› Forums › General Melanoma Community › Just found out I have melanoma. Help!!!
- This topic has 18 replies, 8 voices, and was last updated 5 years, 5 months ago by lkb.
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- November 1, 2018 at 2:18 am
Sorry about the anonymous first posting, I'm new. I just found out that I have "malignant melanoma". I am scheduled for a consultation tomorrow to get ready for a upcoming test/surgery next week. Getting a Sentinal lymph node test and Wide local excision. I'm 69 and I admit I'm nervous. I have been shot at,blown up and stabbed but that was when I thought I was immortal. I could sure use some advice now.
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- November 1, 2018 at 5:37 am
Hi Mike
sorry you have had to join the group
at this stage don’t panic!! Hopefully your melanoma will be in situ only and your lymph node biopsy will be clear. If that’s the case you may not require any further treatment and you can carry on with life but just avoid the sun more than you used to. If the results aren’t so good then there are lots of very good treatment options available to you. I wouldn’t worry about that too much at the moment and just deal with what comes along.
best of luck
mark
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- November 1, 2018 at 1:10 pm
Thanks MarkR I'll post as I go
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- November 1, 2018 at 5:50 am
Hi, Mike! Sorry you have to be here, but glad you found this site. Great folks, and lots and lots of knowledge to steer you in the right direction.
My number one piece of advice at this stage of the game — stay off the internet (except for this site 😉 )! Don't Google melanoma stats as most everything out there is very, very dated.
I'm assuming that if you are already scheduled for a sentinel lymph node biopsy that your pathology showed a lesion of greater than 1cm. (Typically anything under .75cm would not require an SLNB.) If you'd like, post the actual pathology report here and folks can provide you with even more information. If the SLNB shows no spread to the lymph node, then your WLE will be the end of this process! Your doctor will probably want you to come in for skin checks every three months for a year, and then less often after that — but otherwise you are good to go. If there is melanoma found in the lymph node, then the process gets a bit more complicated. The first, and most important, thing that you must do at that point is get to a melanoma specialist. That's not an oncologist that treats melanoma along with other cancers; you need someone who deals with only melanoma day in and day out. Why? Because the treatments are changing at such a fast pace that only the true specialists will be able to keep up, and they will have access to clinical trials that other oncologists will not.
But … let's not jump the gun. Let's hope for a clear node and an easy recovery from the WLE!!!
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- November 1, 2018 at 1:18 pm
Thanks Janner
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- November 1, 2018 at 8:37 pm
Thanks, Janner! I'll edit it if possible!!
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- November 1, 2018 at 1:17 pm
Thank you Susan. I will get a copy of the report and post. Being proactive, where would I look for a melanoma specialists? Just for your info, my dermatologists referred me to a plastic surgern for the test and surgery. I guess he knows what he's doing by the referral, right?
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- November 1, 2018 at 2:01 pm
You don't necessarily need a specialist unless your SLNB comes back positive. A specialist is needed when treatments are an option. If your SLNB is negative, then no treatments will be offered. A plastic surgeon is fine as long as they regularly do SLNB. Usually these docs would do melanoma and breast cancer because breast cancer also utilitzes the SLNB. You can ask the plastic surgeon if he is a specialist with the SLNB. It's always nice to have a derm who specializes in cancer only but that isn't always possible. As for finding a melanoma specialist if your SLNB is positive, you will typically be looking for larger institutions. There are resources on this site to help you find one. If you don't live near a specialist, often times you can work with a local doc who will consult with a specialist. But you're not there yet so don't get ahead of yourself.
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- November 3, 2018 at 8:34 am
Thanks Janner
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- November 1, 2018 at 9:54 pm
Hi Mike, just to double up on Janner's advice, my initial diagnosis was via a walk in clinic and a needle biospy which resulted in the clinic arranging for a handful of hospital tests and apppointments with a cancer surgeon and plastic surgeon, one to perform the SLNB and WLE, the other to close the flap and stitch up the wound on my lower back. As mine hadn't spread to the lymph nodes it was 3 monthly appointments with the dermatologist, I didn't see an oncologist until, 2 yrs later, when I became one of the 20% that progressed, then its whole different ball game. Not even worth thinking about that until you get the outcome of the WLE/SLNB.
Tony
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- November 3, 2018 at 8:35 am
Thank you Tony
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- November 1, 2018 at 5:05 pm
MortalMike! Im gunna go out on a limb here, judging by your post & age that you gave, you may be a Vietnam Veteran? Im sure of it and Welcome Home uncle Mike!
Your gunna be ok, once you get past the surgery it get under control with immunal meds! Put it this way, you arrived on the scene with Melanoma at a Perfect Time! There’s alot of good stuff for ya! PLEASE STAY CLOSE TO US here at MRF (The website your on right now) and let us know whats going on, or to just ask questions & or speak your mind! Take care Mike…-
- November 3, 2018 at 8:36 am
Thank you melanomaMike and you can bet I'll be here
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- November 1, 2018 at 9:22 pm
Mortal Mike, I wish you hadn't been shot at, blown up and stabbed; I also wish you didn't have melanoma. I am, however, glad you found us here. The support helps me every day. Hope your consultation today was helpful; wishing you good results next week. Keep us posted.
Lisa
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- November 3, 2018 at 8:40 am
Thank you Lisa. As far as the consult, it was good until he got to the part about making this quarter size hole in my chest from the first cut for the biopsy to about 3 times bigger with stiches. Thats planned for Monday.
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- November 1, 2018 at 9:46 pm
Welcome to the Forum, Mortal!
I’d add that if you need a melanoma specialist, it’s just that you don’t want a general dermatologist or general oncologist. You want docs who spend most of their time on melanoma, a primary focus. If it’s less than 100% because they treat another serious type of skin cancer that’s okay.
It’s 2018, not 2008, and as an expert here has written, there’s been time for docs to get up to speed on best treatments, so it’s a little less of a needle-in-a-haystack search, at least in some parts of the U.S.
How the process went for us, which may be somewhat typical, was that my husband saw a general dermatologist, who had a plastic surgeon remove a large, suspicious looking mole (aka the scary Halloween mole). When diagnosed as melanoma, the dermatologist provided three places for the next step, which he assumed would be a WLE and SLNB. (It was.)
We decided which one by asking which he’d choose if it was for him or his wife. By then I’d googled a bit and the director’s name had popped up more than once.
Sometimes choices get confusing and the pros here (not me!) can help you sort out options and questions to ask. But often treatment can be fairly straight forward. We’d thought we’d travel to get a second opinion, but after finding this forum and reading some of Celeste’s (Bubbles’) primer emailing, saved ourselves a trip and time, because the treatment recommended was clearly what was called for.
It takes some time to get the new lingo and alphabet soup under your belt and develop your sea legs.
Wishing you the best, and let us know how it goes.
Beth
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- November 3, 2018 at 8:41 am
Thank you Beth
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