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MacVac, 5th shot
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MacVac, 5th shot

› Forums › General Melanoma Community › MacVac, 5th shot

  • Post
    • September 16, 2010 at 7:11 pm
    dian in spokane
    Participant

      I am back in California where I visited the HOAG yesterday for my 5th vaccine shot. Only 3 more to go!

      I had worse side effects this time than any other, and was glad to have bob here with me, AND that I had a hotel room last night and was not sitting on an airplane. My pretreatment (tylenol and codeine) did nothing to stop my headache, and by evening I ached all over..even the joints in my fingers and toes hurt, and I was sick to my stomach, so skipped dinner altogether and climbed into bed with the shivers..even though it was a LOVELY evening here.

      I am back in California where I visited the HOAG yesterday for my 5th vaccine shot. Only 3 more to go!

      I had worse side effects this time than any other, and was glad to have bob here with me, AND that I had a hotel room last night and was not sitting on an airplane. My pretreatment (tylenol and codeine) did nothing to stop my headache, and by evening I ached all over..even the joints in my fingers and toes hurt, and I was sick to my stomach, so skipped dinner altogether and climbed into bed with the shivers..even though it was a LOVELY evening here.

      But, as usual, I felt much better this morning and I'm up for a nice vacation day at the beach with my sweetheart. Getting ready right now to walk down to the pier to find some lunch spot.

      I have PET/CT scheduled for Monday, so we'll see then if I am still NED. It will be my first scan since I started the vaccine. I'll get the results on friday.

      That's it for my update!

      dian

    Viewing 17 reply threads
    • Replies
        • September 16, 2010 at 7:52 pm
        molly
        Participant

          Glad you are feeling better today and hope you have a WONDERFUL week-end!

          molly

          • September 16, 2010 at 7:52 pm
          molly
          Participant

            Glad you are feeling better today and hope you have a WONDERFUL week-end!

            molly

            • September 16, 2010 at 11:57 pm
            King
            Participant

              Dian,

               

              Thanks for the update.  I'm sorry you felt like you did yesterday but happy to hear that you bounced back today.  I hope you and Cigar Bob enjoyed the day.

              Good thoughts and prayers for your upcoming PET/CT.

               

              Stay Strong
              King

              Stage IV 7/05 Liver mets

              • September 16, 2010 at 11:57 pm
              King
              Participant

                Dian,

                 

                Thanks for the update.  I'm sorry you felt like you did yesterday but happy to hear that you bounced back today.  I hope you and Cigar Bob enjoyed the day.

                Good thoughts and prayers for your upcoming PET/CT.

                 

                Stay Strong
                King

                Stage IV 7/05 Liver mets

                • September 17, 2010 at 12:22 am
                Janner
                Participant

                  Sorry about the side effects, but glad you're feeling better today.  You and Bob have FUN!

                  Cheers,

                  Janner

                  • September 17, 2010 at 12:22 am
                  Janner
                  Participant

                    Sorry about the side effects, but glad you're feeling better today.  You and Bob have FUN!

                    Cheers,

                    Janner

                    • September 17, 2010 at 12:55 am
                    DebbieH
                    Participant

                      Wow dian – only THREE more,  you're nearly done already!

                      I'm sorry you had such a reaction but maybe that means it's doing it's job on the mel – so glad you and Bob were together and you could just go rest.

                      Good luck with the PET – hoping for more of you and NED.

                      Smooch

                      Deb

                        • September 17, 2010 at 2:11 am
                        dian in spokane
                        Participant

                          today was pretty low key for me, I never really felt 100 percent.

                          I talked to my trial nurse who did confirm that the effects are cummulative, and that if things get too bad for me They can try to pre treat me, or lower or remove the gmcsf from the mix. But.. heck, even if it gets worse from here, it's still a pretty easy peasy treatment compared to a lot of stuff, so I'll just stick it out

                          Headed home tomorrow.

