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ipilmumab

Forums General Melanoma Community ipilmumab

  • Post
    Nebr78
    Participant

    I am back again.  Does anyone know how to get ipilimumab in Nebraska?  They have quit treating me as they think the chemos that will do any good will be too hard on the heart. I have had heart disease for 40+ yrs. and heart is not in good shape.  Maybe this ipil will do the job. Tumors are growing. Maybe the side effects of ipili will not affect my heart.  The FDA is taking a long time in approving it, it seems. Thanks.

    I am back again.  Does anyone know how to get ipilimumab in Nebraska?  They have quit treating me as they think the chemos that will do any good will be too hard on the heart. I have had heart disease for 40+ yrs. and heart is not in good shape.  Maybe this ipil will do the job. Tumors are growing. Maybe the side effects of ipili will not affect my heart.  The FDA is taking a long time in approving it, it seems. Thanks.

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  • Replies
      jim Breitfeller
      Participant

      You are going to need to go to a major Melanoma Care Center to recieve Ipi compassionate care.

      http://clinicaltrials.gov/ct2/show/study/NCT00495066?term=melanoma+Ipilimumab&recr=Open&rank=8&show_locs=Y#locn

       

       

      United States, Nebraska
      Creighton University Recruiting
      Omaha, Nebraska, United States, 68131
      Contact: Peter Silberstein, Site 123     402-280-3432        

       

      United States, Kansas
      Hutchinson Clinic Recruiting
      Hutchinson, Kansas, United States, 67502
      Contact: Mark R Fesen, Site 018     620-694-2053        

       

       

      United States, Colorado
      University of Colorado Anschutz Cancer Pavilion Recruiting
      Aurora, Colorado, United States, 80045
      Contact: William A. Robinson, Site 015     720-848-0561        
      Rocky Mountain Cancer Centers Recruiting
      Denver, Colorado, United States, 80218
      Contact: Allen Cohn, Site 095     303-580-6662        
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      jim Breitfeller
      Participant

      You are going to need to go to a major Melanoma Care Center to recieve Ipi compassionate care.

      http://clinicaltrials.gov/ct2/show/study/NCT00495066?term=melanoma+Ipilimumab&recr=Open&rank=8&show_locs=Y#locn

       

       

      United States, Nebraska
      Creighton University Recruiting
      Omaha, Nebraska, United States, 68131
      Contact: Peter Silberstein, Site 123     402-280-3432        

       

      United States, Kansas
      Hutchinson Clinic Recruiting
      Hutchinson, Kansas, United States, 67502
      Contact: Mark R Fesen, Site 018     620-694-2053        

       

       

      United States, Colorado
      University of Colorado Anschutz Cancer Pavilion Recruiting
      Aurora, Colorado, United States, 80045
      Contact: William A. Robinson, Site 015     720-848-0561        
      Rocky Mountain Cancer Centers Recruiting
      Denver, Colorado, United States, 80218
      Contact: Allen Cohn, Site 095     303-580-6662        
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      lhaley
      Participant

      Charles,

      I know that you can get ippi at places that are not on that list! 

      I know of 2 oncologists that are offering the compassionate care in SC that are not on the list that someone just posted for you!  Both are not at major medical centers.  I don't know where you can find out in Nebraska but my suggestion is to either contact the company directly to ask or e-mail Tim at this site and see if he knows.

      Another thought is to change your heading and post again. Something like Ippi in Nebraska?  Someone posted the other day about being in the trial. Not sure if it was at one of the major cancer centers or not.

      Wishing you the best,

      Linda

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      lhaley
      Participant

      Charles,

      I know that you can get ippi at places that are not on that list! 

      I know of 2 oncologists that are offering the compassionate care in SC that are not on the list that someone just posted for you!  Both are not at major medical centers.  I don't know where you can find out in Nebraska but my suggestion is to either contact the company directly to ask or e-mail Tim at this site and see if he knows.

      Another thought is to change your heading and post again. Something like Ippi in Nebraska?  Someone posted the other day about being in the trial. Not sure if it was at one of the major cancer centers or not.

      Wishing you the best,

      Linda

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      Jackie W
      Participant

      Creighton University is offering ipi.  The contact person is Peter Silberstein, phone number is 402-280-3432.  

       

      Jackie W

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        Nebr78
        Participant

        I tried Creighton Un.   They won't touch me.  The lump in front of ear is starting to hurt quite a bit now.  Keep eating pain pills.

        Can anyone tell me how big these bumps get.   Do they get real big and burst or what.  My family Dr. recommended I not have it cut out.  Lot of nerves in face and will look deformed.  Lump in lymp node growing but not much pain associated with that one.  However once in awhile I have pain in back of arm pit.  Lump is in front.  Sure is discouraging when you can't treat one illness because you have another one. (Heart)  I suppose if FDA ever approves ipili Dr.will not give it to me because of side effects.

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        Nebr78
        Participant

        I tried Creighton Un.   They won't touch me.  The lump in front of ear is starting to hurt quite a bit now.  Keep eating pain pills.

        Can anyone tell me how big these bumps get.   Do they get real big and burst or what.  My family Dr. recommended I not have it cut out.  Lot of nerves in face and will look deformed.  Lump in lymp node growing but not much pain associated with that one.  However once in awhile I have pain in back of arm pit.  Lump is in front.  Sure is discouraging when you can't treat one illness because you have another one. (Heart)  I suppose if FDA ever approves ipili Dr.will not give it to me because of side effects.

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        jim Breitfeller
        Participant

        You might ask your doctor about

        Topical Imiquimod in the Treatment

        of Metastatic Melanoma to Skin.

        http://archderm.ama-assn.org/cgi/reprint/139/3/273.pdf

         

        http://www.medscape.com/viewarticle/540908_3

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        jim Breitfeller
        Participant

        You might ask your doctor about

        Topical Imiquimod in the Treatment

        of Metastatic Melanoma to Skin.

        http://archderm.ama-assn.org/cgi/reprint/139/3/273.pdf

         

        http://www.medscape.com/viewarticle/540908_3

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      Jackie W
      Participant

      Creighton University is offering ipi.  The contact person is Peter Silberstein, phone number is 402-280-3432.  

       

      Jackie W

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