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In all likelyhood my 4 weeks of NED are over
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In all likelyhood my 4 weeks of NED are over

› Forums › General Melanoma Community › In all likelyhood my 4 weeks of NED are over

  • Post
    • June 30, 2011 at 4:58 pm
    lhaley
    Participant

      I'm stunned right now.  I had surgery 4 weeks ago tomorrow.  Started radiation along the ulner nerve on Monday. On Tuesday I actually saw a lump on my lower arm, about 4 inches below the surgery site. When I went into radiation I pointed it out to the radiologist. She was concerned but thought it could be a blood vessel.  I thought it got smaller the next day. 

      I'm stunned right now.  I had surgery 4 weeks ago tomorrow.  Started radiation along the ulner nerve on Monday. On Tuesday I actually saw a lump on my lower arm, about 4 inches below the surgery site. When I went into radiation I pointed it out to the radiologist. She was concerned but thought it could be a blood vessel.  I thought it got smaller the next day. 

      Today I had an appointment with my local oncologist (happened to be scheduled appointment). The radiologist had called her. She thinks it's melanoma. Said it felt exactly like the  tumor that she felt on me last summer.  Has a call  into my mel specialist for the next step. 

      It makes sense because all of a sudden the nerves were really bothering me again on that arm. I was hoping it was from using it to much and the positioning during radiation.   What doesn't make sense is that the first node was closer to the arm pit, the second one was closer to the elbow, this one if it is mel is on the other side of the elbow.  Doesn't disease traditionally follow the pathway to the heart?  It's going in the wrong direction.

      A break of more than 4 weeks would sure have been appreciated!

      Linda

      5 year cancerversary of stage IV is July 6th.  Would like it to be while I'm NED!!

    Viewing 19 reply threads
    • Replies
        • June 30, 2011 at 6:14 pm
        AS123
        Participant

          I am so sorry to hear this, Linda! I will be praying that the lump is not Melanoma and that you get to celebrate on July 6th NED!! I'll drink a glass of wine in your honor that day to celebrate your 5 years. 🙂 Do you still go to Blumenthal Cancer Center? If so, that's where I go- maybe I will see you there sometime!

          Anne

          • June 30, 2011 at 6:14 pm
          AS123
          Participant

            I am so sorry to hear this, Linda! I will be praying that the lump is not Melanoma and that you get to celebrate on July 6th NED!! I'll drink a glass of wine in your honor that day to celebrate your 5 years. 🙂 Do you still go to Blumenthal Cancer Center? If so, that's where I go- maybe I will see you there sometime!

            Anne

            • June 30, 2011 at 6:18 pm
            StevenK
            Participant

              I'm very sorry, Linda. I hope it is something else. Praying for you.

              Steve

                • June 30, 2011 at 7:15 pm
                Lisa13
                Participant

                  I hope this lump is nothing either. In February, I had an egg sized lump in my groin which my surgical oncologist said was cancer. After two biopsy's, it wasn't anything other than my immune system doing it's job. Turned out I had cancer in the lymph node beside it. My oncologist was shocked and said she hadn't seen anything like that before. You just never know and I hope in your case, it's nothing to worry about.

                  Let's hope the NED continues!

                  Lisa – Stage 4

                  • June 30, 2011 at 7:15 pm
                  Lisa13
                  Participant

                    I hope this lump is nothing either. In February, I had an egg sized lump in my groin which my surgical oncologist said was cancer. After two biopsy's, it wasn't anything other than my immune system doing it's job. Turned out I had cancer in the lymph node beside it. My oncologist was shocked and said she hadn't seen anything like that before. You just never know and I hope in your case, it's nothing to worry about.

                    Let's hope the NED continues!

                    Lisa – Stage 4

                  • June 30, 2011 at 6:18 pm
                  StevenK
                  Participant

                    I'm very sorry, Linda. I hope it is something else. Praying for you.

