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  • Post
    • January 5, 2013 at 11:30 pm
    bikerwife
    Participant

      I haven't posted lately but Lynn is in his 7th month on Zelobraf.  He had scans in November it showed some shrinkage and some growth his Dr. said he considers him to be stable. Blood work is good. Some side effects lost lots of hair has some joint pain. Overall he's doing pretty good.  Our main problem is the appetite and weight loss. He lost so much weight after WBR and has never been able to gain it back.  If anyone has any suggestion I sure would be thankful. We are at the point he feels bad about the way he looks.

      I haven't posted lately but Lynn is in his 7th month on Zelobraf.  He had scans in November it showed some shrinkage and some growth his Dr. said he considers him to be stable. Blood work is good. Some side effects lost lots of hair has some joint pain. Overall he's doing pretty good.  Our main problem is the appetite and weight loss. He lost so much weight after WBR and has never been able to gain it back.  If anyone has any suggestion I sure would be thankful. We are at the point he feels bad about the way he looks. I check on y'all daily and pray for each of you.

    Viewing 11 reply threads
    • Replies
        • January 6, 2013 at 2:09 am
        awillett1991
        Participant
          So glad to hear Lynn is stable but sorry you’re still struggling with this. Did you ever ask your doc to try Megace ES? I still take it off and on when I realize I’m not really eating dinner anymore. Zel still makes some things taste funny, but the things I like I will eat more of.

          Thanks for those prayers. Tina D is needing some – there is a post.

          • January 6, 2013 at 2:09 am
          awillett1991
          Participant
            So glad to hear Lynn is stable but sorry you’re still struggling with this. Did you ever ask your doc to try Megace ES? I still take it off and on when I realize I’m not really eating dinner anymore. Zel still makes some things taste funny, but the things I like I will eat more of.

            Thanks for those prayers. Tina D is needing some – there is a post.

              • January 6, 2013 at 2:49 am
              NYKaren
              Participant
                Hi,
                Sorry I can’t help in the appetite dept. but I’m glad to hear Lynn’s stable.
                Karen
                • January 6, 2013 at 2:49 am
                NYKaren
                Participant
                  Hi,
                  Sorry I can’t help in the appetite dept. but I’m glad to hear Lynn’s stable.
                  Karen
                  • January 6, 2013 at 2:49 am
                  NYKaren
                  Participant
                    Hi,
                    Sorry I can’t help in the appetite dept. but I’m glad to hear Lynn’s stable.
                    Karen
                    • January 6, 2013 at 3:11 am
                    bikerwife
                    Participant

                      Thank you. I will ask the Dr. this week we go for a check up.  He eats lots of things he likes hot wings ten times a week. Not that much. I saw the post about Tina sending prayers her way. 

                      • January 6, 2013 at 3:11 am
                      bikerwife
                      Participant

                        Thank you. I will ask the Dr. this week we go for a check up.  He eats lots of things he likes hot wings ten times a week. Not that much. I saw the post about Tina sending prayers her way. 

                        • January 6, 2013 at 3:11 am
                        bikerwife
                        Participant

                          Thank you. I will ask the Dr. this week we go for a check up.  He eats lots of things he likes hot wings ten times a week. Not that much. I saw the post about Tina sending prayers her way. 

                        • January 6, 2013 at 2:09 am
                        awillett1991
                        Participant
                          So glad to hear Lynn is stable but sorry you’re still struggling with this. Did you ever ask your doc to try Megace ES? I still take it off and on when I realize I’m not really eating dinner anymore. Zel still makes some things taste funny, but the things I like I will eat more of.

                          Thanks for those prayers. Tina D is needing some – there is a post.

                          • January 6, 2013 at 12:21 pm
                          triciad
                          Participant

                            Sending prayers your way!  I had appetite/loss of taste issues with Interferon.  I know that is nothing compared to what Lynn is going through, but I found that whatever I could stomach, I did.  Sara Lee poundcake and Slurpees come to mind.  I also enjoyed things with lemon.  Perhaps if you can find a spice/taste he can tolertate…you can run with it.  Good luck!

                            Tricia

                            • January 6, 2013 at 12:21 pm
                            triciad
                            Participant

                              Sending prayers your way!  I had appetite/loss of taste issues with Interferon.  I know that is nothing compared to what Lynn is going through, but I found that whatever I could stomach, I did.  Sara Lee poundcake and Slurpees come to mind.  I also enjoyed things with lemon.  Perhaps if you can find a spice/taste he can tolertate…you can run with it.  Good luck!

                              Tricia

                              • January 6, 2013 at 12:21 pm
                              triciad
                              Participant

                                Sending prayers your way!  I had appetite/loss of taste issues with Interferon.  I know that is nothing compared to what Lynn is going through, but I found that whatever I could stomach, I did.  Sara Lee poundcake and Slurpees come to mind.  I also enjoyed things with lemon.  Perhaps if you can find a spice/taste he can tolertate…you can run with it.  Good luck!

                                Tricia

                                • January 6, 2013 at 6:07 pm
                                Reneezd
                                Participant

                                  Homemade smoothies with protein powder, greens, and lots of fruit!  They will look an odd color with the greens but you don't taste it!  But a good protein powder or it will be chalky, I think I have a whey protein!

                                  • January 6, 2013 at 6:07 pm
                                  Reneezd
                                  Participant

                                    Homemade smoothies with protein powder, greens, and lots of fruit!  They will look an odd color with the greens but you don't taste it!  But a good protein powder or it will be chalky, I think I have a whey protein!

                                    • January 6, 2013 at 6:07 pm
                                    Reneezd
                                    Participant

                                      Homemade smoothies with protein powder, greens, and lots of fruit!  They will look an odd color with the greens but you don't taste it!  But a good protein powder or it will be chalky, I think I have a whey protein!

                                      • January 6, 2013 at 7:32 pm
                                      madeclaire
                                      Participant

                                        Try a product called scandishake.  You can find it online.  Mixed with milk or soy milk it will add 600 calories to his diet and it's tasty.  Not really sure how nutritional it is though.  Good luck

                                        • January 6, 2013 at 7:32 pm
                                        madeclaire
                                        Participant

                                          Try a product called scandishake.  You can find it online.  Mixed with milk or soy milk it will add 600 calories to his diet and it's tasty.  Not really sure how nutritional it is though.  Good luck

                                          • January 6, 2013 at 7:32 pm
                                          madeclaire
                                          Participant

                                            Try a product called scandishake.  You can find it online.  Mixed with milk or soy milk it will add 600 calories to his diet and it's tasty.  Not really sure how nutritional it is though.  Good luck

                                        Viewing 11 reply threads
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