› Forums › General Melanoma Community › scan results different than thought
- This topic has 32 replies, 13 voices, and was last updated 13 years, 8 months ago by
KellieSue.
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- May 11, 2011 at 8:05 pm
Yesterday I posted good scans. Well……. it was the wet read and the report had not been dictated yet.
While in the office I complained about my surgery site from Oct. hurting. The Dr. said that the radiologist hadn't commented but he saw that it had lit up and was surprised that nothing had been said to him on the phone. He felt and felt and could not feel anything. He called the radiologist and we thought he had gotten back with him because the Dr. was in and out of the room several times. He even showed me the spot on the scan.
Yesterday I posted good scans. Well……. it was the wet read and the report had not been dictated yet.
While in the office I complained about my surgery site from Oct. hurting. The Dr. said that the radiologist hadn't commented but he saw that it had lit up and was surprised that nothing had been said to him on the phone. He felt and felt and could not feel anything. He called the radiologist and we thought he had gotten back with him because the Dr. was in and out of the room several times. He even showed me the spot on the scan.
I was also seeing a surgeon about some stomach issues I've been having and when he left he said he was going to speak to my oncologist. 30 min. passed and we talked to the nurse and asked if she could call us today for the final decision if they were going to do additional tests on the gallbladder (not suspected to be mel). She said sure because my mel specialist was with another patient and she could not interrupt him. I do love that I get to see more than one Doc often for the price of one, just always makes more waiting…. It was already 5pm at this point and we had left the house at 7am. with a 2 hour ride still to go.
Phone call just came. It seems that he was waiting for the final read on the scan. The arm is suspicious for recurrance. The tumor board is meeting on Monday to discuss. they always joke about how they just have to mention my name and they all know me. He gave me some options that would be discussed if the final decision was recurrance. At this point he is thinking surgery followed by radiation but he did give me other options including systemic. When they look at the scans again they might be thinking differently (my thoughts)
I went from high elevation to stomach rolling. This would now be recurrance #6. I've not lost my positive thinking but for the moment I'm down. Have definitely decided that stomach issues are anxiety! Was feeling great before the Dr called, now I have that vice grip back.
Have 10 women coming tomorrow evening for an art quilt meeting and since I was in a good mood today I played instead of cleaned my house! Sure hope they understand!!
Linda
Stage IV since July, 06 almost at that 5 year mark!
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- May 11, 2011 at 8:39 pm
Oh Phooey, Linda! I just replied to your earlier post and sent it to the top of the page. (I always start reading from the bottom up.) Okay, now I am going to be focusing all positive thoughts toward this arm thing, hoping it really is nothing to worry about. As always, I am holding you in the light.
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- May 11, 2011 at 8:39 pm
Oh Phooey, Linda! I just replied to your earlier post and sent it to the top of the page. (I always start reading from the bottom up.) Okay, now I am going to be focusing all positive thoughts toward this arm thing, hoping it really is nothing to worry about. As always, I am holding you in the light.
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- May 11, 2011 at 8:45 pm
Hi Linda,
I'm sorry! Look forward to your quilting buddies and have a good time. If anyone complains about your house, hand her a mop! Take the night off and do something that will bring you relaxation and joy.
Lord, in Your mercy, keep Linda positive even though it's so hard right now and she's had a real blow. Hold her tight and open the doors she needs opened. Bring her peace, give her strength. Grow hope! Amen.
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- May 11, 2011 at 8:45 pm
Hi Linda,
I'm sorry! Look forward to your quilting buddies and have a good time. If anyone complains about your house, hand her a mop! Take the night off and do something that will bring you relaxation and joy.
Lord, in Your mercy, keep Linda positive even though it's so hard right now and she's had a real blow. Hold her tight and open the doors she needs opened. Bring her peace, give her strength. Grow hope! Amen.
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- May 11, 2011 at 9:04 pm
So this area is your arm? Dangnabbitt. I am doublling, no tripling up on those good thoughts. Have you done radiation before? I know abut that vice grip, but surrender to hope and make it let go.
