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Julie (Gabsound) How are you doing?
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Julie (Gabsound) How are you doing?

› Forums › General Melanoma Community › Julie (Gabsound) How are you doing?

  • Post
    • April 5, 2013 at 4:42 pm
    killmel
    Participant

      Hi Julie,

       

      I was happy to see you posts today. How are you doing? Are you still on Pd1?

       

      I am sending positive thoughts & prayers your way!

       

      MaryBeth

      Hi Julie,

       

      I was happy to see you posts today. How are you doing? Are you still on Pd1?

       

      I am sending positive thoughts & prayers your way!

       

      MaryBeth

    Viewing 5 reply threads
    • Replies
        • April 5, 2013 at 5:40 pm
        gabsound
        Participant
          The PD1 didn’t work for me, I progressed. I started a chemo combo of Abraxane, avastin and carboplatin. After the first dose one of my palpable tumors completely disappeared. My LDH also dropped about 400 points so it looks like this could be effective. I was also able to stop all my pain medication. The chemo causes some pretty significant fatigue for the first week after. I’m doing better this week although I’ve had to stop work which is a real adjustment in itself. Awaiting the loss of my hair 🙁 but someday I’ll get it back.

          Julie

            • April 7, 2013 at 1:27 pm
            Linny
            Participant

              Aside from the side effects, it sounds like this combo is kicking some melanoma-butt. I'm really happy to hear you were able to stop your pain meds.

              Don't worry even about the hair. Like you said, you'll get it back. smiley

              Is it possible for you to have your treatment scheduled for the end of the week, like on a Friday? This way you might be able to use the weekend to recuperate and at least get a few days of work in at the beginning of the week.

              • April 7, 2013 at 3:38 pm
              NYKaren
              Participant
                Julie, ditto to what Linny says! Seriously, most if not all insurance pays for or toward a wig if you want one. They do get hot, some pretty scarves and of course big-brimmed hats sound lovely for summer.
                Karen.
                • April 7, 2013 at 3:38 pm
                NYKaren
                Participant
                  Julie, ditto to what Linny says! Seriously, most if not all insurance pays for or toward a wig if you want one. They do get hot, some pretty scarves and of course big-brimmed hats sound lovely for summer.
                  Karen.
                  • April 7, 2013 at 3:38 pm
                  NYKaren
                  Participant
                    Julie, ditto to what Linny says! Seriously, most if not all insurance pays for or toward a wig if you want one. They do get hot, some pretty scarves and of course big-brimmed hats sound lovely for summer.
                    Karen.
                    • April 7, 2013 at 1:27 pm
                    Linny
                    Participant

                      Aside from the side effects, it sounds like this combo is kicking some melanoma-butt. I'm really happy to hear you were able to stop your pain meds.

                      Don't worry even about the hair. Like you said, you'll get it back. smiley

                      Is it possible for you to have your treatment scheduled for the end of the week, like on a Friday? This way you might be able to use the weekend to recuperate and at least get a few days of work in at the beginning of the week.

                      • April 7, 2013 at 1:27 pm
                      Linny
                      Participant

                        Aside from the side effects, it sounds like this combo is kicking some melanoma-butt. I'm really happy to hear you were able to stop your pain meds.

                        Don't worry even about the hair. Like you said, you'll get it back. smiley

                        Is it possible for you to have your treatment scheduled for the end of the week, like on a Friday? This way you might be able to use the weekend to recuperate and at least get a few days of work in at the beginning of the week.

                      • April 5, 2013 at 5:40 pm
                      gabsound
                      Participant
                        The PD1 didn’t work for me, I progressed. I started a chemo combo of Abraxane, avastin and carboplatin. After the first dose one of my palpable tumors completely disappeared. My LDH also dropped about 400 points so it looks like this could be effective. I was also able to stop all my pain medication. The chemo causes some pretty significant fatigue for the first week after. I’m doing better this week although I’ve had to stop work which is a real adjustment in itself. Awaiting the loss of my hair 🙁 but someday I’ll get it back.

                        Julie

                        • April 5, 2013 at 5:40 pm
                        gabsound
                        Participant
                          The PD1 didn’t work for me, I progressed. I started a chemo combo of Abraxane, avastin and carboplatin. After the first dose one of my palpable tumors completely disappeared. My LDH also dropped about 400 points so it looks like this could be effective. I was also able to stop all my pain medication. The chemo causes some pretty significant fatigue for the first week after. I’m doing better this week although I’ve had to stop work which is a real adjustment in itself. Awaiting the loss of my hair 🙁 but someday I’ll get it back.

                          Julie

                          • April 7, 2013 at 11:35 pm
                          gabsound
                          Participant
                            I’m all set, knave a wig and ordered a hat with a brim and a scarf that should show up at my door this week.

                            I’m short of breath and too fatigued to work at all. I hope that will not be long lasting. I have applied for SS disability.

                            Julie

                              • April 24, 2013 at 5:13 pm
                              MeNDave
                              Participant

                                Keep kicking mel's butt Julie – you are an amazing person!!

                                • April 24, 2013 at 5:13 pm
                                MeNDave
                                Participant

                                  Keep kicking mel's butt Julie – you are an amazing person!!

                                  • April 24, 2013 at 5:13 pm
                                  MeNDave
                                  Participant

                                    Keep kicking mel's butt Julie – you are an amazing person!!

                                  • April 7, 2013 at 11:35 pm
                                  gabsound
                                  Participant
                                    I’m all set, knave a wig and ordered a hat with a brim and a scarf that should show up at my door this week.

                                    I’m short of breath and too fatigued to work at all. I hope that will not be long lasting. I have applied for SS disability.

                                    Julie

                                    • April 7, 2013 at 11:35 pm
                                    gabsound
                                    Participant
                                      I’m all set, knave a wig and ordered a hat with a brim and a scarf that should show up at my door this week.

                                      I’m short of breath and too fatigued to work at all. I hope that will not be long lasting. I have applied for SS disability.

                                      Julie

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