Ipilimumab – 1 year NED anniversary :-)
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Ipilimumab – 1 year NED anniversary :-)

› Forums › General Melanoma Community › Ipilimumab – 1 year NED anniversary :-)

  • Post
    • May 29, 2012 at 2:23 pm
    willtolive
    Participant

    Hi everyone.

    Just got the news today: The PET/CT scans revealed that my wife is still NED – 1 year since we were told that Ipilimumab had worked so well. For those of you who cannot remember my wife, please click on my profile/my earlier posts to read more about our story. The battle has been going on for 5½ years now, but for the first time, we do dare dream of a future and freedom, without this ugly disease playing such a huge part.

    Hi everyone.

    Just got the news today: The PET/CT scans revealed that my wife is still NED – 1 year since we were told that Ipilimumab had worked so well. For those of you who cannot remember my wife, please click on my profile/my earlier posts to read more about our story. The battle has been going on for 5½ years now, but for the first time, we do dare dream of a future and freedom, without this ugly disease playing such a huge part.

    I hope so many of you will still keep faith. Stay positive, because believing is half the way to freedom.

     

    Kind regards

    willtolive

Viewing 20 reply threads
  • Replies
      • May 29, 2012 at 4:16 pm
      killmel
      Participant

      Congrats…so happy for you both.

      Did your wife have any long term side effects from IPI, that she is still living with today?

      Beth

      • May 29, 2012 at 4:16 pm
      killmel
      Participant

      Congrats…so happy for you both.

      Did your wife have any long term side effects from IPI, that she is still living with today?

      Beth

      • May 29, 2012 at 4:16 pm
      killmel
      Participant

      Congrats…so happy for you both.

      Did your wife have any long term side effects from IPI, that she is still living with today?

      Beth

        • May 30, 2012 at 7:20 pm
        willtolive
        Participant

        Hi Beth

        No, she doesnt have any sideeffects today.

        • May 30, 2012 at 7:20 pm
        willtolive
        Participant

        Hi Beth

        No, she doesnt have any sideeffects today.

        • May 30, 2012 at 7:20 pm
        willtolive
        Participant

        Hi Beth

        No, she doesnt have any sideeffects today.

      • May 29, 2012 at 6:25 pm
      heronlover
      Participant

      I am so glad to read when a melanoma warrior continues to be NED.  Congratulations and many, many more good scans.  Paula

      • May 29, 2012 at 6:25 pm
      heronlover
      Participant

      I am so glad to read when a melanoma warrior continues to be NED.  Congratulations and many, many more good scans.  Paula

      • May 29, 2012 at 6:25 pm
      heronlover
      Participant

      I am so glad to read when a melanoma warrior continues to be NED.  Congratulations and many, many more good scans.  Paula

      • May 29, 2012 at 6:26 pm
      aldakota22
      Participant

      Great news May it only be the first year of a lifetime of NED anniversaries.Keeping you in my prayers.  Al

      • May 29, 2012 at 6:26 pm
      aldakota22
      Participant

      Great news May it only be the first year of a lifetime of NED anniversaries.Keeping you in my prayers.  Al

      • May 29, 2012 at 6:26 pm
      aldakota22
      Participant

      Great news May it only be the first year of a lifetime of NED anniversaries.Keeping you in my prayers.  Al

        • May 29, 2012 at 9:19 pm
        Snickers60
        Participant

        OH PRAISE THE LORD !!!  CONGRATULATIONS SEEMS SO TRITE for such a HUGE FEIT !  

         Oh my, it's post like this that keep me going !   That give me hope !!!  That keep

        me from losing my mind !   THANK YOU SOOOO MUCH FOR COMING TO POST THIS ! 

        PRAYERS FOR MANY, MANY YEARS CALLING HER "NED" !!!!!   :-)))))))))

        • May 29, 2012 at 9:19 pm
        Snickers60
        Participant

        OH PRAISE THE LORD !!!  CONGRATULATIONS SEEMS SO TRITE for such a HUGE FEIT !  

         Oh my, it's post like this that keep me going !   That give me hope !!!  That keep

        me from losing my mind !   THANK YOU SOOOO MUCH FOR COMING TO POST THIS ! 

        PRAYERS FOR MANY, MANY YEARS CALLING HER "NED" !!!!!   :-)))))))))

        • May 29, 2012 at 9:19 pm
        Snickers60
        Participant

        OH PRAISE THE LORD !!!  CONGRATULATIONS SEEMS SO TRITE for such a HUGE FEIT !  

