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Dr Hamid/The Angeles Clinic.

Forums General Melanoma Community Dr Hamid/The Angeles Clinic.

  • Post
    snow white
    Participant

      Well. It was a very interesting day to say the least.  I was so nervous for a few days before the visit. We had had all of Dads medical records sent over and we brought CD's of all of his scans.  We ended up mainly seeing Dr. Morganna Freeman who works as a partner to Dr. Hamid.  We LOVED her.  We were at the appointment for 2 1/2 hours.  She is very thorough with her questions.  First of all, she feels that Dad is responding. well to Opdivo.  Unfortuantely, Dads platelets are very low and he hasn't had a treatment since Dec. 27th.  Interesting part of this whole visit is that she is suspicious that Dad might have some type of fungal infection that often mimics tumors (I don't really understand it).  She looked at all of Dads pathology and found that the Left Lung lower lobe that was removed showed that it tested positve for fungal elements. This is something that we have never heard before.  She was also fairly sceptical about Dad having LMD, though it is a possibilty for sure, it could also be something else.  She said that they will do the Spinal tap for the LMD and also check for this particular Fungus.  The plan is to try to get his platelets up, most likely by giving him a good dose of steroids, if that doesnt' do it, then a product called N Plate will be used.  We can't have the Spinal Tap until his platelets are over 100,000.  They took about 10 vials of blood and we should have some results back by tomorrow.  On top of all of this.  We were in the ER with Dad saturday night because his temp shot up to 101.7.  He had been fighting what we thought was a cold.  It turned out to be the Flu.  They started him on Tamiflu and he is already feeling better.

      There was much more talked about, but honestly my head is spinning.  We also did see Dr. Hamid and he had already been "briefed" about Dad and concurred with everything Dr. Freeman had said.  Dad goes back next Monday and we will go from there!  We are so happy that we decided to go there.  Everyone was great, it felt like the right place to be!   Also, I was SO happy to meet Paul and his daughter.  What a great guy that has been through so much.  I know it was helpful to my Mom to speak to him and hear him say that he felt it "was the place to be".  Thanks Paul!!!    Hope all are hanging in there.

      xo Jen

    Viewing 23 reply threads
    • Replies
        maperny
        Participant

          Very pleased to read this.  It's so good to feel you are in safe hands who care and are eager to help

          good luck with getting platelets up!

          Maria

          maperny
          Participant

            Very pleased to read this.  It's so good to feel you are in safe hands who care and are eager to help

            good luck with getting platelets up!

            Maria

            maperny
            Participant

              Very pleased to read this.  It's so good to feel you are in safe hands who care and are eager to help

              good luck with getting platelets up!

              Maria

              debwray
              Participant

                Hi Jen,

                Thanks for the updates.. Was thinking about both you and Paul yesterday.  If your Mum is now on board with Melanoma experts being in charge..things should be a bit easier- bar the travelling I guess. Looks like you have a few more questions that need answering before you move forward- but at least they are sorting the pathway back to treatment. Glad to hear it was a positive experience.

                Best wishes

                Deb

                debwray
                Participant

                  Hi Jen,

                  Thanks for the updates.. Was thinking about both you and Paul yesterday.  If your Mum is now on board with Melanoma experts being in charge..things should be a bit easier- bar the travelling I guess. Looks like you have a few more questions that need answering before you move forward- but at least they are sorting the pathway back to treatment. Glad to hear it was a positive experience.

                  Best wishes

                  Deb

                  debwray
                  Participant

                    Hi Jen,

                    Thanks for the updates.. Was thinking about both you and Paul yesterday.  If your Mum is now on board with Melanoma experts being in charge..things should be a bit easier- bar the travelling I guess. Looks like you have a few more questions that need answering before you move forward- but at least they are sorting the pathway back to treatment. Glad to hear it was a positive experience.

                    Best wishes

                    Deb

                    cancersnewnormal
                    Participant

                      Glad to hear it was a comforting experience! Travel for treatment isn't always pleasant or convenient, but it really helps a lot when you can feel as though you're in the right place. It makes any inconvenience worth it.

                      Fungus…. huh. That is interesting. Hopefully they can get that taken care of and have him feeling even BETTER!

                      cancersnewnormal
                      Participant

                        Glad to hear it was a comforting experience! Travel for treatment isn't always pleasant or convenient, but it really helps a lot when you can feel as though you're in the right place. It makes any inconvenience worth it.

