I'm sad and heartbroken to report that last Sunday, I lost my soul mate, father of my children, and love of my life from this horrible disease. He fought for almost 7 years, 5 1/2 of those stage IV. Most of those years he was asymptotic until this past August when the beast came back very aggressive in his omentum and small intestine. He was on Taf/Mek for exactly 3 months when the beast reappeared even more aggressive and this time he developed malignant ascites in addition to the tumor regrowth in his intestines and peritoneum. The next step was ipi/nivo which he had 1 round. Between November & December he was in the ER & hospitalized 3 times with various issues, but of most concern were his kidneys. He went to the ER his final time on December 9th and his kidneys were failing and never recovered. He passed away surrounded by myself and our kids on Sunday December 17th.
So hard to watch a man who was so strong get so sick in a matter of a few months. I guess that's the nature of this beast.
I want to thank all of you who contribute to this site. I came here often for advice, support, and hope. This group is amazing. My husbands Melanoma specialist Dr Jason Luke was exceptional and we couldn't have asked for a more knowledgeable expert in his field.
Please pray for myself and my children and we try to move forward without our rock, my husband, their dad.
Julie.
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