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Had Gamma Knife Again Yesterday
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Had Gamma Knife Again Yesterday

› Forums › General Melanoma Community › Had Gamma Knife Again Yesterday

  • Post
    • November 7, 2013 at 1:53 am
    NYKaren
    Participant

      Hi everyone,

      So I was on intermittent dosing of Tafinlar and I stupidly didn't start taking it again at the right time. we have no idea if those extra two weeks made some small tumors develop, but they did. 

      Ten days later it was back for gamma knife (second time.)  I was the last case of the day and had  17, yup 17 tumors.  The actual gamma knife was two hours. Apparently when they're very small as these were, the  procedure takes a long time.  Thankfully they used anesthesia.  In at 7:00 am, out at 8:00 pm. 

      When I had MRI last week, they found my ear is still clear and lymph nodes in my neck were all clear too. I seem to be having a mixed response thing going on.  My blood work is really good too.  Going to onc on 11/19, and neurologist/ onc are tapering my Decadron yet again. Between the depression,the weight and the leg pain, I'm more than ready.   Luckily when my brain started freaking out, I increased the dosage, so I know it was necessary…

      I'll report in after my next onc appointment. 

      Karen

    Viewing 17 reply threads
    • Replies
        • November 7, 2013 at 6:18 am
        DeniseK
        Participant

          Hi Karen,

          I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

          Hang in there girl!!

          All my best 

          Denise

          • November 7, 2013 at 6:18 am
          DeniseK
          Participant

            Hi Karen,

            I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

            Hang in there girl!!

            All my best 

            Denise

            • November 7, 2013 at 6:18 am
            DeniseK
            Participant

              Hi Karen,

              I saw your reply on my post.  I wonder why they are not wanting to do gamma knife again.  I have a call in with the gamma knife doctor to confirm what my doctor said.  Some of my brain mets are bleeding so maybe that has something to do with it.  I am going to review my MRI this evening to see if it's worse then he's saying.  I don't feel like it, I do have a headache but it's not as bad as I have had them in the past.  I am on dex again 12 mg per day, and I started temodar this evening, I should know if that works within the next week.  So basically he said this is my last option.  I am nowhere near giving up!!  

              Hang in there girl!!

              All my best 

              Denise

              • November 7, 2013 at 2:19 pm
              awillett1991
              Participant

                Karen,

                i was just wondering how you were doing, thanks for posting an update. I'm sorry to hear you are dealing with the brain mets again. I continue to remember you in my prayers. Keep fighting!

                Amy

                • November 7, 2013 at 2:19 pm
                awillett1991
                Participant

                  Karen,

                  i was just wondering how you were doing, thanks for posting an update. I'm sorry to hear you are dealing with the brain mets again. I continue to remember you in my prayers. Keep fighting!

                  Amy

                  • November 7, 2013 at 2:19 pm
                  awillett1991
                  Participant

                    Karen,

                    i was just wondering how you were doing, thanks for posting an update. I'm sorry to hear you are dealing with the brain mets again. I continue to remember you in my prayers. Keep fighting!

                    Amy

                    • November 7, 2013 at 8:23 pm
                    aldakota22
                    Participant

                      See that nothing comes easy in your fight.You do have some good news with the ear 7 lymph nodes Blood work is all good.Praying for good news after your doctors appointment,. Beat the Beast,     Al

                      • November 7, 2013 at 8:23 pm
                      aldakota22
                      Participant

                        See that nothing comes easy in your fight.You do have some good news with the ear 7 lymph nodes Blood work is all good.Praying for good news after your doctors appointment,. Beat the Beast,     Al

                        • November 7, 2013 at 8:23 pm
                        aldakota22
                        Participant

                          See that nothing comes easy in your fight.You do have some good news with the ear 7 lymph nodes Blood work is all good.Praying for good news after your doctors appointment,. Beat the Beast,     Al

                          • November 8, 2013 at 6:55 pm
                          Janet Lee
                          Participant

                            Karen,

                            I haven't been on MPIP for awhile, and am trying to catch up. The melanoma roller coaster waits for no one! I'm sorry to hear about what you're going through. I wish I had more to offer than positive thoughts and prayers being sent your way. Good luck. Keep on believin….

                            Janet Lee

                            • November 8, 2013 at 6:55 pm
                            Janet Lee
                            Participant

                              Karen,

                              I haven't been on MPIP for awhile, and am trying to catch up. The melanoma roller coaster waits for no one! I'm sorry to hear about what you're going through. I wish I had more to offer than positive thoughts and prayers being sent your way. Good luck. Keep on believin….

                              Janet Lee

                              • November 8, 2013 at 6:55 pm
                              Janet Lee
                              Participant

                                Karen,

                                I haven't been on MPIP for awhile, and am trying to catch up. The melanoma roller coaster waits for no one! I'm sorry to hear about what you're going through. I wish I had more to offer than positive thoughts and prayers being sent your way. Good luck. Keep on believin….

                                Janet Lee

                                • November 9, 2013 at 3:49 am
                                ncdaniel
                                Participant

                                  Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                  Daniel

                                  • November 9, 2013 at 3:49 am
                                  ncdaniel
                                  Participant

                                    Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                    Daniel

                                    • November 9, 2013 at 3:49 am
                                    ncdaniel
                                    Participant

                                      Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                      Daniel

                                      • November 9, 2013 at 3:49 am
                                      ncdaniel
                                      Participant

                                        Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                        Daniel

                                        • November 9, 2013 at 3:49 am
                                        ncdaniel
                                        Participant

                                          Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                          Daniel

                                            • November 12, 2013 at 1:00 am
                                            cep3700
                                            Participant

                                              Hi, This sounds very similar to what my mother is going through, what is WBR?

                                              Thanks, 

                                              Colleen

                                              • November 12, 2013 at 1:00 am
                                              cep3700
                                              Participant

                                                Hi, This sounds very similar to what my mother is going through, what is WBR?

                                                Thanks, 

                                                Colleen

                                                • November 12, 2013 at 1:00 am
                                                cep3700
                                                Participant

                                                  Hi, This sounds very similar to what my mother is going through, what is WBR?

                                                  Thanks, 

                                                  Colleen

                                                • November 9, 2013 at 3:49 am
                                                ncdaniel
                                                Participant

                                                  Karen, so sorry to hear your dealing with brain mets. My wife went through this in September 7 brain mets had gamma knife and then doctor there recommended WBR which she started in September and now no brain mets and she is going for TIL next week.  I always think about you and the great advice you gave after her bad reaction toy ergot. She had two doses of remicade but got straightened out. I contiue to wish you the best. Have you considered WBR.

                                                  Daniel

                                              Viewing 17 reply threads
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