         Oh my, it's post like this that keep me going !   That give me hope !!!  That keep

        me from losing my mind !   THANK YOU SOOOO MUCH FOR COMING TO POST THIS ! 

        PRAYERS FOR MANY, MANY YEARS CALLING HER "NED" !!!!!   :-)))))))))

      • May 31, 2012 at 12:40 am
      Roxy1453
      Participant
      Congrats!! Such great news! Here to many more years NED!!
      Nancy
      • May 31, 2012 at 12:40 am
      Roxy1453
      Participant
      Congrats!! Such great news! Here to many more years NED!!
      Nancy
      • May 31, 2012 at 12:40 am
      Roxy1453
      Participant
      Congrats!! Such great news! Here to many more years NED!!
      Nancy
      • May 31, 2012 at 4:33 am
      gabsound
      Participant
      Fantastic news!!! Wishing you continued NED.

      Julie in Las Vegas

      • May 31, 2012 at 4:33 am
      gabsound
      Participant
      Fantastic news!!! Wishing you continued NED.

      Julie in Las Vegas

      • May 31, 2012 at 4:33 am
      gabsound
      Participant
      Fantastic news!!! Wishing you continued NED.

      Julie in Las Vegas

      • June 3, 2012 at 2:25 am
      Carla Edge
      Participant

      I am new to the boards, but wanted to tell you thanks for sharing your good news.  Your story is inspiring!  It has only been a few months, but TIL hasn't seemed to work just yet for my husband.  Looks like we are headed in the IPI direction next.  He is feeling lousy from the radiation.  We expected that, but didn't expect it to be quite this exhausting.  We are frustrated he is feeling bad and worried about choosing ipi or the braf route.  I read your post and it all became clear that we were going the right direction with ipi and that there was hope.  Thanks for offering that at such a difficult time 🙂  Here's to many more NED annis for you both!  Cheers 🙂

      • June 3, 2012 at 2:25 am
      Carla Edge
      Participant

      I am new to the boards, but wanted to tell you thanks for sharing your good news.  Your story is inspiring!  It has only been a few months, but TIL hasn't seemed to work just yet for my husband.  Looks like we are headed in the IPI direction next.  He is feeling lousy from the radiation.  We expected that, but didn't expect it to be quite this exhausting.  We are frustrated he is feeling bad and worried about choosing ipi or the braf route.  I read your post and it all became clear that we were going the right direction with ipi and that there was hope.  Thanks for offering that at such a difficult time 🙂  Here's to many more NED annis for you both!  Cheers 🙂

      • June 3, 2012 at 2:25 am
      Carla Edge
      Participant

      I am new to the boards, but wanted to tell you thanks for sharing your good news.  Your story is inspiring!  It has only been a few months, but TIL hasn't seemed to work just yet for my husband.  Looks like we are headed in the IPI direction next.  He is feeling lousy from the radiation.  We expected that, but didn't expect it to be quite this exhausting.  We are frustrated he is feeling bad and worried about choosing ipi or the braf route.  I read your post and it all became clear that we were going the right direction with ipi and that there was hope.  Thanks for offering that at such a difficult time 🙂  Here's to many more NED annis for you both!  Cheers 🙂

        • June 6, 2012 at 10:03 pm
        Kelly7
        Participant

        Thank you for sharing your inspiring story. It gives me so much hope for my brother that has lung mets and is on his 3rd dose of Yervoy!

        Thank you for sharing!

        • June 6, 2012 at 10:03 pm
        Kelly7
        Participant

        Thank you for sharing your inspiring story. It gives me so much hope for my brother that has lung mets and is on his 3rd dose of Yervoy!

        Thank you for sharing!

        • June 6, 2012 at 10:03 pm
        Kelly7
        Participant

        Thank you for sharing your inspiring story. It gives me so much hope for my brother that has lung mets and is on his 3rd dose of Yervoy!

        Thank you for sharing!

      • September 17, 2014 at 1:16 am
      MrsMolly
      Participant

      Congratulations!  That's so awesome. 

      • September 17, 2014 at 1:16 am
      MrsMolly
      Participant

      Congratulations!  That's so awesome. 

      • September 17, 2014 at 1:16 am
      MrsMolly
      Participant

      Congratulations!  That's so awesome. 

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