I am glad you are having friends over tomorrow. I bet your house is cleaner that most anyone else's.
Ick. Gallbladder. I used to have me one of those. It went nuts with little stones all inside and I really thought I might die from the pain. Hope that isn't what you have. That vice grip is one mean hombre, though.
Take good care,
k.
Dangnabbitt. I just switched to the Hopey Dance.
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- May 11, 2011 at 9:04 pm
So this area is your arm? Dangnabbitt. I am doublling, no tripling up on those good thoughts. Have you done radiation before? I know abut that vice grip, but surrender to hope and make it let go.
I am glad you are having friends over tomorrow. I bet your house is cleaner that most anyone else's.
Ick. Gallbladder. I used to have me one of those. It went nuts with little stones all inside and I really thought I might die from the pain. Hope that isn't what you have. That vice grip is one mean hombre, though.
Take good care,
k.
Dangnabbitt. I just switched to the Hopey Dance.
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- May 11, 2011 at 9:10 pm
Linda,
Don't get down! We are all here to hold you up. I know it really stinks to think you're getting good news and get not as good news instead, but you've fought this beast before and you certainly CAN do it again!
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- May 11, 2011 at 9:10 pm
Linda,
Don't get down! We are all here to hold you up. I know it really stinks to think you're getting good news and get not as good news instead, but you've fought this beast before and you certainly CAN do it again!
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- May 11, 2011 at 10:04 pm
Dear Linda,
I think you and I are running neck and neck in regards to re-occurences! YUCK to this news big time!! Hoping that the tumor board has some great ideas for you!!! I, like you, am getting well known at my major medical center…the nurse who accesses or de-accesses my port said today "I've been thinking about you and wondering where you've been–(Its been three months since I was last there)…so cool that she noticed I hadnt been there in a while!! I think its a good thing when your name conjures up a face and your history…..
I am thinking GOOD thoughts for you!!
Vermont_Donna, stage 3a
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- May 11, 2011 at 10:04 pm
Dear Linda,
I think you and I are running neck and neck in regards to re-occurences! YUCK to this news big time!! Hoping that the tumor board has some great ideas for you!!! I, like you, am getting well known at my major medical center…the nurse who accesses or de-accesses my port said today "I've been thinking about you and wondering where you've been–(Its been three months since I was last there)…so cool that she noticed I hadnt been there in a while!! I think its a good thing when your name conjures up a face and your history…..
I am thinking GOOD thoughts for you!!
Vermont_Donna, stage 3a
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- May 11, 2011 at 10:07 pm
Linda,
Is it possible that the surgery site is lighting up just because it's a surgery site and that's why it wasn't mentioned? The reason I ask is that at my first PET last July my gallbladder site still lit up and I had that out in May of 08. They said that isn't uncommon. I still have pain at that surgery site too. I had pain in my c-section site for about 5 years. Just trying to send hopeful thoughts your way.
Still hoping you find out it's nothing. I hate scan time!!!
Amy S. in Michigan
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- May 11, 2011 at 10:07 pm
Linda,
Is it possible that the surgery site is lighting up just because it's a surgery site and that's why it wasn't mentioned? The reason I ask is that at my first PET last July my gallbladder site still lit up and I had that out in May of 08. They said that isn't uncommon. I still have pain at that surgery site too. I had pain in my c-section site for about 5 years. Just trying to send hopeful thoughts your way.
Still hoping you find out it's nothing. I hate scan time!!!
Amy S. in Michigan
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- May 12, 2011 at 2:27 am
Linda, quilters know "clean" is a four-letter word! Put that concern right out of your mind! I hope you have a great chickfest tomorrow.
And more importantly, I hope you can recover your hopeful self very soon. All I can say is we all know how it feels, this horrible uncertainty. It's almost worse than the bad news itself.
Hugs and positive thoughts…
KatyWI
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- May 12, 2011 at 2:27 am
Linda, quilters know "clean" is a four-letter word! Put that concern right out of your mind! I hope you have a great chickfest tomorrow.
