PET Scan Results – Not Good News…

Shari,

Please don't ever apologize for posting.  We share all the news, good and bad, in this MPIP family.  I am so sorry to read this news though.  I just read your profile and see that you have a young son.  I hope you have the support of family and friends surrounding you.

One day at a time.  Hold onto hope.  We're here for you.  Good thoughts and prayers going your way.

Stay Strong
King

Stage IV  7/05 Liver mets

Shari,

Please don't ever apologize for posting.  We share all the news, good and bad, in this MPIP family.  I am so sorry to read this news though.  I just read your profile and see that you have a young son.  I hope you have the support of family and friends surrounding you.

One day at a time.  Hold onto hope.  We're here for you.  Good thoughts and prayers going your way.

Stay Strong
King

Stage IV  7/05 Liver mets

Shari- I'm sorry to hear this news, but want you to know that you and your son are in my daily prayers. One day at a time! You can beat this!

Michelle

Shari- I'm sorry to hear this news, but want you to know that you and your son are in my daily prayers. One day at a time! You can beat this!

Michelle

Oh Shari,

I'm sorry to hear your news.  It does sound like your Doctor has been quick to respond and you didn't have any additional wait time. 

Sending prayers and cyber hugs to you and your son.

Please keep us up to date when you feel well enough. Sounds like you have a wonderful attitude and I hope they can get you comfortable quickly!

Linda

Oh Shari,

I'm sorry to hear your news.  It does sound like your Doctor has been quick to respond and you didn't have any additional wait time. 

Sending prayers and cyber hugs to you and your son.

Please keep us up to date when you feel well enough. Sounds like you have a wonderful attitude and I hope they can get you comfortable quickly!

Linda

Shari,

I'm sorry to hear this. Prayers that comfort will come and that the chemo does its job in preparation for Yervoy. You do what you need to do and we'll be here for you.

Lord, in Your mercy. Amen.

Grace and peace,

Carol

Shari,

I'm sorry to hear this. Prayers that comfort will come and that the chemo does its job in preparation for Yervoy. You do what you need to do and we'll be here for you.

Lord, in Your mercy. Amen.

Grace and peace,

Carol

Shari,

I'm so sorry to hear this news. I hope you have a response to the chemo and can get onto Yervoy and do great on it.

You'll be in my thoughts. Let us know when you can.

dian

Shari,

I'm so sorry to hear this news. I hope you have a response to the chemo and can get onto Yervoy and do great on it.

You'll be in my thoughts. Let us know when you can.

dian

I am sorry to read that the melanoma has spread. Please don't hesitate to post. There are
many people here who really care and understand how you might be feeling.

I have just read your profile and noticed that Dr McWilliams recommended local radiation
and Leukine (GM-CSF) in 2010. Did you have any Leukine at all? If not, perhaps you would
be eligible for it once the chemo has had a chance to work?

Hope that things will look brighter soon.

Frank from Australia

I am sorry to read that the melanoma has spread. Please don't hesitate to post. There are
many people here who really care and understand how you might be feeling.

I have just read your profile and noticed that Dr McWilliams recommended local radiation
and Leukine (GM-CSF) in 2010. Did you have any Leukine at all? If not, perhaps you would
be eligible for it once the chemo has had a chance to work?

Hope that things will look brighter soon.

Frank from Australia

Shari,

We are all here to support each other and this is the very place you should come to share this news.  I'm sorry to hear about the progression but will send up prayers that the chemo does it's work so you can try the Yervoy.

Hoping that you can stay comfortable during this difficult challenge . .

Mary

Shari,

We are all here to support each other and this is the very place you should come to share this news.  I'm sorry to hear about the progression but will send up prayers that the chemo does it's work so you can try the Yervoy.

Hoping that you can stay comfortable during this difficult challenge . .

Mary

Did your Dr. mention the new limuab type drug?  I saw it on CNN – apparantly it works faster than yervoy (ipi) and within 72 hours.  I think it was one of the drugs in the BRIM3 trial but don't quote me on it.

I just saw the news yesterday so google the news networks on the drug, I wish I could remember what it was…..

Based on the brief info, I would give it a shot, especially if the chemo dosn't touch the mel.  There was discussion of starting this new drug and then adding yervoy (which can take weeks to begin working).

Just a thought.

Did your Dr. mention the new limuab type drug?  I saw it on CNN – apparantly it works faster than yervoy (ipi) and within 72 hours.  I think it was one of the drugs in the BRIM3 trial but don't quote me on it.

I just saw the news yesterday so google the news networks on the drug, I wish I could remember what it was…..

Based on the brief info, I would give it a shot, especially if the chemo dosn't touch the mel.  There was discussion of starting this new drug and then adding yervoy (which can take weeks to begin working).

Just a thought.

