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  • Post
    Ali
    Participant

      Hi guys, just wanted to share my good news from last week.  Brain MRI remains CLEAR (25 small tumors in there in June, all disapeared by September after one dose of IPI and monthly Temodar).  Two adrenal tumors that we radiated in January are dying off.  One tumor in armpit still growing slowly.  That's it folks!!  We are deciding now what to do with the axillary tumor, most likely radiation as my tumors seem to respond well to that, and there may be some benefit to the immune system treating it that way. 

      Hi guys, just wanted to share my good news from last week.  Brain MRI remains CLEAR (25 small tumors in there in June, all disapeared by September after one dose of IPI and monthly Temodar).  Two adrenal tumors that we radiated in January are dying off.  One tumor in armpit still growing slowly.  That's it folks!!  We are deciding now what to do with the axillary tumor, most likely radiation as my tumors seem to respond well to that, and there may be some benefit to the immune system treating it that way. 

      I am full of gratitude.  I often wonder at how amazing it would be to live like this for many years (is 50 more too much to ask?).  I am seriously just so happy to be alive.  Every day.  

    Viewing 38 reply threads
    • Replies
        Phil S
        Participant
          Ali, So happy for you and your husband and boys, what a relief! I read your blog, you are a walking miracle, so keep up the good immune kicking response! Enjoy each day and have a blessed Spring! Take care, Valerie (Phil’s wife)
          Phil S
          Participant
            Ali, So happy for you and your husband and boys, what a relief! I read your blog, you are a walking miracle, so keep up the good immune kicking response! Enjoy each day and have a blessed Spring! Take care, Valerie (Phil’s wife)
            Phil S
            Participant
              Ali, So happy for you and your husband and boys, what a relief! I read your blog, you are a walking miracle, so keep up the good immune kicking response! Enjoy each day and have a blessed Spring! Take care, Valerie (Phil’s wife)
              Linny
              Participant

                It took me a second or two to recognize to figure out which Ali this was. You changed your photo! I like it very much.

                It's always great to hear good news, and when it comes from someone who's had as hard a battle as you've had, it's FANTASTIC!!!! Let's hope that the radiation zaps that axillary tumor for good and that you'll be hanging out with NED shortly and for a very long time.

                Linny
                Participant

                  It took me a second or two to recognize to figure out which Ali this was. You changed your photo! I like it very much.

                  It's always great to hear good news, and when it comes from someone who's had as hard a battle as you've had, it's FANTASTIC!!!! Let's hope that the radiation zaps that axillary tumor for good and that you'll be hanging out with NED shortly and for a very long time.

                  Linny
                  Participant

                    It took me a second or two to recognize to figure out which Ali this was. You changed your photo! I like it very much.

                    It's always great to hear good news, and when it comes from someone who's had as hard a battle as you've had, it's FANTASTIC!!!! Let's hope that the radiation zaps that axillary tumor for good and that you'll be hanging out with NED shortly and for a very long time.

                    awillett1991
                    Participant
                      Ali – such wonderful news to share about never, ever giving up! Anything is possible with God!

                      Enjoy your family!

                      All the best,
                      Amy

                      awillett1991
                      Participant
                        Ali – such wonderful news to share about never, ever giving up! Anything is possible with God!

                        Enjoy your family!

                        All the best,
                        Amy

                        awillett1991
                        Participant
                          Ali – such wonderful news to share about never, ever giving up! Anything is possible with God!

                          Enjoy your family!

                          All the best,
                          Amy

                          vicuk
                          Participant

                            Absolutely brilliant news. Chuffed to bits for you.

                            vicuk
                            Participant

                              Absolutely brilliant news. Chuffed to bits for you.

                              vicuk
                              Participant

                                Absolutely brilliant news. Chuffed to bits for you.

                                Tina D
                                Participant

                                  Ali,

                                  Incredibly great news ๐Ÿ™‚   . I am really rejoicing with you right now!!! Every day IS such a gift, isn't it? Thrilled for you and your family to be getting this wonderful report. YAY!!

                                  Tina

                                  Tina D
                                  Participant

                                    Ali,

                                    Incredibly great news ๐Ÿ™‚   . I am really rejoicing with you right now!!! Every day IS such a gift, isn't it? Thrilled for you and your family to be getting this wonderful report. YAY!!

                                    Tina

                                    Tina D
                                    Participant

                                      Ali,

                                      Incredibly great news ๐Ÿ™‚   . I am really rejoicing with you right now!!! Every day IS such a gift, isn't it? Thrilled for you and your family to be getting this wonderful report. YAY!!

