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scan week!
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scan week!

› Forums › General Melanoma Community › scan week!

  • Post
    • September 4, 2012 at 4:27 am
    Ali
    Participant

      Just wanted to put out a quick update. 

      In June, after completing 6 weeks of high dose IL-2 (with some amazing but mixed results), they found 25 brain mets and many others scattered around.  I could feel 12 underneath the skin.  One dose of IPI, developed colitis just 5 days into treatment, also felt the tumors shrinking that quickly.  I have not been able to do IPI again yet, just had a colonoscopy that still shows inflammation.  The tumors I can feel have continued to shrink and disappear, and can now feel only one little tiny one on my rib. 

      Just wanted to put out a quick update. 

      In June, after completing 6 weeks of high dose IL-2 (with some amazing but mixed results), they found 25 brain mets and many others scattered around.  I could feel 12 underneath the skin.  One dose of IPI, developed colitis just 5 days into treatment, also felt the tumors shrinking that quickly.  I have not been able to do IPI again yet, just had a colonoscopy that still shows inflammation.  The tumors I can feel have continued to shrink and disappear, and can now feel only one little tiny one on my rib. 

      Hoping this kind of response is happening in the brain!!!  I get the 12-week-after-IPI scans in one week.  Anxiety!  Thanks for all the triumphant stories I read today, they are going to get me through the week. 

      Good luck to all!

      p.s.  No symptoms of brain involvement.  Not so much as a headache.  I feel 100% and have started to run again.  This is good, yes?

       

    Viewing 32 reply threads
    • Replies
        • September 4, 2012 at 5:36 am
        rbruce
        Participant

          Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

          • September 4, 2012 at 5:36 am
          rbruce
          Participant

            Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

            • September 4, 2012 at 5:36 am
            rbruce
            Participant

              Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

              • September 4, 2012 at 11:39 am
              rosa1
              Participant
                I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
                Keep us posted.

                • September 4, 2012 at 11:39 am
                rosa1
                Participant
                  I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
                  Keep us posted.

                  • September 4, 2012 at 11:39 am
                  rosa1
                  Participant
                    I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
                    Keep us posted.

                    • September 4, 2012 at 12:01 pm
                    jag
                    Participant

                      Ali, got my fingers crossed for you.

                      God Bless

                      John

                      • September 4, 2012 at 12:01 pm
                      jag
                      Participant

                        Ali, got my fingers crossed for you.

                        God Bless

                        John

                        • September 4, 2012 at 12:01 pm
                        jag
                        Participant

                          Ali, got my fingers crossed for you.

                          God Bless

                          John

                          • September 4, 2012 at 12:19 pm
                          Ali
                          Participant

                            Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

                            • September 4, 2012 at 12:19 pm
                            Ali
                            Participant

                              Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

                              • September 4, 2012 at 12:19 pm
                              Ali
                              Participant

                                Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

                                • September 4, 2012 at 2:46 pm
                                awillett1991
                                Participant
                                  Great news Ali!! Congrats and keep fighting!
                                  • September 4, 2012 at 2:46 pm
                                  awillett1991
                                  Participant
                                    Great news Ali!! Congrats and keep fighting!
                                    • September 4, 2012 at 2:46 pm
                                    awillett1991
                                    Participant
                                      Great news Ali!! Congrats and keep fighting!
                                      • September 4, 2012 at 3:06 pm
                                      aldakota22
                                      Participant

                                        Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

                                        • September 4, 2012 at 3:06 pm
                                        aldakota22
                                        Participant

                                          Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

                                          • September 4, 2012 at 3:06 pm
                                          aldakota22
                                          Participant

                                            Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

                                            • September 4, 2012 at 6:31 pm
                                            Karin L
                                            Participant

                                              You got this Alisa.  It's going to be good news I feel it!

                                              Karin

                                              • September 4, 2012 at 6:31 pm
                                              Karin L
                                              Participant

                                                You got this Alisa.  It's going to be good news I feel it!

                                                Karin

                                                • September 4, 2012 at 6:31 pm
                                                Karin L
                                                Participant

                                                  You got this Alisa.  It's going to be good news I feel it!

                                                  Karin

                                                  • September 4, 2012 at 7:24 pm
                                                  TSchulz
                                                  Participant

                                                    Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

                                                    • September 4, 2012 at 7:24 pm
                                                    TSchulz
                                                    Participant

                                                      Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

                                                      • September 4, 2012 at 7:24 pm
                                                      TSchulz
                                                      Participant

                                                        Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

                                                        • September 4, 2012 at 11:17 pm
                                                        MaryD
                                                        Participant

                                                          Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

                                                          Keep up the great work!

                                                          Mary

                                                          • September 4, 2012 at 11:17 pm
                                                          MaryD
                                                          Participant

                                                            Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

                                                            Keep up the great work!

                                                            Mary

                                                            • September 4, 2012 at 11:17 pm
                                                            MaryD
                                                            Participant

                                                              Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

                                                              Keep up the great work!

                                                              Mary

                                                              • September 5, 2012 at 12:36 am
                                                              Phil S
                                                              Participant
                                                                Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
                                                                • September 5, 2012 at 12:36 am
                                                                Phil S
                                                                Participant
                                                                  Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
                                                                  • September 5, 2012 at 12:36 am
                                                                  Phil S
                                                                  Participant
                                                                    Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
                                                                    • September 5, 2012 at 5:58 am
                                                                    gabsound
                                                                    Participant
                                                                      Ali,
                                                                      It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

                                                                      I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

                                                                      Thanks for posting,

                                                                      Julie

                                                                      • September 5, 2012 at 5:58 am
                                                                      gabsound
                                                                      Participant
                                                                        Ali,
                                                                        It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

                                                                        I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

                                                                        Thanks for posting,

                                                                        Julie

                                                                        • September 5, 2012 at 5:58 am
                                                                        gabsound
                                                                        Participant
                                                                          Ali,
                                                                          It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

                                                                          I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

                                                                          Thanks for posting,

                                                                          Julie

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