                          thanks for all the well wishes folks

                           

                          dian

                          • September 17, 2010 at 2:11 am
                          dian in spokane
                          Participant

                            today was pretty low key for me, I never really felt 100 percent.

                            I talked to my trial nurse who did confirm that the effects are cummulative, and that if things get too bad for me They can try to pre treat me, or lower or remove the gmcsf from the mix. But.. heck, even if it gets worse from here, it's still a pretty easy peasy treatment compared to a lot of stuff, so I'll just stick it out

                            Headed home tomorrow.

                            thanks for all the well wishes folks

                             

                            dian

                          • September 17, 2010 at 12:55 am
                          DebbieH
                          Participant

                            Wow dian – only THREE more,  you're nearly done already!

                            I'm sorry you had such a reaction but maybe that means it's doing it's job on the mel – so glad you and Bob were together and you could just go rest.

                            Good luck with the PET – hoping for more of you and NED.

                            Smooch

                            Deb

                            • September 17, 2010 at 2:35 am
                            lhaley
                            Participant

                              Dian,

                              You are over the hump – the half way point!  Hope that tomorrow you will be back to feeling 100% and your scans will be clear!

                              Linda

                              • September 17, 2010 at 2:35 am
                              lhaley
                              Participant

                                Dian,

                                You are over the hump – the half way point!  Hope that tomorrow you will be back to feeling 100% and your scans will be clear!

                                Linda

                                • September 17, 2010 at 3:15 am
                                Jackie W
                                Participant

                                  Sorry  to hear about the side effects, but thankfully it's better today.  Good luck with the scans on Mon and please let us know the results.

                                  Hugs,

                                  Jackie W

                                   

                                  • September 17, 2010 at 3:15 am
                                  Jackie W
                                  Participant

                                    Sorry  to hear about the side effects, but thankfully it's better today.  Good luck with the scans on Mon and please let us know the results.

                                    Hugs,

                                    Jackie W

                                     

                                    • September 17, 2010 at 12:10 pm
                                    Bonnie Lea
                                    Participant

                                      Oh I am hoping fingers crossed even prayers for you to have a most favourable outcome.  Keep on fighting Dian….

                                      BonnieLea

                                      • September 17, 2010 at 12:10 pm
                                      Bonnie Lea
                                      Participant

                                        Oh I am hoping fingers crossed even prayers for you to have a most favourable outcome.  Keep on fighting Dian….

                                        BonnieLea

                                        • September 17, 2010 at 12:38 pm
                                        Sharyn
                                        Participant

                                          Hi Dian,

                                          So happy to hear you're feeling better and can take in some of that California sunshine. (Not too much, though!) :>) In 2009, I had 3 FL vacations ruined because of side effects, so I know  how relieved you must feel to be able to have a bit of fun. Great that you're nearing the end of your treatment too. Let us know how your scans go on Monday. Enjoy your weekend.

                                          Hugs

                                          Sharyn

                                          Stage IV

                                          • September 17, 2010 at 12:38 pm
                                          Sharyn
                                          Participant

                                            Hi Dian,

                                            So happy to hear you're feeling better and can take in some of that California sunshine. (Not too much, though!) :>) In 2009, I had 3 FL vacations ruined because of side effects, so I know  how relieved you must feel to be able to have a bit of fun. Great that you're nearing the end of your treatment too. Let us know how your scans go on Monday. Enjoy your weekend.

                                            Hugs

                                            Sharyn

                                            Stage IV

                                            • September 17, 2010 at 2:03 pm
                                            jag
                                            Participant

                                              Dian, sorry to hear about the blues.  

                                              Hopefully soon you will have good news.

                                              Tell Melvac not to dee diddle.

                                              You need to be fit as a fiddle.

                                               

                                              • September 17, 2010 at 2:03 pm
                                              jag
                                              Participant

                                                Dian, sorry to hear about the blues.  

                                                Hopefully soon you will have good news.

                                                Tell Melvac not to dee diddle.

                                                You need to be fit as a fiddle.

                                                 

                                            Viewing 17 reply threads
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