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EricnJill

Forums General Melanoma Community EricnJill

  • Post
    molly
    Participant

    Thinking of both of you and hoping Eric is comfortable and you have been able to work through  some of the challenges you have been facing.

    molly

    Thinking of both of you and hoping Eric is comfortable and you have been able to work through  some of the challenges you have been facing.

    molly

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  • Replies
      JuleFL
      Participant
      Eric and Jill,
      Also thinking about you often and keeping you in my prayers.
      Jule

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      JuleFL
      Participant
      Eric and Jill,
      Also thinking about you often and keeping you in my prayers.
      Jule

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      Sherron
      Participant

      I am also thinking about Jill & Eric.

      Take Care,

      Sherron, wife to Jim FOREVER

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      Sherron
      Participant

      I am also thinking about Jill & Eric.

      Take Care,

      Sherron, wife to Jim FOREVER

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        Terra
        Participant

        I have read most of your posts and thoughts andprayers are with you. 

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        Terra
        Participant

        I have read most of your posts and thoughts andprayers are with you. 

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      killmel
      Participant

      I too have been thinking ofthem both. Let's hope Eric gets a Xmas Miracle!

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      killmel
      Participant

      I too have been thinking ofthem both. Let's hope Eric gets a Xmas Miracle!

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      EricNJill
      Participant

      It is really touching to log on quickly to see posts and see that someone posts a thread asking how we are doing.  Thank you so much for caring.

      I haven't been on much because it seems like life it going by so fast.  I am the only one working and I was diagnosed with Whooping Cough.  I'm feeling better now thankfully.

      Eric is doing well.  The confusion, extreme fatigue and hallucinations I think we all caused by the Kepra.  He is no longer on Kepra and tomorrow we decrease his dose of Decadron to 2 mg a day for a week and then we stop it.  He is a lot more alert.  He can't be left alone because he gets very forgetful and sometimes confused, but I thank god every day that he is mentally back with me. 

      He had the Gamma Knife on 11/29.  I called Sara Cannon Institute today to see if we can get back in to see if he can qualify for a BRAF trial.  I'm  waiting for them to call back.  They have the expanded us of PLX4032 so I'm sure he can get into something there.

      He's had one round of Temodar and starts another round on 12/29.  He has significantly more tumors on his leg.  You can see them grow daily, it's heartbreaking because then I worry that if it's not working in the leg is it working in the brain. 

      Hospice IS WONDERFUL!  It's one of the best decisions we've ever made.  Their help and guidance has been a huge relief. 

      Eric asked me to have one of my friends (who is a photographer) come take pictures of our family because he's concerned that he may not be here long and he wanted us to have pictures.  I posted one of our pictures here.  Thank you for all of the support you have given us.

      Merry Christmas to you all and God Bless, Jill N Eric

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      EricNJill
      Participant

      It is really touching to log on quickly to see posts and see that someone posts a thread asking how we are doing.  Thank you so much for caring.

      I haven't been on much because it seems like life it going by so fast.  I am the only one working and I was diagnosed with Whooping Cough.  I'm feeling better now thankfully.

      Eric is doing well.  The confusion, extreme fatigue and hallucinations I think we all caused by the Kepra.  He is no longer on Kepra and tomorrow we decrease his dose of Decadron to 2 mg a day for a week and then we stop it.  He is a lot more alert.  He can't be left alone because he gets very forgetful and sometimes confused, but I thank god every day that he is mentally back with me. 

      He had the Gamma Knife on 11/29.  I called Sara Cannon Institute today to see if we can get back in to see if he can qualify for a BRAF trial.  I'm  waiting for them to call back.  They have the expanded us of PLX4032 so I'm sure he can get into something there.

      He's had one round of Temodar and starts another round on 12/29.  He has significantly more tumors on his leg.  You can see them grow daily, it's heartbreaking because then I worry that if it's not working in the leg is it working in the brain. 

      Hospice IS WONDERFUL!  It's one of the best decisions we've ever made.  Their help and guidance has been a huge relief. 

      Eric asked me to have one of my friends (who is a photographer) come take pictures of our family because he's concerned that he may not be here long and he wanted us to have pictures.  I posted one of our pictures here.  Thank you for all of the support you have given us.

      Merry Christmas to you all and God Bless, Jill N Eric

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        Becky
        Participant
        What a beautiful family!

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        Becky
        Participant
        What a beautiful family!

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        Melanoma Mom
        Participant

        Beautiful photo! We are sending our love and prayers!

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        Melanoma Mom
        Participant

        Beautiful photo! We are sending our love and prayers!

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        Sherron
        Participant

        Jill your family is beautiful….We had family pictures also made in early September right as Jim was beginning to feel not so good.  I am so glad we did…I cherish those photos and even the memories of the day we did them.

        Thinking of your family…and praying that things go well.

        Take Care,

        Sherron, wife to Jim FOREVER

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        Sherron
        Participant

        Jill your family is beautiful….We had family pictures also made in early September right as Jim was beginning to feel not so good.  I am so glad we did…I cherish those photos and even the memories of the day we did them.

        Thinking of your family…and praying that things go well.

        Take Care,

        Sherron, wife to Jim FOREVER

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        yensidw
        Participant

        May God bless your family. Wishing you a Merry Christmas.

         

        Janis

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        yensidw
        Participant

        May God bless your family. Wishing you a Merry Christmas.

         

        Janis

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