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SCANXIETY

› Forums › General Melanoma Community › SCANXIETY

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      • January 28, 2014 at 6:05 pm
      Linny
      Participant

        That was timely. I have my scan tomorrow.

        All I keep thinking is that by this time tomorrow I will know the results. And, keep praying that they will be good.

        • January 28, 2014 at 6:05 pm
        Linny
        Participant

          That was timely. I have my scan tomorrow.

          All I keep thinking is that by this time tomorrow I will know the results. And, keep praying that they will be good.

            • January 28, 2014 at 7:06 pm
            Jahendry12
            Participant

              Linny – Saying a prayer for you today.  Hoping for good results tomorrow.

              • January 31, 2014 at 4:19 pm
              Linny
              Participant

                Thank you for the prayer. It must have worked because I am still NED.

                Hope all is well with you.

                • January 31, 2014 at 4:19 pm
                Linny
                Participant

                  Thank you for the prayer. It must have worked because I am still NED.

                  Hope all is well with you.

                  • January 31, 2014 at 6:51 pm
                  Jahendry12
                  Participant

                    Awesome!!!!  Great news!  So happy for you.  Go out and celebrate 🙂

                    • January 31, 2014 at 6:51 pm
                    Jahendry12
                    Participant

                      Awesome!!!!  Great news!  So happy for you.  Go out and celebrate 🙂

                      • January 31, 2014 at 6:51 pm
                      Jahendry12
                      Participant

                        Awesome!!!!  Great news!  So happy for you.  Go out and celebrate 🙂

                        • January 31, 2014 at 4:19 pm
                        Linny
                        Participant

                          Thank you for the prayer. It must have worked because I am still NED.

                          Hope all is well with you.

                          • January 28, 2014 at 7:06 pm
                          Jahendry12
                          Participant

                            Linny – Saying a prayer for you today.  Hoping for good results tomorrow.

                            • January 28, 2014 at 7:06 pm
                            Jahendry12
                            Participant

                              Linny – Saying a prayer for you today.  Hoping for good results tomorrow.

                            • January 28, 2014 at 6:05 pm
                            Linny
                            Participant

                              That was timely. I have my scan tomorrow.

                              All I keep thinking is that by this time tomorrow I will know the results. And, keep praying that they will be good.

                              • January 28, 2014 at 8:08 pm
                              LibbyinVA
                              Participant

                                Thanks for sharing this article, Julie. It was a good read and "scanxiety" is something we know too well. I am approaching my 8th year of being NED, which my insurance company decided is too far out to continue paying for scans.

                                Frankly, I know some of us with melanoma feel like ticking time bombs…I certainly did. But now there is a certain freedom I feel from no longer having to live my life from scan to scan. Initially I was most unhappy with the decision. As time passed, I found myself living and enjoying life again instead of counting down the time for my next set of scans. 

                                Please know that I do not mean we should ever take melanoma lightly. Scanxiety was so stressful for both me and my family. So, I completely understand how you feel.

                                I hope clean scans become the norm for your husband and that one day he will be NED for so long that you can stop living your lives in monthly, quarterly, yearly, etc. segments. In the meantime, this site is the place to come for support and perhaps some hope from survivors like me, and there are many of us. This site, actually the wonderful people who use it, were my lifeline for a long time. I needed lots of support and now I hope I can give some.

                                All the best to you and your husband!

                                -Libby (IIIb since 2006)

                                • January 28, 2014 at 8:08 pm
                                LibbyinVA
                                Participant

                                  Thanks for sharing this article, Julie. It was a good read and "scanxiety" is something we know too well. I am approaching my 8th year of being NED, which my insurance company decided is too far out to continue paying for scans.

                                  Frankly, I know some of us with melanoma feel like ticking time bombs…I certainly did. But now there is a certain freedom I feel from no longer having to live my life from scan to scan. Initially I was most unhappy with the decision. As time passed, I found myself living and enjoying life again instead of counting down the time for my next set of scans. 

