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Just an update.

Forums General Melanoma Community Just an update.

  • Post
    himynameiskevin
    Participant

      Hey everyone, I've been home from the hospital since friday. I tolerated 11 bags of IL-2 the scond round. The side effects were much worse this time as I was told and expected. I've been taking it easy, resting and recovering here at home. Happy to say that today I finally feel like myself again. Got my first good nights sleep in weeks and only lingering effects are dry hands and a little body itching. And all i do now is wait, I get another Mri in a couple weeks and a ct scan in 5 weeks and see if these things are shrinking. It's kind of nice, these 5 weeks of waiting…

      Hey everyone, I've been home from the hospital since friday. I tolerated 11 bags of IL-2 the scond round. The side effects were much worse this time as I was told and expected. I've been taking it easy, resting and recovering here at home. Happy to say that today I finally feel like myself again. Got my first good nights sleep in weeks and only lingering effects are dry hands and a little body itching. And all i do now is wait, I get another Mri in a couple weeks and a ct scan in 5 weeks and see if these things are shrinking. It's kind of nice, these 5 weeks of waiting… no appointments, no hospitals, no bad news, almost like 5 a five week vacation. Time to focus on being me again. Going to get back into the mix at work. I plan on spending alot of time outdoors, staying busy and being active as much as I can. Fill my mind with all the thoughts I had before all of this. Make my self mentally and emotionally healthy inhopes the physical will follow. Just going enjoy this time I have here and try to manifest some positve news from the doctor. We'll see. Hoping and praying.

       

       

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    • Replies
        Sherron
        Participant

          Hey Kevin,

          Enjoy your time off….you deserve a break.  Wishing you the very best.

          Take Care,

          Sherron, wife to Jim

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          Sherron
          Participant

            Hey Kevin,

            Enjoy your time off….you deserve a break.  Wishing you the very best.

            Take Care,

            Sherron, wife to Jim

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            triciad
            Participant

              Kevin,

              I'm so happy things are going well…the power of positive thoought!  You have been and will remain in my daily prayers.  Keep the fight going!

              Tricia

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              triciad
              Participant

                Kevin,

                I'm so happy things are going well…the power of positive thoought!  You have been and will remain in my daily prayers.  Keep the fight going!

                Tricia

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                KatyWI
                Participant

                  Yes!  Enjoy that time off.  I usually had a PET scan after about 4 weeks – will you as well?  I hope it shows good response for you (even though that would mean you'd have to go back – bleck!)

                  Enjoy sleeping in your own bed, next to your own wife, under your own roof, and may the only beeping that disturbs your rest be the blasted alarm clock in the morning. 

                  KatyWI

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                  KatyWI
                  Participant

                    Yes!  Enjoy that time off.  I usually had a PET scan after about 4 weeks – will you as well?  I hope it shows good response for you (even though that would mean you'd have to go back – bleck!)

                    Enjoy sleeping in your own bed, next to your own wife, under your own roof, and may the only beeping that disturbs your rest be the blasted alarm clock in the morning. 

                    KatyWI

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                    lhaley
                    Participant

                      Kevin,

                      Sounds like you did amazing. You certainly have a good attitude. Enjoy these next few weeks and try to put melanoma in a box in the closet while you wait.

                      Sending hugs,

                      Linda

                      Stage IV Waiting for surgery

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                      lhaley
                      Participant

                        Kevin,

                        Sounds like you did amazing. You certainly have a good attitude. Enjoy these next few weeks and try to put melanoma in a box in the closet while you wait.

                        Sending hugs,

                        Linda

                        Stage IV Waiting for surgery

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                        jag
                        Participant

                          Kevin, I am amazed by how well you are doing(physically and mentally) Enjoy your time off, definitely take that beautiful wife of yours on a trip someplace nice with a good dinner.  

                          God Bless, and stay well

                          John

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                            himynameiskevin
                            Participant

                              Yep I am, I'm taking her to disneyland on Monday, a suprise, I have the whole day planned. It's her favorite place on earth. A thank you from me to her for continuous support. And also just cause I like to see her smile. Should be fun. :)

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                              himynameiskevin
                              Participant

                                Yep I am, I'm taking her to disneyland on Monday, a suprise, I have the whole day planned. It's her favorite place on earth. A thank you from me to her for continuous support. And also just cause I like to see her smile. Should be fun. :)

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                              jag
                              Participant

                                Kevin, I am amazed by how well you are doing(physically and mentally) Enjoy your time off, definitely take that beautiful wife of yours on a trip someplace nice with a good dinner.  

