Eye and IPI

Lisa,

Get to your doctor. Sometimes Yervoy can make the immune system attack the melanin in your eyes. Stay strong my thoughts are with you. Enjoy your vacation

John

Lisa,

Get to your doctor. Sometimes Yervoy can make the immune system attack the melanin in your eyes. Stay strong my thoughts are with you. Enjoy your vacation

John

Lisa,

Get to your doctor. Sometimes Yervoy can make the immune system attack the melanin in your eyes. Stay strong my thoughts are with you. Enjoy your vacation

John

My eyes have been effected by the ipi I developed Uvietis and was prescribed prdisone drops, I thought my eyes were all better but they are not so he is putting me back on the drops for 3 more weeks. You should see an eye specialist, mine is in contact with the company that makes the yervoy. I had three treatments and now can not have the fourth because of my eyes. Hope you enjoy your trip to Florida we just came back from Arkansas, you just have to get away sometimes and forget about the cancer. 

My eyes have been effected by the ipi I developed Uvietis and was prescribed prdisone drops, I thought my eyes were all better but they are not so he is putting me back on the drops for 3 more weeks. You should see an eye specialist, mine is in contact with the company that makes the yervoy. I had three treatments and now can not have the fourth because of my eyes. Hope you enjoy your trip to Florida we just came back from Arkansas, you just have to get away sometimes and forget about the cancer. 

My eyes have been effected by the ipi I developed Uvietis and was prescribed prdisone drops, I thought my eyes were all better but they are not so he is putting me back on the drops for 3 more weeks. You should see an eye specialist, mine is in contact with the company that makes the yervoy. I had three treatments and now can not have the fourth because of my eyes. Hope you enjoy your trip to Florida we just came back from Arkansas, you just have to get away sometimes and forget about the cancer. 

Hi Lisa,

So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

Annette IIIB

Melanoma Network of Canada

Hi Lisa,

So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

Annette IIIB

Melanoma Network of Canada

Hi Lisa,

So sorry to read you are still dealing with this nasty disease.  It has benn a while since I have been on the site.  Hope you are able to enjoy your time in Florida and thinking of you often.

Annette IIIB

Melanoma Network of Canada

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

Hi lisa…i have read your posts on the other melanoma site but cannot reply on that one so i am here..i also am st 4 with brain mets and lung mets but i also have a eye met. I went through till at nih and thats when they found it. Its secondary. They told me it is important for people with met.mel to get eyes checked if slightest change happens. Please do so..it hasnt been fun. Im now eye stable but brain not and the possibility of craniotomy is next..i hope your trip goes well and keep us posted..

It may not be related at all, not sure where you brain tumors are located, mine was directly above my left eye, which before surgery gave me blurry vision.  After surgery, that blurry vision continued, and I kept seeing flashes of colors all the time. My brain doctors never noticed, and sent me home. 

THANKFULLY the eye doctor who checked me out noticed my vision was still way off, and all these numbers they use to test your vision were way off, and they are the ones who sent me back to the hospital for 8 days (had the lumbar drain), which got all the extra fluid out of my head that the brain doctors missed, and after some medication from the eye doctor (diamox I think it was), my eyes are back to normal vision again.

Anyways, I suggest you go see an eye doctor (the kinds that do surgeries, etc), not an "eyeglass" doctor, and have them test your eyes too, as sometimes they can discover things that cancer doctors MISS!

It may not be related at all, not sure where you brain tumors are located, mine was directly above my left eye, which before surgery gave me blurry vision.  After surgery, that blurry vision continued, and I kept seeing flashes of colors all the time. My brain doctors never noticed, and sent me home. 

THANKFULLY the eye doctor who checked me out noticed my vision was still way off, and all these numbers they use to test your vision were way off, and they are the ones who sent me back to the hospital for 8 days (had the lumbar drain), which got all the extra fluid out of my head that the brain doctors missed, and after some medication from the eye doctor (diamox I think it was), my eyes are back to normal vision again.

Anyways, I suggest you go see an eye doctor (the kinds that do surgeries, etc), not an "eyeglass" doctor, and have them test your eyes too, as sometimes they can discover things that cancer doctors MISS!

It may not be related at all, not sure where you brain tumors are located, mine was directly above my left eye, which before surgery gave me blurry vision.  After surgery, that blurry vision continued, and I kept seeing flashes of colors all the time. My brain doctors never noticed, and sent me home. 

THANKFULLY the eye doctor who checked me out noticed my vision was still way off, and all these numbers they use to test your vision were way off, and they are the ones who sent me back to the hospital for 8 days (had the lumbar drain), which got all the extra fluid out of my head that the brain doctors missed, and after some medication from the eye doctor (diamox I think it was), my eyes are back to normal vision again.

Anyways, I suggest you go see an eye doctor (the kinds that do surgeries, etc), not an "eyeglass" doctor, and have them test your eyes too, as sometimes they can discover things that cancer doctors MISS!

I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck

I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck

I also had side effects from IPI. headaches, ear ringing and blurry eyes. Several doctors didnt even know what I was talking about. I went to onc, neur, eye dr. The only thing that has been helping is the use of steroids. While ster. are not great to stay on, they have def. lowered the side effects and made life easier. Speak to a trusted dr. about using steroids carefully. good luck