Shari, my thoughts and prayers are with you and your family.  This just isn't fair– biochemo worked for me and not you, and that just ain't right.  Rich

Shari, my thoughts and prayers are with you and your family.  This just isn't fair– biochemo worked for me and not you, and that just ain't right.  Rich

Sorry to hear about the spread Shari. You and my husband are in a similar situation; he had chemo last week to try to fight off some of the burden in hopeful preparation for a new  BRAF trial (he couldn't get into the last one because his liver function numbers weren't high enough…he has a "too numerous to count" burden in there).

My thoughts are with you right now and just try to be strong. You CAN do this! 

Best wishes and blessings.

Michelle, wife of Don, Stage IV

Sorry to hear about the spread Shari. You and my husband are in a similar situation; he had chemo last week to try to fight off some of the burden in hopeful preparation for a new  BRAF trial (he couldn't get into the last one because his liver function numbers weren't high enough…he has a "too numerous to count" burden in there).

My thoughts are with you right now and just try to be strong. You CAN do this! 

Best wishes and blessings.

Michelle, wife of Don, Stage IV

Hi Shari,

I remember reading your post about your stomach.  I am so sorry to hear the news.  Please know you and your family are in my daily prayers and your peace will get you through this next battle.

Laurie

Hi Shari,

I remember reading your post about your stomach.  I am so sorry to hear the news.  Please know you and your family are in my daily prayers and your peace will get you through this next battle.

Laurie

Shari, I'm so sorry to hear this latest news.  I remember you concerns about your extended stomach and now to discover it is melanoma, how very sad.  Your doctor sounds like he moves quickly though so let's pray he gets you on the first treatment and then on to yervoy.  Best wishes, you and your young son are in my thoughts, Val xx stage IV

Shari, I'm so sorry to hear this latest news.  I remember you concerns about your extended stomach and now to discover it is melanoma, how very sad.  Your doctor sounds like he moves quickly though so let's pray he gets you on the first treatment and then on to yervoy.  Best wishes, you and your young son are in my thoughts, Val xx stage IV

Shari – I am so sorry to hear this.  I pray the treatment over the weekend helps you some so you can qualify for Yervoy.

My husband 's Melanoma that started on his scalp went to his stomach area.  He was in a great deal of pain toward the end before he took the pain meds.  He led a quality life for 4 years + 2 months, with only alternative stuff & supplements….but then Mel got ahold of him good in September and just exploded, tumors everywhere. with the worst being in the stomach area.  He had emergency surgery and they resected one place, but told me he had like 13 more that were going to do the same….and at this point he was also having blood transfusions every 14 days or so.

I hope the treatment works and give you much more time.  Thinking of you, praying for you and sending you hugs.

Take Care,

Sherron, wife to Jim FOREVER

Shari – I am so sorry to hear this.  I pray the treatment over the weekend helps you some so you can qualify for Yervoy.

My husband 's Melanoma that started on his scalp went to his stomach area.  He was in a great deal of pain toward the end before he took the pain meds.  He led a quality life for 4 years + 2 months, with only alternative stuff & supplements….but then Mel got ahold of him good in September and just exploded, tumors everywhere. with the worst being in the stomach area.  He had emergency surgery and they resected one place, but told me he had like 13 more that were going to do the same….and at this point he was also having blood transfusions every 14 days or so.

I hope the treatment works and give you much more time.  Thinking of you, praying for you and sending you hugs.

Take Care,

Sherron, wife to Jim FOREVER

Shari,

Last year I've had an internal melanoma golf ball size removed with my uterus- I've bled almost to death and I've  had a blood transfusion to bring me back to life-I was being told I have few months to live…..one year on I am still alive and kicking.Nobody really know what God had lined up for you.Please do not despair, try to stay strong and positive-positive mental attitude  is crucial it the fight with this hell of  disease.I was not religious but I pray every day now.Do the same,stay strong.

I am sending you positive thoughts and wishes all along the way,

Teodora

Shari,

Last year I've had an internal melanoma golf ball size removed with my uterus- I've bled almost to death and I've  had a blood transfusion to bring me back to life-I was being told I have few months to live…..one year on I am still alive and kicking.Nobody really know what God had lined up for you.Please do not despair, try to stay strong and positive-positive mental attitude  is crucial it the fight with this hell of  disease.I was not religious but I pray every day now.Do the same,stay strong.

I am sending you positive thoughts and wishes all along the way,

Teodora

Oh Sweetie, this just breaks my heart…it makes me so angry about melanoma…i hope the cisplatin combo (which is good for brca's) gets the tumor load down for yervoy…praying for you

boots

Oh Sweetie, this just breaks my heart…it makes me so angry about melanoma…i hope the cisplatin combo (which is good for brca's) gets the tumor load down for yervoy…praying for you

boots