                    Steve

                    • June 30, 2011 at 7:59 pm
                    LynnLuc
                    Participant

                      Hey Linda here is a couple lymph links   http://rdoc.org.uk/eve/forums/a/tpc/f/46510549/m/7021084912

                       

                      This link about the lymphatic system will show how the lymph flows

                       

                       

                      Sorry about the new one 🙁

                      • June 30, 2011 at 7:59 pm
                      LynnLuc
                      Participant

                        Hey Linda here is a couple lymph links   http://rdoc.org.uk/eve/forums/a/tpc/f/46510549/m/7021084912

                         

                        This link about the lymphatic system will show how the lymph flows

                         

                         

                        Sorry about the new one 🙁

                        • June 30, 2011 at 8:38 pm
                        Sherron
                        Participant

                          That stinks,Linda….I am so sorry….I think Mel  does what it wantS to, when it wants, any direction it wants too….Jim's went from right side of scalp behind the right ear, to that node. then jumped to the opposite side (left)  under the arm, then in front of the left ear, then to places all over the back close to the spine before going on into the intestines…..It does what it wants…It is an ugly beast that consumes some of the ones we  love.  I am glad you have a very supportive family….and sweet grandbaby to love on….that helps everything…Keep on keeping on…see you on Face Book, my friend…

                          Take care..sending hugs, love, and prayers,

                          Sherron, wife to Jim FOREVER

                          • June 30, 2011 at 8:38 pm
                          Sherron
                          Participant

                            That stinks,Linda….I am so sorry….I think Mel  does what it wantS to, when it wants, any direction it wants too….Jim's went from right side of scalp behind the right ear, to that node. then jumped to the opposite side (left)  under the arm, then in front of the left ear, then to places all over the back close to the spine before going on into the intestines…..It does what it wants…It is an ugly beast that consumes some of the ones we  love.  I am glad you have a very supportive family….and sweet grandbaby to love on….that helps everything…Keep on keeping on…see you on Face Book, my friend…

                            Take care..sending hugs, love, and prayers,

                            Sherron, wife to Jim FOREVER

                            • June 30, 2011 at 8:38 pm
                            dian in spokane
                            Participant

                              Linda, sorry for this news.

                              My thoughts are with you. Sometimes the road just won't smooth out for us eh?

                              Keeping you in my thoughts girl.

                              is the radiation off now?

                              dian

                                • June 30, 2011 at 9:25 pm
                                lhaley
                                Participant

                                  Just got a call from the mel specialists nurse. Of course I wasn't home.  He wants to see me and wants to call the radiation off. Since he hadn't talked to me he wants the rad onc to call him before treatment tomorrow. I think he is tinking tomorrow is the first day, it would have been the 5th.  Wouldn't you know they just tatooed me yesterday! 

                                  With the holiday I'm assuming he will see me on Tuesday.  A little smoothness on this road would really be nice! 

                                  Linda

                                  • July 1, 2011 at 2:28 am
                                  King
                                  Participant

                                    Hi Linda,

                                     

                                    I'm so sorry that you can't seem to catch a break.  You've been dealing with this long enough and know that only a biopsy will confirm or rule out melanoma.  I hope you can find out sooner rather than later.  The uncertainty and waiting is so difficult.

                                     

                                    Thinking of you.

                                     

                                    Stay Strong
                                    King

                                    Stage IV 7/05 Liver mets

                                    • July 1, 2011 at 2:28 am
                                    King
                                    Participant

                                      Hi Linda,

                                       

                                      I'm so sorry that you can't seem to catch a break.  You've been dealing with this long enough and know that only a biopsy will confirm or rule out melanoma.  I hope you can find out sooner rather than later.  The uncertainty and waiting is so difficult.

                                       

                                      Thinking of you.

                                       

                                      Stay Strong
                                      King

                                      Stage IV 7/05 Liver mets

                                      • June 30, 2011 at 9:25 pm
                                      lhaley
                                      Participant

                                        Just got a call from the mel specialists nurse. Of course I wasn't home.  He wants to see me and wants to call the radiation off. Since he hadn't talked to me he wants the rad onc to call him before treatment tomorrow. I think he is tinking tomorrow is the first day, it would have been the 5th.  Wouldn't you know they just tatooed me yesterday! 

                                        With the holiday I'm assuming he will see me on Tuesday.  A little smoothness on this road would really be nice! 

                                        Linda

                                      • June 30, 2011 at 8:38 pm
                                      dian in spokane
                                      Participant

                                        Linda, sorry for this news.