                                  Please know that I do not mean we should ever take melanoma lightly. Scanxiety was so stressful for both me and my family. So, I completely understand how you feel.

                                  I hope clean scans become the norm for your husband and that one day he will be NED for so long that you can stop living your lives in monthly, quarterly, yearly, etc. segments. In the meantime, this site is the place to come for support and perhaps some hope from survivors like me, and there are many of us. This site, actually the wonderful people who use it, were my lifeline for a long time. I needed lots of support and now I hope I can give some.

                                  All the best to you and your husband!

                                  -Libby (IIIb since 2006)

                                  • January 28, 2014 at 8:08 pm
                                  LibbyinVA
                                  Participant

                                    Thanks for sharing this article, Julie. It was a good read and "scanxiety" is something we know too well. I am approaching my 8th year of being NED, which my insurance company decided is too far out to continue paying for scans.

                                    Frankly, I know some of us with melanoma feel like ticking time bombs…I certainly did. But now there is a certain freedom I feel from no longer having to live my life from scan to scan. Initially I was most unhappy with the decision. As time passed, I found myself living and enjoying life again instead of counting down the time for my next set of scans. 

                                    Please know that I do not mean we should ever take melanoma lightly. Scanxiety was so stressful for both me and my family. So, I completely understand how you feel.

                                    I hope clean scans become the norm for your husband and that one day he will be NED for so long that you can stop living your lives in monthly, quarterly, yearly, etc. segments. In the meantime, this site is the place to come for support and perhaps some hope from survivors like me, and there are many of us. This site, actually the wonderful people who use it, were my lifeline for a long time. I needed lots of support and now I hope I can give some.

                                    All the best to you and your husband!

                                    -Libby (IIIb since 2006)

                                      • January 28, 2014 at 11:28 pm
                                      Jahendry12
                                      Participant

                                        Thanks for the response Libby.  So glad you are so far out and still NED – gives the rest of us alot of hope!

                                        I have found this site to be very helpful and have learned alot over the past couple of months.

                                        Here's the many many more years NED 🙂
                                         

                                        Julie

                                        • January 28, 2014 at 11:28 pm
                                        Jahendry12
                                        Participant

                                          Thanks for the response Libby.  So glad you are so far out and still NED – gives the rest of us alot of hope!

                                          I have found this site to be very helpful and have learned alot over the past couple of months.

                                          Here's the many many more years NED 🙂
                                           

                                          Julie

                                          • January 28, 2014 at 11:28 pm
                                          Jahendry12
                                          Participant

                                            Thanks for the response Libby.  So glad you are so far out and still NED – gives the rest of us alot of hope!

                                            I have found this site to be very helpful and have learned alot over the past couple of months.

                                            Here's the many many more years NED 🙂
                                             

                                            Julie

                                            • January 31, 2014 at 4:52 pm
                                            LibbyinVA
                                            Participant

                                              Thanks, Julie…wishing you the same!

                                              Libby

                                              • January 31, 2014 at 4:52 pm
                                              LibbyinVA
                                              Participant

                                                Thanks, Julie…wishing you the same!

                                                Libby

                                                • January 31, 2014 at 4:52 pm
                                                LibbyinVA
                                                Participant

                                                  Thanks, Julie…wishing you the same!

                                                  Libby

                                                • January 28, 2014 at 9:32 pm
                                                kpcollins31
                                                Participant
                                                  I will be in this 3 month cycle shortly after my surgery next week and it will not be fun. Living life on a 3-month cycle will be tough… I never worried about scans previously, but now that I am stage 4 they will have broader implications. I guess it is the new “normal.”

                                                  Kevin

                                                  • January 28, 2014 at 9:32 pm
                                                  kpcollins31
                                                  Participant
                                                    I will be in this 3 month cycle shortly after my surgery next week and it will not be fun. Living life on a 3-month cycle will be tough… I never worried about scans previously, but now that I am stage 4 they will have broader implications. I guess it is the new “normal.”