And more importantly, I hope you can recover your hopeful self very soon. All I can say is we all know how it feels, this horrible uncertainty. It's almost worse than the bad news itself.
Hugs and positive thoughts…
KatyWI
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- May 12, 2011 at 3:19 am
Enjoy some "Quilt therapy", Linda. It will be an oasis in this miserable journey!
Thinking of you,
A fellow quilter,
Carole 3C. on the Derma Trial
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- May 12, 2011 at 3:43 am
Quilting has truly gotten me through this disease. When first diagnosed I would stay up till 3 or 4 in the morning working on a quilt. Felt I needed to leave a part of me behind for family members. Now I sew till about 1 or 2 am!! lol Have found that some very unique mistakes happen in the wee hours.
Linda
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- May 12, 2011 at 3:43 am
Quilting has truly gotten me through this disease. When first diagnosed I would stay up till 3 or 4 in the morning working on a quilt. Felt I needed to leave a part of me behind for family members. Now I sew till about 1 or 2 am!! lol Have found that some very unique mistakes happen in the wee hours.
Linda
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- May 12, 2011 at 3:19 am
Enjoy some "Quilt therapy", Linda. It will be an oasis in this miserable journey!
Thinking of you,
A fellow quilter,
Carole 3C. on the Derma Trial
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- May 12, 2011 at 3:19 am
Enjoy some "Quilt therapy", Linda. It will be an oasis in this miserable journey!
Thinking of you,
A fellow quilter,
Carole 3C. on the Derma Trial
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- May 12, 2011 at 3:19 am
Enjoy some "Quilt therapy", Linda. It will be an oasis in this miserable journey!
Thinking of you,
A fellow quilter,
Carole 3C. on the Derma Trial
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- May 12, 2011 at 4:37 am
Very sorry to read that the scan has found something unusual on your arm. You probably feel
really terrible at the moment, but please don't stay that way for long and don't lose your
wonderfully positive attitude.I know that you and the other long-term stage IV warriors here continue to give real hope to
everyone who is struggling with this horrible disease.Hope that you have better news next week.
Frank from Australia
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- May 12, 2011 at 4:37 am
Very sorry to read that the scan has found something unusual on your arm. You probably feel
really terrible at the moment, but please don't stay that way for long and don't lose your
wonderfully positive attitude.I know that you and the other long-term stage IV warriors here continue to give real hope to
everyone who is struggling with this horrible disease.Hope that you have better news next week.
Frank from Australia
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- May 12, 2011 at 5:03 am
oh screw the housework. I'm sorry you have this added anxiety. I hope it turns out NOT to be another recurrence, but you just keep your head. You've managed to keep busting it back all these years and I trust you will continue to.
try to have some fun tomorrow night.
dian
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- May 12, 2011 at 5:03 am
oh screw the housework. I'm sorry you have this added anxiety. I hope it turns out NOT to be another recurrence, but you just keep your head. You've managed to keep busting it back all these years and I trust you will continue to.
try to have some fun tomorrow night.
dian
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- May 12, 2011 at 1:58 pm
I'm sorry your results might not be as good as originally thought! I always see my dr. the same day as my scan and as much as I like immediate results I hate the "prelim" results. The radiologist never gets a chance to really sit down and read the scans till the next day so I'm always worried my good news will turn around the next day, because it's happened numerous times that way.
I sure hope your arm turns out to be nothing! Keep up your great attitude!
Kellie(from Iowa) Stage IV on B-raf
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- May 12, 2011 at 1:58 pm
I'm sorry your results might not be as good as originally thought! I always see my dr. the same day as my scan and as much as I like immediate results I hate the "prelim" results. The radiologist never gets a chance to really sit down and read the scans till the next day so I'm always worried my good news will turn around the next day, because it's happened numerous times that way.
I sure hope your arm turns out to be nothing! Keep up your great attitude!
Kellie(from Iowa) Stage IV on B-raf
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