                                        My thoughts are with you. Sometimes the road just won't smooth out for us eh?

                                        Keeping you in my thoughts girl.

                                        is the radiation off now?

                                        dian

                                        • June 30, 2011 at 10:59 pm
                                        shellebrownies
                                        Participant

                                          Well, we will just have to pray that it's something else. I really want you to reach that mark NED! Keeping you in my thoughts.

                                          Michelle, wife of Don

                                          • June 30, 2011 at 10:59 pm
                                          shellebrownies
                                          Participant

                                            Well, we will just have to pray that it's something else. I really want you to reach that mark NED! Keeping you in my thoughts.

                                            Michelle, wife of Don

                                            • June 30, 2011 at 11:04 pm
                                            akls
                                            Participant

                                              Linda,

                                              I'm sorry your going through all this.  I hope this turns out to be nothing. 

                                              Amy S. in Michigan

                                              • June 30, 2011 at 11:04 pm
                                              akls
                                              Participant

                                                Linda,

                                                I'm sorry your going through all this.  I hope this turns out to be nothing. 

                                                Amy S. in Michigan

                                                • June 30, 2011 at 11:12 pm
                                                Rebecca and Bob
                                                Participant

                                                  Linda,

                                                   

                                                  I keep hoping everytime i see an update from you it's going to be good news. I'm praying that you get a break from this stupid melanoma. Do the doc's think you should do a systematic approach if it's mel again?

                                                  Again, I'm sorry your going through this gain.

                                                   

                                                  Rebecca

                                                  • June 30, 2011 at 11:12 pm
                                                  Rebecca and Bob
                                                  Participant

                                                    Linda,

                                                     

                                                    I keep hoping everytime i see an update from you it's going to be good news. I'm praying that you get a break from this stupid melanoma. Do the doc's think you should do a systematic approach if it's mel again?

                                                    Again, I'm sorry your going through this gain.

                                                     

                                                    Rebecca

                                                    • July 1, 2011 at 8:16 am
                                                    James from Sydney
                                                    Participant

                                                      Hi Linda

                                                      I am sure things will work out. I hope to hear that you are NED very soon.

                                                      best wishes

                                                      James

                                                        • July 1, 2011 at 12:42 pm
                                                        Vermont_Donna
                                                        Participant

                                                          Dear Linda,

                                                          GEEZUM CROW as we say here in Vermont! I want you to be NED and to be stress free and carefree!!! I hope that you can get in on Tuesday (of course things happen weekends, evenings and Holidays it seems!).

                                                          I'll be thinking positive thoughts for you!

                                                          Vermont_Donna, stage 3a NED

                                                          • July 1, 2011 at 12:42 pm
                                                          Vermont_Donna
                                                          Participant

                                                            Dear Linda,

                                                            GEEZUM CROW as we say here in Vermont! I want you to be NED and to be stress free and carefree!!! I hope that you can get in on Tuesday (of course things happen weekends, evenings and Holidays it seems!).

                                                            I'll be thinking positive thoughts for you!

                                                            Vermont_Donna, stage 3a NED

                                                          • July 1, 2011 at 8:16 am
                                                          James from Sydney
                                                          Participant

                                                            Hi Linda

                                                            I am sure things will work out. I hope to hear that you are NED very soon.

                                                            best wishes

                                                            James

                                                            • July 1, 2011 at 4:40 pm
                                                            ValinMtl
                                                            Participant

                                                              Dear Linda..I'm so sorry to hear this, how disheartening…I do hope that just maybe it isn't melanoma and that you are still NED…she hasn't said defnitely but rather 'she thinks'…it just might be something reacting to the surgery you had…keeping this thought in my mind with prayers and hoping you are still NED for July 6th!  Val

                                                              • July 1, 2011 at 4:40 pm
                                                              ValinMtl
                                                              Participant

                                                                Dear Linda..I'm so sorry to hear this, how disheartening…I do hope that just maybe it isn't melanoma and that you are still NED…she hasn't said defnitely but rather 'she thinks'…it just might be something reacting to the surgery you had…keeping this thought in my mind with prayers and hoping you are still NED for July 6th!  Val

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