› Forums › General Melanoma Community › sad times
- This topic has 12 replies, 4 voices, and was last updated 13 years, 9 months ago by
gabsound.
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- July 23, 2012 at 12:37 am
I feel like shouting and screaming all at the same time. Lynn has been on z for 4 weeks know all the little tumors on outside body have either disappeared are scabbed over. While the side effects have been few. Some mild joint pain and some killer sunburn. We learned hard way on that. Things were going pretty good until our brain scans all 5 they treated are gone. The sad news is they are 2 small ones the size of pin heads maybe they were there before and to little to see or maybe they are new can’t really tell. Dr says we can wait awhile before deciding what to do or go ahead and gamma knife them. Lynn choose to go ahead and gamma knife the little pest.The dr new I was upset and said mrs price we got them last time we will get them this time. Guess z and yervoy didn’t work in the brain area. I wanna be strong but its getting tough. My lynn has the good attitude and says we will do what we gotta do cause I’m not giving up or giving in.
Many prays and love to each of you as. You fight.
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- July 23, 2012 at 3:18 am
I have been on Zel since April and my onc has worked with trials and studied it for years. He was insistent with me that we give it at least 7 full weeks to work before scans, that on average, this is how long it takes to show effectiveness. Hang in there and don’t give up! -
- July 23, 2012 at 3:18 am
I have been on Zel since April and my onc has worked with trials and studied it for years. He was insistent with me that we give it at least 7 full weeks to work before scans, that on average, this is how long it takes to show effectiveness. Hang in there and don’t give up!-
- July 23, 2012 at 12:44 pm
Hi
Hang in there, that sounds like a good response, I realize the brain mets are hard to hear and discouraging. But the gamma knife is easy and was effective before, so they will get them again and they are small!
Definitely I realize living with and dealing with melanoma day to day and side effects like bad sunburns etc is hard. For me each of these treatments even thou they come with their side effects they have given me more time than I would have had a couple of years ago(when there were no options), I feel lucky to be here still and moving around and enjoying family etc.
I do realize that melanoma takes a large toll on the family members, I hope you are getting support for yourself as we all have our down times. You need to keep yourself strong and supported also. take care
Hang in there!
laurie from maine
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- July 23, 2012 at 12:44 pm
Hi
Hang in there, that sounds like a good response, I realize the brain mets are hard to hear and discouraging. But the gamma knife is easy and was effective before, so they will get them again and they are small!
Definitely I realize living with and dealing with melanoma day to day and side effects like bad sunburns etc is hard. For me each of these treatments even thou they come with their side effects they have given me more time than I would have had a couple of years ago(when there were no options), I feel lucky to be here still and moving around and enjoying family etc.
I do realize that melanoma takes a large toll on the family members, I hope you are getting support for yourself as we all have our down times. You need to keep yourself strong and supported also. take care
Hang in there!
laurie from maine
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- July 23, 2012 at 12:44 pm
Hi
Hang in there, that sounds like a good response, I realize the brain mets are hard to hear and discouraging. But the gamma knife is easy and was effective before, so they will get them again and they are small!
Definitely I realize living with and dealing with melanoma day to day and side effects like bad sunburns etc is hard. For me each of these treatments even thou they come with their side effects they have given me more time than I would have had a couple of years ago(when there were no options), I feel lucky to be here still and moving around and enjoying family etc.
I do realize that melanoma takes a large toll on the family members, I hope you are getting support for yourself as we all have our down times. You need to keep yourself strong and supported also. take care
Hang in there!
laurie from maine
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- July 23, 2012 at 3:18 am
I have been on Zel since April and my onc has worked with trials and studied it for years. He was insistent with me that we give it at least 7 full weeks to work before scans, that on average, this is how long it takes to show effectiveness. Hang in there and don’t give up! -
- July 23, 2012 at 3:42 pm
You need to work on changing your diet and increasing your vitamin D-3 levels. See:
http://naturalhealthdossier.com/2012/05/how-to-stave-off-skin-cancer-with-two-dietary-changes/
http://www.vitamind3world.com/VitaminD_Cancer_Prevention_lung_breast_colon.html
and spend some time here:
Best wishes,
Gene
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- July 23, 2012 at 3:42 pm
You need to work on changing your diet and increasing your vitamin D-3 levels. See:
http://naturalhealthdossier.com/2012/05/how-to-stave-off-skin-cancer-with-two-dietary-changes/
http://www.vitamind3world.com/VitaminD_Cancer_Prevention_lung_breast_colon.html
and spend some time here:
Best wishes,
Gene
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- July 23, 2012 at 3:42 pm
You need to work on changing your diet and increasing your vitamin D-3 levels. See:
http://naturalhealthdossier.com/2012/05/how-to-stave-off-skin-cancer-with-two-dietary-changes/
http://www.vitamind3world.com/VitaminD_Cancer_Prevention_lung_breast_colon.html
and spend some time here:
Best wishes,
Gene
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- July 24, 2012 at 2:26 am
Melva,
I know it’s disappointing to hear of any new tumors, especially in the brain. Those sound VERY small, so they should be able to treat those as his Drs have said. I also wonder if a little more time on the drug may have some further benefit.We all are so hoping to get “cured” from this terrible disease.
Praying for all of us in this fight.Julie in Las Vegas
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- July 24, 2012 at 2:26 am
Melva,
I know it’s disappointing to hear of any new tumors, especially in the brain. Those sound VERY small, so they should be able to treat those as his Drs have said. I also wonder if a little more time on the drug may have some further benefit.We all are so hoping to get “cured” from this terrible disease.
Praying for all of us in this fight.Julie in Las Vegas
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- July 24, 2012 at 2:26 am
Melva,
I know it’s disappointing to hear of any new tumors, especially in the brain. Those sound VERY small, so they should be able to treat those as his Drs have said. I also wonder if a little more time on the drug may have some further benefit.We all are so hoping to get “cured” from this terrible disease.
Praying for all of us in this fight.Julie in Las Vegas
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