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My current ipi/nivo update
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My current ipi/nivo update

› Forums › General Melanoma Community › My current ipi/nivo update

  • Post
    • May 21, 2018 at 6:22 pm
    MelanomaMike
    Participant

      Hi Family, boy am i messed up, as i told you, i started the combo ipi/nivo last Friday {5/11/18} and now on day 10 days later the nausea is worse {now with vomiting} my apitite is completly gone, if it wernt for my wife making me drink Ensures, for one, it gave me something to throw up {excuse the visual}, two, it put some much needed nutrients in me. I think my last meal that i realy could eat was days ago, 2 maybe 3 days ago??…Iv had real bad headaches, not constant, just when i lean down, a throbbing type pain…

       Can i ask, does anyone know if THC & CBD can help with side effects? please reply, iv read that it does but would rather hear it from the horses mouth…

       You all take good care, i know im trying….Mike

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    • Replies
        • May 21, 2018 at 8:35 pm
        cjm22
        Participant

          My fiance really struggled with low appetite and nausea after ipi/nivo! We're not sure if it was the treatment or cancer or what, but it was definitely bad. Talk to your doc and see if there are other anti-nausea meds you can go on. My fiance's pain management specialist took nausea really seriously (especially since it was affecting his ability to eat) and spent some appointments with us experimenting with a couple different drugs and dosing schedules.

          As for THC and CBD — it *definitely* helps my fiance!!! He feels so much better after taking that. Improves his mood, nausea, ability to sleep etc. We have a tincture (THC and CBD oil that can go in the mouth or you can put it in a drink or food) as well as pill form. He used cannabic pre-cancer, though, so he is used to it. Maybe start small and talk to your doc first before taking too much!

          Sorry to hear you're feeling so bad. I hope things get better for you soon.

          • May 21, 2018 at 10:54 pm
          gopher38
          Participant

            From your description, I can feel from here the T-cells wreaking havoc with unwelcome cancer cells.

            • May 22, 2018 at 6:57 pm
            Nanners10
            Participant
              Hi Mike, sorry to hear you are feeling so awful. I don’t have any experience with the nivo portion but when I was on ipi I had intense nausea that lasted just over three weeks. After that I tolerated it just fine. I hope this is just your body adapting to the drug. Keep up the fight! Nancy
              • May 23, 2018 at 1:14 am
              TexMelanomex
              Participant

                You are deep in the battle Big Mike! Dig in, hold your position, and fortify brother! Keep trying to get those nutrients and calories in, your body is beating the hell out of the enemy and needs resupply. 

                Warrior On!!

                • May 23, 2018 at 3:44 am
                Coragirl
                Participant

                  Have your wife brew you some ginger tea, just sip it as often as you can to ease your nausea. I hope you are feeling better soon. I believe your body is just fighting the beast with all its might.

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