                        Fungus…. huh. That is interesting. Hopefully they can get that taken care of and have him feeling even BETTER!

                        cancersnewnormal
                        Participant

                          Glad to hear it was a comforting experience! Travel for treatment isn't always pleasant or convenient, but it really helps a lot when you can feel as though you're in the right place. It makes any inconvenience worth it.

                          Fungus…. huh. That is interesting. Hopefully they can get that taken care of and have him feeling even BETTER!

                          Scooby123
                          Participant
                            So pleased for you and your dad hun.keep that positive spirit up. Sending hugs
                            Scooby x
                            Scooby123
                            Participant
                              So pleased for you and your dad hun.keep that positive spirit up. Sending hugs
                              Scooby x
                              Scooby123
                              Participant
                                So pleased for you and your dad hun.keep that positive spirit up. Sending hugs
                                Scooby x
                                Polymath
                                Participant

                                  Hi Jen,

                                  Sounds like the Angeles Clinic was a good move.  Best to Dad, Mom, and you in beating back the beast.

                                  Gary

                                  Polymath
                                  Participant

                                    Hi Jen,

                                    Sounds like the Angeles Clinic was a good move.  Best to Dad, Mom, and you in beating back the beast.

                                    Gary

                                    Polymath
                                    Participant

                                      Hi Jen,

                                      Sounds like the Angeles Clinic was a good move.  Best to Dad, Mom, and you in beating back the beast.

                                      Gary

                                      keepthefaith11
                                      Participant
                                        Jen, so glad the appointment went well and that you feel confident in them! That is such a comforting feeling. Sending positive thoughts!

                                        Annie

                                        keepthefaith11
                                        Participant
                                          Jen, so glad the appointment went well and that you feel confident in them! That is such a comforting feeling. Sending positive thoughts!

                                          Annie

                                          keepthefaith11
                                          Participant
                                            Jen, so glad the appointment went well and that you feel confident in them! That is such a comforting feeling. Sending positive thoughts!

                                            Annie

                                            snow white
                                            Participant

                                              Thank you all for your kind words, it means so much.  We are feeling even better today about our decision.  Dr. Freeman has already been in contact with my Dad's current oncologist, USC regarding lung biopsy that was done, has talked to an infectious disease doc, and has all blood work back!  She called and gave us the update this morning.  GOOD NEWS: Dads platelets came up!!!!!

                                              xo Jen

                                              snow white
                                              Participant

                                                Thank you all for your kind words, it means so much.  We are feeling even better today about our decision.  Dr. Freeman has already been in contact with my Dad's current oncologist, USC regarding lung biopsy that was done, has talked to an infectious disease doc, and has all blood work back!  She called and gave us the update this morning.  GOOD NEWS: Dads platelets came up!!!!!

                                                xo Jen

                                                snow white
                                                Participant

                                                  Thank you all for your kind words, it means so much.  We are feeling even better today about our decision.  Dr. Freeman has already been in contact with my Dad's current oncologist, USC regarding lung biopsy that was done, has talked to an infectious disease doc, and has all blood work back!  She called and gave us the update this morning.  GOOD NEWS: Dads platelets came up!!!!!

                                                  xo Jen

                                                  Bubbles
                                                  Participant

                                                    Such great news all around, Jen!!!  So hopeful for your dad.  Glad they are taking testing for LMD seriously, but have fingers crossed that it is not part of what he is dealing with and it is very reassuring that the docs feel that it is unlikely!!!  Hang in there!! celeste

                                                    Bubbles
                                                    Participant

                                                      Such great news all around, Jen!!!  So hopeful for your dad.  Glad they are taking testing for LMD seriously, but have fingers crossed that it is not part of what he is dealing with and it is very reassuring that the docs feel that it is unlikely!!!  Hang in there!! celeste

                                                      Bubbles
                                                      Participant

                                                        Such great news all around, Jen!!!  So hopeful for your dad.  Glad they are taking testing for LMD seriously, but have fingers crossed that it is not part of what he is dealing with and it is very reassuring that the docs feel that it is unlikely!!!  Hang in there!! celeste

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