The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Ipi – reporting my side effects

Forums General Melanoma Community Ipi – reporting my side effects

  • Post
    Lisa13
    Participant

    As of this Friday, it will be 3 weeks since my first ipi treatment.  Today I have noticed a rash across my upper chest as well as on my face (across cheek bones). My face is very warm and looks a bit sunburnt. My stomach has also been gurgling, but nothing other than that.  Hopefully this is all a good sign. Blood work and next ipi treatment next week.

    Lisa – Stage 4 – lung mets

    As of this Friday, it will be 3 weeks since my first ipi treatment.  Today I have noticed a rash across my upper chest as well as on my face (across cheek bones). My face is very warm and looks a bit sunburnt. My stomach has also been gurgling, but nothing other than that.  Hopefully this is all a good sign. Blood work and next ipi treatment next week.

    Lisa – Stage 4 – lung mets

Viewing 7 reply threads
  • Replies
      lyndaloo
      Participant

      Thanks for sharing Lisa, I have been thinking about you and hoping that the ipi kicks in and starts to work!!

      lyndaloo
      Participant

      Thanks for sharing Lisa, I have been thinking about you and hoping that the ipi kicks in and starts to work!!

      nicoli
      Participant

      Thanks for sharing. I am waiting for my braf  test results and know my option of ipi if negative. Hoping and praying you respond completely to ipi!

      Nicki, stage 4, scalp, lung, adrenal

      nicoli
      Participant

      Thanks for sharing. I am waiting for my braf  test results and know my option of ipi if negative. Hoping and praying you respond completely to ipi!

      Nicki, stage 4, scalp, lung, adrenal

      mclaus23
      Participant

      From what I read and hear sounds like it is a response indicating it's working!

      This is great news Lisa! I will continue to pray for you

      My dad will go for his second ipi next week too!

       

      Maggie

        Lisa13
        Participant

        Thanks everyone!

        I did ask my Dr if the symptoms meant the drug is working. He said that it's not an indication it's working on the disease, but indicates my immune system is responding. You just have to hope the immune system continues to respond and work how it's supposed to.

        Best of luck with your Dad Maggie.

        Lisa 

        Lisa13
        Participant

        Thanks everyone!

        I did ask my Dr if the symptoms meant the drug is working. He said that it's not an indication it's working on the disease, but indicates my immune system is responding. You just have to hope the immune system continues to respond and work how it's supposed to.

        Best of luck with your Dad Maggie.

        Lisa 

      mclaus23
      Participant

      From what I read and hear sounds like it is a response indicating it's working!

      This is great news Lisa! I will continue to pray for you

      My dad will go for his second ipi next week too!

       

      Maggie

      AlanM
      Participant
      Sounds like your immune system is revving up and that is a good thing! Best of luck to you.
      Alan
      AlanM
      Participant
      Sounds like your immune system is revving up and that is a good thing! Best of luck to you.
      Alan
Viewing 7 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.