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Humble apologies, many thanks

Forums General Melanoma Community Humble apologies, many thanks

  • Post
    Mamapegela
    Participant

      Hi everyone-  I want to apologize for my previous post. I replied on it too but wanted to make a new post in case people don't go back that far.  Thank you for your posts particularly Ed, momof4boys, starts, debwray, snow white, bubbles…I took them to heart. 

      I really need this online community.  Maybe I needed my little meltdown, too.  Thank you for reaching out to me and supporting me through it.  I have gotten so much and learned really everything I know about melanoma from the resources provided here.  You are all remarkable people. 

      We are strangers walking along the same path, sharing our experiences, bumping into each other at times, pulling each other up when we fall.  Thanks for not leaving me laying there amongst the autumn leaves.

      Much love and gratitude

    Viewing 29 reply threads
    • Replies
        Mamapegela
        Participant

          I DID NOT mean to post anon…. 

          Peggy

          Mamapegela
          Participant

            I DID NOT mean to post anon…. 

            Peggy

            Mamapegela
            Participant

              I DID NOT mean to post anon…. 

              Peggy

              Mamapegela
              Participant

                I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

                Mamapegela
                Participant

                  I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

                  Mamapegela
                  Participant

                    I wish there were editing abilities on this site.. I cannot seem to do anything right..'sigh'

                    Bubbles
                    Participant

                      Hey Peggy!

                      Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

                      Love, c

                      Bubbles
                      Participant

                        Hey Peggy!

                        Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

                        Love, c

                        Bubbles
                        Participant

                          Hey Peggy!

                          Seeing you back just gave my day a lovely lift! If you can deal with melanoma and have only one melt down, you are a better woman than I am, sister! I think you are doing a great deal 'right'!! Hang in there and have a great day!

                          Love, c

                          imgonnabeatthis
                          Participant

                            Peggy,

                            I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

                            Matt

                             

                            imgonnabeatthis
                            Participant

                              Peggy,

                              I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

                              Matt

                               

                              imgonnabeatthis
                              Participant

                                Peggy,

                                I'm brand new to this.  I just wanted to say thanks.  My meltdowns are frequent.  It actually helps to see that I'm not alone in my frustrations.  Stay strong.

                                Matt

                                 

                                debwray
                                Participant

                                  Hi Peggy,

                                  Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

                                  NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

                                  So hard to do when dealing with your own pain……

                                  Deb

                                   

                                  debwray
                                  Participant

                                    Hi Peggy,

                                    Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

                                    NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

                                    So hard to do when dealing with your own pain……

                                    Deb

                                     

                                    debwray
                                    Participant

                                      Hi Peggy,

                                      Glad to see you back and hope the autumn colours were fab for you. We are all struggling with this in our own ways and you are right the support and first hand knowledge is brilliant.

                                      NIce to get a name check- and yes I went anon for a bit before we broke the stage iv progression news to the family.

                                      So hard to do when dealing with your own pain……

                                      Deb

                                       

                                      snow white
                                      Participant

                                        Hi Peggy,

                                        So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

                                        πŸ™‚

                                        snow white
                                        Participant

                                          Hi Peggy,

                                          So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

                                          πŸ™‚

                                          snow white
                                          Participant

                                            Hi Peggy,

                                            So glad to see you back on here.  This is all so new and frustrating, but knowing that we have somewhere to go and ask questions and get support is priceless!  I am glad I could be of help to you.  Hang in there, I have noticed that things really do get better once there is a plan in place and you have something to focus on other that all of the un-known's.

                                            πŸ™‚

                                            Polymath
                                            Participant

                                              Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

                                              Gary

                                              Polymath
                                              Participant

                                                Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

                                                Gary

                                                Polymath
                                                Participant

                                                  Welcome back Peggy.  Life's lessons come in many shapes and forms.  You reminded me that my "matter of fact" tone can come across as condescending and it was a wake-up call to check a "know-it-all" attitude at the door.  Thanks for the reminder, and as you know now, words can be a little cold on the page, without the nuance's of vis a vis conversation.  However the style, everyone here is trying to help, in whatever way they can.  Best to you in the battle.

                                                  Gary

                                                  ed williams
                                                  Participant

                                                    Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

                                                      Bubbles
                                                      Participant

                                                        Amen, my favorite mouse! C

                                                        Bubbles
                                                        Participant

                                                          Amen, my favorite mouse! C

                                                          Bubbles
                                                          Participant

                                                            Amen, my favorite mouse! C

                                                            ed williams
                                                            Participant

                                                              Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

                                                              ed williams
                                                              Participant

                                                                Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

                                                                ed williams
                                                                Participant

                                                                  Hi Celeste, something I thought you might enjoy!!!! Go to the 12min mark and listen to Dr. Omid Hamid make my case for Mouse power!!!!Ed  https://www.youtube.com/watch?v=FtQJQhQE3dQ

                                                                  Bubbles
                                                                  Participant

                                                                    will do, sir!!  c

                                                                    Bubbles
                                                                    Participant

                                                                      will do, sir!!  c

                                                                      Bubbles
                                                                      Participant

                                                                        Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

                                                                        http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

                                                                        Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

                                                                        Love, c

                                                                        Bubbles
                                                                        Participant

                                                                          Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

                                                                          http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

                                                                          Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

                                                                          Love, c

                                                                          Bubbles
                                                                          Participant

                                                                            Awesome!!  "I'll take the mice…" too!!!!  Here's some new, new, mouse combo's you might like:

                                                                            http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/killing-melanoma-in-mice-is-enhanced-in.html

                                                                            Tumor-antigen-targeting antibody, IL-2, anti-PD1 AND a t cell vaccine!!  Whew!!!  Takes tough mousies in these parts!!!

