Ipi destroying thyroid

Amy,

As you know, my thyroid issues are actually pituitary issues… but def from the ipi. My Dr did say that many times the endocrine issues are permanent and treated with replacement hormones. I am thinking I'd let them test your levels, though, next time you are there. It would be good to know what the trend is, and how else would they know when it "settles down" to where it will be. Also, if the levels were extremely low, they may reconsider not treating it yet.Do you know if they have tested your TSH, just to be sure it is not pituitary related? It would end up being treated the same, I think, but if it was pituitary related, they would want to check some other levels, too. Just some thoughts….

Really, I guess it is nothing short of amazing that our bodies continue to function so well with all that some of them have been subjected to!! 

Tina

Amy,

As you know, my thyroid issues are actually pituitary issues… but def from the ipi. My Dr did say that many times the endocrine issues are permanent and treated with replacement hormones. I am thinking I'd let them test your levels, though, next time you are there. It would be good to know what the trend is, and how else would they know when it "settles down" to where it will be. Also, if the levels were extremely low, they may reconsider not treating it yet.Do you know if they have tested your TSH, just to be sure it is not pituitary related? It would end up being treated the same, I think, but if it was pituitary related, they would want to check some other levels, too. Just some thoughts….

Really, I guess it is nothing short of amazing that our bodies continue to function so well with all that some of them have been subjected to!! 

Tina

Amy,

As you know, my thyroid issues are actually pituitary issues… but def from the ipi. My Dr did say that many times the endocrine issues are permanent and treated with replacement hormones. I am thinking I'd let them test your levels, though, next time you are there. It would be good to know what the trend is, and how else would they know when it "settles down" to where it will be. Also, if the levels were extremely low, they may reconsider not treating it yet.Do you know if they have tested your TSH, just to be sure it is not pituitary related? It would end up being treated the same, I think, but if it was pituitary related, they would want to check some other levels, too. Just some thoughts….

Really, I guess it is nothing short of amazing that our bodies continue to function so well with all that some of them have been subjected to!! 

Tina

I don't know if my experience helps or not, but for what it's worth: my thyroid was pretty much destryed by radiation several years ago (not melanoma), My TSH level was something like 200 (normals range something like 0.5-12.0???). Anyway, that meant that my pituitary gland was over-producing TSH because my thryroid was not doing its job (hypothyroid). I remember being very tired, and  just "not feeling right." The doctor actually was telling me that what I was feeling was "normal" after all I'd been through (chemo and radiation for Hodgkins Lyphoma). He did the TSH test just for the heck of it and was shocked when he got the results. I've been on synthroid ever since with no further problems or issues.

In my  opinion, I'd get the blood tests and keep my eye on those TSH levels.

Good luck,

Janet Lee

I don't know if my experience helps or not, but for what it's worth: my thyroid was pretty much destryed by radiation several years ago (not melanoma), My TSH level was something like 200 (normals range something like 0.5-12.0???). Anyway, that meant that my pituitary gland was over-producing TSH because my thryroid was not doing its job (hypothyroid). I remember being very tired, and  just "not feeling right." The doctor actually was telling me that what I was feeling was "normal" after all I'd been through (chemo and radiation for Hodgkins Lyphoma). He did the TSH test just for the heck of it and was shocked when he got the results. I've been on synthroid ever since with no further problems or issues.

In my  opinion, I'd get the blood tests and keep my eye on those TSH levels.

Good luck,

Janet Lee

I don't know if my experience helps or not, but for what it's worth: my thyroid was pretty much destryed by radiation several years ago (not melanoma), My TSH level was something like 200 (normals range something like 0.5-12.0???). Anyway, that meant that my pituitary gland was over-producing TSH because my thryroid was not doing its job (hypothyroid). I remember being very tired, and  just "not feeling right." The doctor actually was telling me that what I was feeling was "normal" after all I'd been through (chemo and radiation for Hodgkins Lyphoma). He did the TSH test just for the heck of it and was shocked when he got the results. I've been on synthroid ever since with no further problems or issues.

In my  opinion, I'd get the blood tests and keep my eye on those TSH levels.

Good luck,

Janet Lee