                                God Bless, and stay well

                                John

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                                Rocco
                                Participant
                                  Clinical Trial ParticipantNED

                                  Kevin,

                                  Congrats on taking 11 bags on your second round.  Sounds like you have the right plan, rest, relax, recharge.  Hang in there!  You'll get a lot of support from this board….I sure did when I went through IL-2.   Enjoy the 'down time'.

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                                  Rocco
                                  Participant
                                    Clinical Trial ParticipantNED

                                    Kevin,

                                    Congrats on taking 11 bags on your second round.  Sounds like you have the right plan, rest, relax, recharge.  Hang in there!  You'll get a lot of support from this board….I sure did when I went through IL-2.   Enjoy the 'down time'.

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                                    King
                                    Participant

                                      Kevin,

                                       

                                      Thanks for the update.  I love your attitude!  Enjoy the time…

                                       

                                      Stay Strong
                                      King

                                      Stage IV 7/05 Liver mets

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                                      King
                                      Participant

                                        Kevin,

                                         

                                        Thanks for the update.  I love your attitude!  Enjoy the time…

                                         

                                        Stay Strong
                                        King

                                        Stage IV 7/05 Liver mets

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                                        Fen
                                        Participant

                                           

                                          Glad to hear you're getting over the last batch, Kevin.  Enjoy this time and keep us posted when you feel like it.

                                           

                                          Fen

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                                          Fen
                                          Participant

                                             

                                            Glad to hear you're getting over the last batch, Kevin.  Enjoy this time and keep us posted when you feel like it.

                                             

                                            Fen

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                                            dian in spokane
                                            Participant

                                              Kevin,

                                              11 bags! you brute! congratulations. I'm so glad you are feeling better, and hope you get to enjoy the next 5 weeks without too much worrying, and that your strength and good health return.

                                              And of course, most importantly, I hope you have a complete durable response. Not everyone is able to tolerate IL 2 but I've met several long term stage IV patients from here who credit IL 2 with turning their lives around.

                                              May you join their ranks!

                                              dian

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                                              dian in spokane
                                              Participant

                                                Kevin,

                                                11 bags! you brute! congratulations. I'm so glad you are feeling better, and hope you get to enjoy the next 5 weeks without too much worrying, and that your strength and good health return.

                                                And of course, most importantly, I hope you have a complete durable response. Not everyone is able to tolerate IL 2 but I've met several long term stage IV patients from here who credit IL 2 with turning their lives around.

                                                May you join their ranks!

                                                dian

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                                                JuleFL
                                                Participant

                                                  Great job, Kevin.  Enjoy your 5 week vacation!

                                                  Jule

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                                                  JuleFL
                                                  Participant

                                                    Great job, Kevin.  Enjoy your 5 week vacation!

                                                    Jule

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                                                    Jim in Denver
                                                    Participant

                                                      Hi Kevin,

                                                      Sending positive thoughts and best wishes to you.  Thanks so much for posting – you have many supporters out here who are pulling for you!

                                                      Best,

                                                      Jim

                                                       

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                                                        himynameiskevin
                                                        Participant

                                                          Just want to say thank you all for the continuous positive feedback. To log on and see new replies from numerous people wishing me well, it means more than I can even begin to explain. Thanks you all so much.  -Kevin

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                                                          Laurie from maine
                                                          Participant

                                                            Good for you, amazing job!  So glad you are going to take monday and just go enjoy! 

                                                            take care

                                                            laurie from maine

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                                                            Laurie from maine
                                                            Participant

                                                              Good for you, amazing job!  So glad you are going to take monday and just go enjoy! 

                                                              take care

                                                              laurie from maine

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                                                              himynameiskevin
                                                              Participant

                                                                Just want to say thank you all for the continuous positive feedback. To log on and see new replies from numerous people wishing me well, it means more than I can even begin to explain. Thanks you all so much.  -Kevin

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                                                              Jim in Denver
                                                              Participant

                                                                Hi Kevin,

                                                                Sending positive thoughts and best wishes to you.  Thanks so much for posting – you have many supporters out here who are pulling for you!

                                                                Best,

                                                                Jim

                                                                 

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