                                                                            Love, c

                                                                            ed williams
                                                                            Participant

                                                                              Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

                                                                              ed williams
                                                                              Participant

                                                                                Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

                                                                                ed williams
                                                                                Participant

                                                                                  Hi Celeste, they forgot to throw in the kitchen sink in the second mouse trial!!!! I think that it would take a very brave mouse indeed to try that second combination. Best Wishes!!!!Ed

                                                                                  ed williams
                                                                                  Participant

                                                                                    Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

                                                                                    Bubbles
                                                                                    Participant

                                                                                      Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

                                                                                      1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

                                                                                      2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

                                                                                      3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

                                                                                      4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

                                                                                      5.  Mice rule.  Ratties would be lost without them!!!

                                                                                      Much love my personal mouseketeer!!! Thanks! c

                                                                                       

                                                                                      Bubbles
                                                                                      Participant

                                                                                        Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

                                                                                        1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

                                                                                        2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

                                                                                        3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

                                                                                        4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

                                                                                        5.  Mice rule.  Ratties would be lost without them!!!

                                                                                        Much love my personal mouseketeer!!! Thanks! c

                                                                                         

                                                                                        Bubbles
                                                                                        Participant

                                                                                          Wow, Ed!  That is a great video. Had to watch the whole thing!  Thoughts:

                                                                                          1.  You have no idea how often I heard the exclamation, "This stuff is weird!" during my office visits.

                                                                                          2.  You have no idea how it feels to be in a room of incredibly smart nerds, who just leave you in the dust – until you stit through an office visit with Weber, B, and my sister.  Me….I was just the patient…hanging out!

                                                                                          3.  Mice!  You want mice??????  I got mice!  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2015/01/vitiligoa-good-prognostic-indicator-for.html

                                                                                          4.  Neither the Wizard nor B have really let go of the idea that vaccines will improve the action of immunotherapy.  My trial was nivo and peptide vaccines.  The vaccines hurt like a mother and did us no good:  http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2013/05/peptide-vaccines-do-not-trigger.html  But, they were a big reason B found the trial in the first place…back in the day. And I still hold that they will find a way to harness their power, eventually.

                                                                                          5.  Mice rule.  Ratties would be lost without them!!!

                                                                                          Much love my personal mouseketeer!!! Thanks! c

                                                                                           

                                                                                          ed williams
                                                                                          Participant

                                                                                            Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

                                                                                            ed williams
                                                                                            Participant

                                                                                              Hi Celeste, I got another little mouse clip, this time from Dr.Weber in a recent 2016 video about ipi and Nivo and the combination, side effects etc. It is a pretty good watch, if you go to the 15:30 mark you will find my little Mouse momment. Best Wishes!!!Ed   https://www.youtube.com/watch?v=ysbSCeqJpq0

                                                                                              Bubbles
                                                                                              Participant

                                                                                                will do, sir!!  c

                                                                                                Mamapegela
                                                                                                Participant

                                                                                                  I get that!  And thanks πŸ™‚

                                                                                                  Mamapegela
                                                                                                  Participant

                                                                                                    I get that!  And thanks πŸ™‚

                                                                                                    Mamapegela
                                                                                                    Participant

                                                                                                      I get that!  And thanks πŸ™‚

                                                                                                      Mamapegela
                                                                                                      Participant

                                                                                                        I guess I deserve that πŸ™‚ and thanks!

                                                                                                        Mamapegela
                                                                                                        Participant

                                                                                                          I guess I deserve that πŸ™‚ and thanks!

                                                                                                          Mamapegela
                                                                                                          Participant

                                                                                                            I guess I deserve that πŸ™‚ and thanks!

                                                                                                          ed williams
                                                                                                          Participant

                                                                                                            Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

                                                                                                            ed williams
                                                                                                            Participant

                                                                                                              Hi Anon, I mean Peggy (Melanoma Humor) Welcome back to the most "Interesting" family that I have ever been part of. Ed

                                                                                                              Mamapegela
                                                                                                              Participant

                                                                                                                So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

                                                                                                                Mamapegela
                                                                                                                Participant

                                                                                                                  So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

                                                                                                                  Mamapegela
                                                                                                                  Participant

                                                                                                                    So many words of wisdom and support- it is overwhelming.  Human kindness at it's finest.  Thank you again!!

                                                                                                                    Momofjake
                                                                                                                    Participant

                                                                                                                      Peggy,

                                                                                                                      We are a tough and loyal bunch! You have us thick or thin:)

                                                                                                                      kerri–momofjake

                                                                                                                      Momofjake
                                                                                                                      Participant

                                                                                                                        Peggy,

                                                                                                                        We are a tough and loyal bunch! You have us thick or thin:)

                                                                                                                        kerri–momofjake

                                                                                                                        Momofjake
                                                                                                                        Participant

                                                                                                                          Peggy,

                                                                                                                          We are a tough and loyal bunch! You have us thick or thin:)

                                                                                                                          kerri–momofjake

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