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MacVac trial, 8th and final shot!

Forums General Melanoma Community MacVac trial, 8th and final shot!

  • Post
    dian in spokane
    Participant

    Done! I am done! It seemed like the wait to get my first shot in this trial was endless, but the 6 months of actual treatment has flown by.

    Done! I am done! It seemed like the wait to get my first shot in this trial was endless, but the 6 months of actual treatment has flown by.

    Today I got my last shot, and went into the trial record books as a success, or at least not a failure<g> It's only been the last couple of shots that had a reaction before I left the hospital (I have to stay for the first hour) Today, as expected, my skin reaction was much more pronounced. If things go as expected I'll have my worst swelling so far, and I''ve been warned to watch for systemic reactions. But I am just a few blocks from the hospital, so I am not too concerned about that..only about the swelling to come. I am icing my thigh and have cozy clothes and no demands.

    We are staying overnight here, then driving back to las vegas tomorrow and I don't have to fly again till monday, so hopefully by then the swelling will be down.

    We've made quite the trip out of this LAST trip down here. We flew into Las Vegas to have a couple of nights of Hannukah with bob's dad ( I need to update the off topic board on Joe!) then drove down here on tuesday. This last visit included a skin test, which we did on Wednesday morning. This is a simple thing, a tiny injection just under the skin on the arm. then they mark it and 'read' it 48 hours later. So we did that and had all afternoon Wednesday and all day Thursday to hang out at the beach! We are staying on the Balboa Penninsula, and we've had a dandy time escaping the 2 feet of sloggy, refrozen snow in Spokane.

    Along with the skin test on Wed., they drew blood. About 3 or 4 vials in my blood just stopped flowing, and so I got jabbed a few more times before they had success getting a vein for the OTHER 4 vials. yikes!

    Today was my last visit to the Hoag. The rest of my followup will be done via phone calls and emails. And my doc will be sharing scan reports and labs on a certain schedule..every 6 months I think. My next scans aren't scheduled till March, unless my local Oncologist decides to move them up to January. I see him next week.

    I will keep my fingers crossed that this vaccine has been effective for me. I remained NED a long time (11 months) while my cell line was growing, so I'll never know, if I stay NED, if it is because of the vaccine, or if I would have stayed NED anyway. But I am constantly reminding myself that it's been over 2 yrs now since I moved to stage IV, and 19 months now that I've been NED. It's a fabulous thing to be thankful for.

    Dian

     

     

     

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  • Replies
      lhaley
      Participant

      Yahoo!!  So glad you have successfully completed the trial!!  19 months is a great accomplishment also!

      Linda

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      lhaley
      Participant

      Yahoo!!  So glad you have successfully completed the trial!!  19 months is a great accomplishment also!

      Linda

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      MaryD
      Participant

      Congatulations Dian!   First for being done  . .and seocndly for being NED for over 2 years. .fantastic news!

      And you're topping it off with some nice side trips too so enjoy!

       

      Mary

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      MaryD
      Participant

      Congatulations Dian!   First for being done  . .and seocndly for being NED for over 2 years. .fantastic news!

      And you're topping it off with some nice side trips too so enjoy!

       

      Mary

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      Jackie W
      Participant

      Congratulations, Dian.  You finally did it. I rememer the wait and wait and wait.  Have a blast in Vegas.

       

      Hugs,

       

      Jackie W

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      Jackie W
      Participant

      Congratulations, Dian.  You finally did it. I rememer the wait and wait and wait.  Have a blast in Vegas.

       

      Hugs,

       

      Jackie W

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      LynnLuc
      Participant

      Sounds awesome!! Good luck and hope you trmain NED!

       I opted for this other vaccine trial since I am NED…the 26th will be 8 months…I get 6 hugh injections of peptides in my thigh every other week as well as MDX 1106 in my arm…Just finsihed the first 12 weeks. I get scans and apheresis next week and if I am still NED I go on for another 12…I have to ice my thigh down until its frozen…I now have 36 large hard hot  red lumps in my thighs and half are still reacting…Dr Weber says I am having really good reactions so I hope it does it's job!

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      LynnLuc
      Participant

      Sounds awesome!! Good luck and hope you trmain NED!

       I opted for this other vaccine trial since I am NED…the 26th will be 8 months…I get 6 hugh injections of peptides in my thigh every other week as well as MDX 1106 in my arm…Just finsihed the first 12 weeks. I get scans and apheresis next week and if I am still NED I go on for another 12…I have to ice my thigh down until its frozen…I now have 36 large hard hot  red lumps in my thighs and half are still reacting…Dr Weber says I am having really good reactions so I hope it does it's job!

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      jag
      Participant

      Congratulations Dian!  I hope to see you posting when you are 1009 months NED.  

      Oh wait, that would be an extra 84 years in which case I don't think either one of us wants to be alive that long.  

      If so, scan in your presidential 100th birthday letter and post it!

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      jag
      Participant

      Congratulations Dian!  I hope to see you posting when you are 1009 months NED.  

      Oh wait, that would be an extra 84 years in which case I don't think either one of us wants to be alive that long.  

      If so, scan in your presidential 100th birthday letter and post it!

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      Sharyn
      Participant

      That's wonderful news, Dian!!! I'm so happy for you! I just had my last infusion of ipi for this phase, and I don't have to go back until March. Isn't it great to be off the hook for needles and blood tests for awhile?  I hope your NED status stays durable. And who cares if it's because of your own immune system or the vaccine — You're NED, and that's what's most important! Congratulations!

      Hugs

      Sharyn, Stage IV

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      Sharyn
      Participant

      That's wonderful news, Dian!!! I'm so happy for you! I just had my last infusion of ipi for this phase, and I don't have to go back until March. Isn't it great to be off the hook for needles and blood tests for awhile?  I hope your NED status stays durable. And who cares if it's because of your own immune system or the vaccine — You're NED, and that's what's most important! Congratulations!

      Hugs

      Sharyn, Stage IV

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      Jim in Denver
      Participant

      Hi Dian,

      Thanks for the update – good to hear you are doing well!  I love your positive attitude and great sense of humor.   Hope your next scans are good (I get my scans next week).  May you be NED for a very, very long time!

      Best,

      Jim

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      Jim in Denver
      Participant

      Hi Dian,

      Thanks for the update – good to hear you are doing well!  I love your positive attitude and great sense of humor.   Hope your next scans are good (I get my scans next week).  May you be NED for a very, very long time!

      Best,

      Jim

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        JerryfromFauq
        Participant

        Enjoy my dear, Now where are you going to run to next?  Glad to see that series done and pulling for NED to hang around for many years!

         

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        JerryfromFauq
        Participant

        Enjoy my dear, Now where are you going to run to next?  Glad to see that series done and pulling for NED to hang around for many years!

         

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      Jerry from Cape Cod
      Participant

      Congratulations Dian

      Jerry from Cape Cod

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      Jerry from Cape Cod
      Participant

      Congratulations Dian

      Jerry from Cape Cod

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