                                                    Kevin

                                                      • January 28, 2014 at 10:40 pm
                                                      Jahendry12
                                                      Participant

                                                        Kevin – I totally understand.  After a scan, the next scan is never far from our minds but we manage to live lives as normal as possible and go through our day to day activities.  About a week before the scan is when we both start thinking about it more.  On our way to the scan we usually don't talk much.  We both know what the other is thinking.  It's not easy living this way, but I guess I would be worse if we didn't have the scans…always wondering if/when symptoms would start.  Like you said above, it's a new normal.

                                                        I'll be thinking about you next week and hope your surgery goes well. 

                                                        Julie

                                                        • January 28, 2014 at 10:40 pm
                                                        Jahendry12
                                                        Participant

                                                          Kevin – I totally understand.  After a scan, the next scan is never far from our minds but we manage to live lives as normal as possible and go through our day to day activities.  About a week before the scan is when we both start thinking about it more.  On our way to the scan we usually don't talk much.  We both know what the other is thinking.  It's not easy living this way, but I guess I would be worse if we didn't have the scans…always wondering if/when symptoms would start.  Like you said above, it's a new normal.

                                                          I'll be thinking about you next week and hope your surgery goes well. 

                                                          Julie

                                                          • January 28, 2014 at 10:40 pm
                                                          Jahendry12
                                                          Participant

                                                            Kevin – I totally understand.  After a scan, the next scan is never far from our minds but we manage to live lives as normal as possible and go through our day to day activities.  About a week before the scan is when we both start thinking about it more.  On our way to the scan we usually don't talk much.  We both know what the other is thinking.  It's not easy living this way, but I guess I would be worse if we didn't have the scans…always wondering if/when symptoms would start.  Like you said above, it's a new normal.

                                                            I'll be thinking about you next week and hope your surgery goes well. 

                                                            Julie

                                                          • January 28, 2014 at 9:32 pm
                                                          kpcollins31
                                                          Participant
                                                            I will be in this 3 month cycle shortly after my surgery next week and it will not be fun. Living life on a 3-month cycle will be tough… I never worried about scans previously, but now that I am stage 4 they will have broader implications. I guess it is the new “normal.”

                                                            Kevin

                                                            • January 29, 2014 at 12:44 am
                                                            hbecker
                                                            Participant

                                                              Julie,

                                                              I write about scanxiety on my blog every few months!! I read this article by Bruce Feiler before my first blog post about it.

                                                              But not, unfortunately, every three months – the scans my husband just had were 5 long months after the previous ones.The next ones will be May 1, back on our four-month schedule.

                                                              Results were good – NED!!! So, I am sleeping again. And we will cram as much life as we can into the next four months!!

                                                              Please let us know the results. And that goes for you, too, Linny! I'll be thinking of you both.

                                                              ~Hazel

                                                               

                                                               

                                                               

                                                              • January 29, 2014 at 12:44 am
                                                              hbecker
                                                              Participant

                                                                Julie,

                                                                I write about scanxiety on my blog every few months!! I read this article by Bruce Feiler before my first blog post about it.

                                                                But not, unfortunately, every three months – the scans my husband just had were 5 long months after the previous ones.The next ones will be May 1, back on our four-month schedule.

                                                                Results were good – NED!!! So, I am sleeping again. And we will cram as much life as we can into the next four months!!

                                                                Please let us know the results. And that goes for you, too, Linny! I'll be thinking of you both.

                                                                ~Hazel

                                                                 

                                                                 

                                                                 

                                                                • January 29, 2014 at 12:44 am
                                                                hbecker
                                                                Participant

                                                                  Julie,

                                                                  I write about scanxiety on my blog every few months!! I read this article by Bruce Feiler before my first blog post about it.

                                                                  But not, unfortunately, every three months – the scans my husband just had were 5 long months after the previous ones.The next ones will be May 1, back on our four-month schedule.

                                                                  Results were good – NED!!! So, I am sleeping again. And we will cram as much life as we can into the next four months!!

                                                                  Please let us know the results. And that goes for you, too, Linny! I'll be thinking of you both.

                                                                  ~Hazel

                                                                   

                                                                   

                                                                   

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