dawn
- - June 15, 2011 at 5:04 am
  - Quote
  LynnLuc
  Participant
  Hey girl!
  
  I had mine last Wednesday at Moffitt! I am still NED for nearing 15 months now! I did have a new event tho…allergic to the contrast medium dye they use in the CT…I can drink the Gatorade and I can do the dye for the MRI…mega crazy itchy itches; my feet and hands I wanted to tear them off!! I did start to take my clothes off lol…I think I had the reaction just as I got off the CT scan table and walked out of the CT room. BP jumped to over 200 and heart raced…was crazy. They pushed a few Benydral syringes in my access line ( used for the blood work and dye).Now I have to get premedicated with steroids and Benydral before my CTs.
  
  You'll do fine! Tell them to get some better music!!
- - June 15, 2011 at 6:35 am
  - Quote
  Harry in Fair Oaks
  Participant
  Hi Dawn,
  
  My best wishes to you! I'm having my 8-week BRAF/MEK scans on July 5th. You can bet I'll be anxious then. But meanwhile, I've an Alaska cruise to endure starting this Friday. I'm sure the desserts will be scary enough to make me forget this braf schmef thing!
  
  – Harry
  - June 15, 2011 at 8:30 am
    
    Quote
    dawn dion
    Participant
    
    Harry
    
    i have been thinkin about you!! I hope things are going well with the BRAF – Have a great time on your cruise – have some dessert for me and report back about all of the awesome things you get to see up there – that is one thing I have always wanted to do.
    
    Talk to you soon my friend
    
    Hugs and Smiles
    
    Dawn
  - June 15, 2011 at 8:30 am
    
    Quote
    dawn dion
    Participant
    
    Harry
    
    i have been thinkin about you!! I hope things are going well with the BRAF – Have a great time on your cruise – have some dessert for me and report back about all of the awesome things you get to see up there – that is one thing I have always wanted to do.
    
    Talk to you soon my friend
    
    Hugs and Smiles
    
    Dawn
- - June 15, 2011 at 6:35 am
  - Quote
  Harry in Fair Oaks
  Participant
  Hi Dawn,
  
  My best wishes to you! I'm having my 8-week BRAF/MEK scans on July 5th. You can bet I'll be anxious then. But meanwhile, I've an Alaska cruise to endure starting this Friday. I'm sure the desserts will be scary enough to make me forget this braf schmef thing!
  
  – Harry
- - June 15, 2011 at 8:10 pm
  - Quote
  deffk1105
  Participant
  Good luck!! I'll be thinking of you 🙂
  
  – Kate (Wisconsin)
  - June 15, 2011 at 8:27 pm
    
    Quote
    dawn dion
    Participant
    
    Hey there – How are you? I have been thinking about you. Please let me know how you are. When are you back in Tampa?
  - June 15, 2011 at 8:27 pm
    
    Quote
    dawn dion
    Participant
    
    Hey there – How are you? I have been thinking about you. Please let me know how you are. When are you back in Tampa?
- - June 15, 2011 at 8:10 pm
  - Quote
  deffk1105
  Participant
  Good luck!! I'll be thinking of you 🙂
  
  – Kate (Wisconsin)
- - June 16, 2011 at 10:59 am
  - Quote
  Melanoma Mom
  Participant
  Our 15 year old son has his CT today (Thursday) and PET tomorrow, results next Wednesday, the 22nd. Shooting for 6 months NED! Halfway through the year of Interferon!
- - June 16, 2011 at 10:59 am
  - Quote
  Melanoma Mom
  Participant
  Our 15 year old son has his CT today (Thursday) and PET tomorrow, results next Wednesday, the 22nd. Shooting for 6 months NED! Halfway through the year of Interferon!
- - June 16, 2011 at 11:25 am
  - Quote
  NicOz
  Participant
  I've just had my second round of BRAF scans, and am happy to say I had no scanxiety at all. It wasn't that I expected good results (one does not start expecting good results because they had them once in 3 years!), I just went with "If it's working, great. If not, it's out of my control" Fortunately, it continues to work it's magic. For the first time since diagnosis, I'm stable.
  - June 16, 2011 at 1:25 pm
    
    Quote
    KatyWI
    Participant
    
    Woo hoo! Happy to hear it Nic!
    
    KatyWI
  - June 16, 2011 at 1:25 pm
    
    Quote
    KatyWI
    Participant
    
    Woo hoo! Happy to hear it Nic!
    
    KatyWI
- - June 16, 2011 at 11:25 am
  - Quote
  NicOz
  Participant
  I've just had my second round of BRAF scans, and am happy to say I had no scanxiety at all. It wasn't that I expected good results (one does not start expecting good results because they had them once in 3 years!), I just went with "If it's working, great. If not, it's out of my control" Fortunately, it continues to work it's magic. For the first time since diagnosis, I'm stable.