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Itching and burning feeling after ippi treatment

Forums General Melanoma Community Itching and burning feeling after ippi treatment

  • Post
    Scooby123
    Participant

    Hi everyone,

    can anyone tell me if they have had itching legs plus I know I had six mels bottom of spin and it feels like my skin is burning and plus I could easally scratch it. Not seeing my consultant till 5th November .

    scooby 

Viewing 17 reply threads
  • Replies
      geriakt
      Participant

      Yes itch skin all the time with Yervoy and Opdivo. Joint pain and always tired. You should be seeing you DR every other week while on treatment.  I am.

      Tom

      geriakt
      Participant

      Yes itch skin all the time with Yervoy and Opdivo. Joint pain and always tired. You should be seeing you DR every other week while on treatment.  I am.

      Tom

        Jubes
        Participant

        Hi tom

        are you taking anything for the joint pain?

        Anne-Louise 

        geriakt
        Participant

        My lower back pain comes and goes. I take Percocets for it. 

        Tom

        geriakt
        Participant

        My lower back pain comes and goes. I take Percocets for it. 

        Tom

        geriakt
        Participant

        My lower back pain comes and goes. I take Percocets for it. 

        Tom

        Jubes
        Participant

        Hi tom

        are you taking anything for the joint pain?

        Anne-Louise 

        Jubes
        Participant

        Hi tom

        are you taking anything for the joint pain?

        Anne-Louise 

      geriakt
      Participant

      Yes itch skin all the time with Yervoy and Opdivo. Joint pain and always tired. You should be seeing you DR every other week while on treatment.  I am.

      Tom

      Patina
      Participant

      When my Mom Yerovy 4 days after gamma knife radiation (aka SRS) for brain mets the tumors on her head and neck started "tingling" and became firmer a few days to weeks later.  These for her were really good signs. They quickly disappeared and even the blue "vein" are gone. 

      Hopefully this means its working for you too 🙂

      Patina
      Participant

      When my Mom Yerovy 4 days after gamma knife radiation (aka SRS) for brain mets the tumors on her head and neck started "tingling" and became firmer a few days to weeks later.  These for her were really good signs. They quickly disappeared and even the blue "vein" are gone. 

      Hopefully this means its working for you too 🙂

      Patina
      Participant

      When my Mom Yerovy 4 days after gamma knife radiation (aka SRS) for brain mets the tumors on her head and neck started "tingling" and became firmer a few days to weeks later.  These for her were really good signs. They quickly disappeared and even the blue "vein" are gone. 

      Hopefully this means its working for you too 🙂

      Marianne quinn
      Participant

      My husband had itchy legs while on ipi. Took Benadryl and used lotion. Slept with nothing on his legs. It was worse at night. He took loradatinre during the day if it was bad. The itching disappeared after a couple of months after the last dose of ipi. He always wore clothes that were not tight and especially not hot. No sweat pants. Hope that helps.. 

      Marianne quinn
      Participant

      My husband had itchy legs while on ipi. Took Benadryl and used lotion. Slept with nothing on his legs. It was worse at night. He took loradatinre during the day if it was bad. The itching disappeared after a couple of months after the last dose of ipi. He always wore clothes that were not tight and especially not hot. No sweat pants. Hope that helps.. 

      Marianne quinn
      Participant

      My husband had itchy legs while on ipi. Took Benadryl and used lotion. Slept with nothing on his legs. It was worse at night. He took loradatinre during the day if it was bad. The itching disappeared after a couple of months after the last dose of ipi. He always wore clothes that were not tight and especially not hot. No sweat pants. Hope that helps.. 

      Scooby123
      Participant

      Hi ,

      I completed ippi in July this is my longest period 3 months since seeing my consultant always had itchy legs and worse at night. What was worrying me was I've started itching and got a burning feeling at the bottom of my back I have 6 mels under my skin some where round  about. Could it be treatment still at the mels or worried it could be they are growing . Will have to ring my nurse just to check see what she thinks. I am away next week going to spain for a break seeing my consultant 5th November so 2 weeks away .

      thanks for info means a lot 

      scooby❤️

      Scooby123
      Participant

      Hi ,

      I completed ippi in July this is my longest period 3 months since seeing my consultant always had itchy legs and worse at night. What was worrying me was I've started itching and got a burning feeling at the bottom of my back I have 6 mels under my skin some where round  about. Could it be treatment still at the mels or worried it could be they are growing . Will have to ring my nurse just to check see what she thinks. I am away next week going to spain for a break seeing my consultant 5th November so 2 weeks away .

      thanks for info means a lot 

      scooby❤️

      Scooby123
      Participant

      Hi ,

      I completed ippi in July this is my longest period 3 months since seeing my consultant always had itchy legs and worse at night. What was worrying me was I've started itching and got a burning feeling at the bottom of my back I have 6 mels under my skin some where round  about. Could it be treatment still at the mels or worried it could be they are growing . Will have to ring my nurse just to check see what she thinks. I am away next week going to spain for a break seeing my consultant 5th November so 2 weeks away .

      thanks for info means a lot 

      scooby❤️

      momof4boys
      Participant
      Sarna lotion works pretty good. I took benadryl at night and then was switched to something prescription. I went through in the winter and I could literally dig the skin off my legs, so yes normal!
      momof4boys
      Participant
      Sarna lotion works pretty good. I took benadryl at night and then was switched to something prescription. I went through in the winter and I could literally dig the skin off my legs, so yes normal!
      momof4boys
      Participant
      Sarna lotion works pretty good. I took benadryl at night and then was switched to something prescription. I went through in the winter and I could literally dig the skin off my legs, so yes normal!
      mrsaxde
      Participant

      I got a lovely itchy rash a few days after my first ipi treatment. The nurses in the cancer center looked at it and said "Ah, you have the ipi rash." But that rash was almost totally confined to my chest and back.

      Since starting Keytruda, I've been itching again, but not as badly, and this time it's almost totally confined to my legs.

      -Bill

      mrsaxde
      Participant

      I got a lovely itchy rash a few days after my first ipi treatment. The nurses in the cancer center looked at it and said "Ah, you have the ipi rash." But that rash was almost totally confined to my chest and back.

      Since starting Keytruda, I've been itching again, but not as badly, and this time it's almost totally confined to my legs.

      -Bill

        Scooby123
        Participant

        Thank you for your comments

        scooby123

        Scooby123
        Participant

        Thank you for your comments

        scooby123

        Scooby123
        Participant

        Thank you for your comments

        scooby123

      mrsaxde
      Participant

      I got a lovely itchy rash a few days after my first ipi treatment. The nurses in the cancer center looked at it and said "Ah, you have the ipi rash." But that rash was almost totally confined to my chest and back.

      Since starting Keytruda, I've been itching again, but not as badly, and this time it's almost totally confined to my legs.

      -Bill

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