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Just celebrated 11 years of NED at stage IIIB

Forums General Melanoma Community Just celebrated 11 years of NED at stage IIIB

  • Post
    AlisonC
    Participant

      Hi all,

      I got such a lot of support from this board some years back and feel bad that I am not here more often to "pay it forward"…..each year it's my mantra to try and give more back.

      Hi all,

      I got such a lot of support from this board some years back and feel bad that I am not here more often to "pay it forward"…..each year it's my mantra to try and give more back.

      Just stopping by to say though, that I just marked 11 years NED since my lymph node dissection and clinical trial.  I've been the uber-compliant patient from complementary treatment perspectives – meditate, juice, exercise etc etc (thank goodness even complementary treatment protocols include wine and chocolate !!) as well as all my mainstream medical stuff (excisions, clinical trials, scans etc) and so far so good.  Maybe an indolent mel but I'll never forget how it felt to walk down the corridor labelled "oncology" for my first meeting with my (wonderful) doc.

      And thanks to the MRF and this board in it's various incarnations over the years.  It's been a lifesaver every bit as much as my medical team was…..(so far).

      Taking nothing for granted but very pleased to have beaten the 10 year mark….

      thinking of you all

      AlisonC

      Stage IIIB

      NED since 2001

    Viewing 26 reply threads
    • Replies
        JoshF
        Participant
          Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

          Josh

          JoshF
          Participant
            Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

            Josh

            JoshF
            Participant
              Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

              Josh

              Linny
              Participant

                That's fantastic news, Alison! Here's to 11 more! yes

                It's uplifting to read stories such as yours.

                Linny
                Participant

                  That's fantastic news, Alison! Here's to 11 more! yes

                  It's uplifting to read stories such as yours.

                  Linny
                  Participant

                    That's fantastic news, Alison! Here's to 11 more! yes

                    It's uplifting to read stories such as yours.

                    CherylL
                    Participant

                      Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

                      Keep up the great work….and CELEBRATE!

                      CherylL
                      Wife of Scott, Stage 4 and SQUASHING it!

                      CherylL
                      Participant

                        Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

                        Keep up the great work….and CELEBRATE!

                        CherylL
                        Wife of Scott, Stage 4 and SQUASHING it!

                        CherylL
                        Participant

                          Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

                          Keep up the great work….and CELEBRATE!

                          CherylL
                          Wife of Scott, Stage 4 and SQUASHING it!

                          mel123
                          Participant

                            From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this ๐Ÿ™‚ I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

                            mel123
                            Participant

                              From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this ๐Ÿ™‚ I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

                              mel123
                              Participant

                                From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this ๐Ÿ™‚ I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

                                Swanee
                                Participant

                                  Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

                                  It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

                                  Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

                                  Swanee

                                  Swanee
                                  Participant

                                    Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

                                    It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

                                    Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

                                    Swanee

                                    Swanee
                                    Participant

                                      Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

                                      It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

                                      Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

                                      Swanee

                                      triciad
                                      Participant

                                        Alison,

                                        What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

                                        Happy holiday!

                                        Tricia

                                        triciad
                                        Participant

                                          Alison,

                                          What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

                                          Happy holiday!

                                          Tricia

                                          triciad
                                          Participant

                                            Alison,

                                            What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

                                            Happy holiday!

                                            Tricia

                                            BethA in VA
                                            Participant

                                              Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

                                              BethA in VA
                                              Participant

                                                Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

                                                BethA in VA
                                                Participant

                                                  Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

                                                  DonW
                                                  Participant

                                                    Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

                                                    DonW
                                                    Participant

                                                      Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

                                                      DonW
                                                      Participant

                                                        Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

                                                        michelleg
                                                        Participant

                                                          Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

                                                           

                                                          Michelle/ 3B

                                                          michelleg
                                                          Participant

                                                            Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

                                                             

                                                            Michelle/ 3B

                                                            michelleg
                                                            Participant

                                                              Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

                                                               

                                                              Michelle/ 3B

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