                                      Tina

                                        NYKaren
                                        Participant
                                          Ali, so very thrilled for you. Fifty years sounds good to me!
                                          Warmly,
                                          Karen
                                          NYKaren
                                          Participant
                                            Ali, so very thrilled for you. Fifty years sounds good to me!
                                            Warmly,
                                            Karen
                                            NYKaren
                                            Participant
                                              Ali, so very thrilled for you. Fifty years sounds good to me!
                                              Warmly,
                                              Karen
                                            Brendan
                                            Participant

                                              Ali,

                                              Great news!  Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.

                                              God bless,

                                              Brendan

                                              Brendan
                                              Participant

                                                Ali,

                                                Great news!  Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.

                                                God bless,

                                                Brendan

                                                Brendan
                                                Participant

                                                  Ali,

                                                  Great news!  Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.

                                                  God bless,

                                                  Brendan

                                                  Brendan
                                                  Participant

                                                     

                                                    Ali,
                                                     
                                                    Great news! Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.
                                                     
                                                    God bless,
                                                    Brendan
                                                    Brendan
                                                    Participant

                                                       

                                                      Ali,
                                                       
                                                      Great news! Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.
                                                       
                                                      God bless,
                                                      Brendan
                                                      Brendan
                                                      Participant

                                                         

                                                        Ali,
                                                         
                                                        Great news! Thanks for sharing.  Enjoy your family and good luck with the rest of your treatment.
                                                         
                                                        God bless,
                                                        Brendan
                                                        randallgford
                                                        Participant

                                                          Thanks for sharing, I love to see good news, it always makes my day !!!

                                                          Gratitude for each day is what I have already gained since my husband's

                                                          diagnosis. Continued success to you in your journey. 

                                                          Randall's wife, Vicki

                                                          randallgford
                                                          Participant

                                                            Thanks for sharing, I love to see good news, it always makes my day !!!

                                                            Gratitude for each day is what I have already gained since my husband's

                                                            diagnosis. Continued success to you in your journey. 

                                                            Randall's wife, Vicki

                                                            randallgford
                                                            Participant

                                                              Thanks for sharing, I love to see good news, it always makes my day !!!

                                                              Gratitude for each day is what I have already gained since my husband's

                                                              diagnosis. Continued success to you in your journey. 

                                                              Randall's wife, Vicki

                                                              Owl
                                                              Participant

                                                                Thanks for sharing this wonderful news, I am so happy for you. Go on fighting, it's incredible!

                                                                Owl
                                                                Participant

                                                                  Thanks for sharing this wonderful news, I am so happy for you. Go on fighting, it's incredible!

                                                                  Owl
                                                                  Participant

                                                                    Thanks for sharing this wonderful news, I am so happy for you. Go on fighting, it's incredible!

                                                                    _Paul_
                                                                    Participant
                                                                      Woohoo!!!
                                                                      _Paul_
                                                                      Participant
                                                                        Woohoo!!!
                                                                        _Paul_
                                                                        Participant
                                                                          Woohoo!!!
                                                                          Swanee
                                                                          Participant

                                                                            Ali,

                                                                            Always good to read a post from you Ali and even better when it's good news!  I am so happy for you and feel your joy with life and share the feeling!  

                                                                            Swanee

                                                                            Swanee
                                                                            Participant

                                                                              Ali,

                                                                              Always good to read a post from you Ali and even better when it's good news!  I am so happy for you and feel your joy with life and share the feeling!  

                                                                              Swanee

                                                                              Swanee
                                                                              Participant

                                                                                Ali,

                                                                                Always good to read a post from you Ali and even better when it's good news!  I am so happy for you and feel your joy with life and share the feeling!  

                                                                                Swanee

                                                                                TSchulz
                                                                                Participant

                                                                                  Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                  Troy

                                                                                  TSchulz
                                                                                  Participant

                                                                                    Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                    Troy

                                                                                    TSchulz
                                                                                    Participant

                                                                                      Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                      Troy

                                                                                      TSchulz
                                                                                      Participant

                                                                                        Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                        Troy

                                                                                        TSchulz
                                                                                        Participant

                                                                                          Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                          Troy

                                                                                          TSchulz
                                                                                          Participant

                                                                                            Such great news.  Thanks for sharing.  Good luck zapping that last tumor – it needs to go.  

                                                                                            Troy

                                                                                        Viewing 38 reply threads
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