Off the Juice
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Off the Juice

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  • Post
    • October 20, 2016 at 12:43 am
    Casitas1
    Participant

    My Dr.(Rock Star Doc) and myself decided to stop Keytruda treatments today. I have been on since Jan. 2016. and have been NED. since July. We will have close follow ups and scans in Jan. I know there are some NED folks that are wondering when to say when in ending treatments. Well,I just jumped ship  and will keep you all posted on my journey post treatment! 

    Best, Paul

Viewing 14 reply threads
  • Replies
      • October 20, 2016 at 1:38 am
      WithinMySkin
      Participant
      Congrats, Paul! Wishing you a forever status of NED!

      Lauren

      • October 20, 2016 at 1:38 am
      WithinMySkin
      Participant
      Congrats, Paul! Wishing you a forever status of NED!

      Lauren

      • October 20, 2016 at 1:38 am
      WithinMySkin
      Participant
      Congrats, Paul! Wishing you a forever status of NED!

      Lauren

        • October 20, 2016 at 2:06 am
        SOLE
        Participant

        My sincere congrats! Keep those good stories coming!

        Does this make you a complete responder? Sorry I am not familiar with how this is decided…

        • October 20, 2016 at 2:06 am
        SOLE
        Participant

        My sincere congrats! Keep those good stories coming!

        Does this make you a complete responder? Sorry I am not familiar with how this is decided…

        • October 20, 2016 at 2:06 am
        SOLE
        Participant

        My sincere congrats! Keep those good stories coming!

        Does this make you a complete responder? Sorry I am not familiar with how this is decided…

        • October 21, 2016 at 2:38 am
        Casitas1
        Participant

        Thank you, Sole. Yes a Complete Response(CR),No evidence of disease(NED) or as my Dr. calls it Complete Remission are all terms that are used.

        Best, Paul

        • October 21, 2016 at 2:38 am
        Casitas1
        Participant

        Thank you, Sole. Yes a Complete Response(CR),No evidence of disease(NED) or as my Dr. calls it Complete Remission are all terms that are used.

        Best, Paul

        • October 21, 2016 at 2:38 am
        Casitas1
        Participant

        Thank you, Sole. Yes a Complete Response(CR),No evidence of disease(NED) or as my Dr. calls it Complete Remission are all terms that are used.

        Best, Paul

      • October 20, 2016 at 2:11 am
      snow white
      Participant

      WOW! Thats fantastic.  Congrats to you!

      • October 20, 2016 at 2:11 am
      snow white
      Participant

      WOW! Thats fantastic.  Congrats to you!

      • October 20, 2016 at 2:11 am
      snow white
      Participant

      WOW! Thats fantastic.  Congrats to you!

      • October 20, 2016 at 5:32 am
      Bubbles
      Participant

      That's great, Paul. More and more folks are making that choice and doing well! Enjoy! C

      • October 20, 2016 at 5:32 am
      Bubbles
      Participant

      That's great, Paul. More and more folks are making that choice and doing well! Enjoy! C

      • October 20, 2016 at 5:32 am
      Bubbles
      Participant

      That's great, Paul. More and more folks are making that choice and doing well! Enjoy! C

      • October 20, 2016 at 1:25 pm
      cancersnewnormal
      Participant

      Congrats Paul! I applaud you for having the gusto to "jump ship" as soon as you felt comfortable in doing so. Looking forward to reading more NED posts! My joints and pancreatitis somewhat forced me to "walk the plank" in July… about 4 months earlier than planned. However, NED status has been in play for quite sometime, and 20 months on Pembro seemed about 2 months too long for me. Here's to many more years of clean scans! **high five**

      • October 20, 2016 at 1:25 pm
      cancersnewnormal
      Participant

      Congrats Paul! I applaud you for having the gusto to "jump ship" as soon as you felt comfortable in doing so. Looking forward to reading more NED posts! My joints and pancreatitis somewhat forced me to "walk the plank" in July… about 4 months earlier than planned. However, NED status has been in play for quite sometime, and 20 months on Pembro seemed about 2 months too long for me. Here's to many more years of clean scans! **high five**

      • October 20, 2016 at 1:25 pm
      cancersnewnormal
      Participant

      Congrats Paul! I applaud you for having the gusto to "jump ship" as soon as you felt comfortable in doing so. Looking forward to reading more NED posts! My joints and pancreatitis somewhat forced me to "walk the plank" in July… about 4 months earlier than planned. However, NED status has been in play for quite sometime, and 20 months on Pembro seemed about 2 months too long for me. Here's to many more years of clean scans! **high five**

      • October 20, 2016 at 9:42 pm
      Julie in SoCal
      Participant

      Oh excellent, Paul.  How long were you on Pembro?

      Happy dancing with you!

      Julie

      • October 20, 2016 at 9:42 pm
      Julie in SoCal
      Participant

      Oh excellent, Paul.  How long were you on Pembro?

      Happy dancing with you!

      Julie

        • October 20, 2016 at 11:45 pm
        Casitas1
        Participant

        Thank you, Julie. I was on Pembro for 10 months or 13 bags.

        The dancing will be a struggle until my limbs(joints) cooperate. But, given time and a short stint on steroids my two left feet will come around!

        Best, Paul

        • October 20, 2016 at 11:45 pm
        Casitas1
        Participant

        Thank you, Julie. I was on Pembro for 10 months or 13 bags.

        The dancing will be a struggle until my limbs(joints) cooperate. But, given time and a short stint on steroids my two left feet will come around!

        Best, Paul

        • October 20, 2016 at 11:45 pm
        Casitas1
        Participant

        Thank you, Julie. I was on Pembro for 10 months or 13 bags.

        The dancing will be a struggle until my limbs(joints) cooperate. But, given time and a short stint on steroids my two left feet will come around!

        Best, Paul

        • October 22, 2016 at 6:09 pm
        Julie in SoCal
        Participant

        I hear ya Paul on the joints! Never said it would be a pretty dance though ☺️.  Still all in all this is pretty happy!

        Julie

        • October 22, 2016 at 6:09 pm
        Julie in SoCal
        Participant

        I hear ya Paul on the joints! Never said it would be a pretty dance though ☺️.  Still all in all this is pretty happy!

        Julie

        • October 22, 2016 at 6:09 pm
        Julie in SoCal
        Participant

        I hear ya Paul on the joints! Never said it would be a pretty dance though ☺️.  Still all in all this is pretty happy!

        Julie

      • October 20, 2016 at 9:42 pm
      Julie in SoCal
      Participant

      Oh excellent, Paul.  How long were you on Pembro?

      Happy dancing with you!

      Julie

Viewing 14 reply threads
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